I’ve been in contact with a journalist who is going to run a piece on PFS (UK) he would like a selection of sufferers/view points stories! He also wants a mixed bag in terms of exposure, symptoms and damage. Not necessarily just severe. If included you can remain anonymous if you so wish.
Please PM with your name and telephone contact and I will in turn pass on your details. (Summary of exposure, main sides and damage would be good, though not necessary as the journalist can ask for these when he makes contact).
The important thing is we step up.
Let’s get behind this please.
Any opportunity to be heard should not be wasted.
I don’t imagine being outside of the UK will be a problem.