Hey Thissucks
Just wondered if you have any more news on the Tamox treatment, and how you’re doing?
Really hope that things have been better for you.
Thanks.
Dr. Crisler of course gave me the hydrocortisone. I stopped taking it on January 1 along with the tamoxifen and my condition has quickly degraded back to where it was before I started taking these medications.
I talked to Dr. Crisler again today, and he wants me back on the hydrocortisone and to stay with it for about 6 months. I asked him if there was anything else to treat the adrenal fatigue, and he didn’t mention anything. I did not specifically mention the DHEA because I don’t know enough about it to carry on any sort of conversation about it.
He also wants me to retry the tamox for another 8 weeks, and he wants blood tests halfway in this time to see if it really is working for me. (specifically, he said he’s interested in LH).
Very nice post, solonjk. You summed it up nicely, I agree 100% with your description of what this poison does to us. So what have you been doing since your burnout, and how are you doing now?
BTW, you don’t live in Solon do you? (from your screen name)
Hey ScaredMale30, the second round of tamoxifen/hydrocortisone was somewhat successful. I had some improvement including the following:
-no more waves of nausea/light-headedness
-minimal testicular pain (improved)
-a slight increase in libido (occasionally I actually felt somewhat horny)
-frequent erections, including morning and spontaneous erections
Unfortunately, I ended my 8 week stint on January 1st, and everything quickly crashed back down to how it was before. Now that I’m back down to rock-bottom, I realized how much I had actually improved on the tamox/hydro. You don’t realize when you improve in very small increments, just how much better you have gotten - until it’s all gone.
I’d say I reached about 50% of myself on the medications, and now I’m back down to 0% (if that’s possible). Which really really REALLY sucks. Hence, my screen name is quite fitting right now.
Hi Thissucks
Thanks v much for coming back. I’m about to start a course of Tamoxifen and really interested in what I’m getting myself in for.
Sorry to hear that improvements on Tamox have not been maintained. Maybe it’s simply a case of staying on it for longer?
Do you have any blood tests that give an idea of what Tamoxifen did to your homone levels? Are we talking about a situation where your T rose while on Tamox and then sunk back down once you got off it?
Do you have secondary signs of low T, such as slow growth of facial hair and loss of body hair? If so, did these respond to Tamox?
And did Tamox help with fatigue, general feelings of wellness? Or was it pretty much restricted to libido and erections?
Thanks again, really appreciate your help.
BTW… I want to tell you all that I HAVE AN APPOINTMENT WITH DR. CRISLER next Monday as well!
I am flying out from Boston. It has been a long time coming, but I am very excited. I decided to go back on Adderall for a while now, and take the bull by the horns. Why am I waiting… Theres no reason. really no reason… I’m going. It took me 2 days to line up the appointment and fill out the applications and fax them in. This is bullshit, Why am I waiting so long. Because of fear. Fear of what… Suffering forever… I can always go back and try again… but for now, I’m trying NOW! Enough is enough. They are very nice there.
I am also very glad you are actively talking with him at this moment as well ‘ThisSucks’. We will persevere. Jump on board guys. Tell him you want to come immediately. All you have to do is go to his website, allthingsmale.com print out the seven page medical history form, and two page release form. Once it is filled out to your liking, then just call them, fax it, and go!! Just do it guys. Please, join us! Please, at least a couple of you. Don’t be pussies for the rest of your lives!! See here, I’m challenging some of you. I am still fucking pissed I didn’t take a shot of HCG two weeks after stopping Fin and coming down with these conditions when my old roomate (a bodybuilder dude) offered me some. He even made the call. His guy had a bottle. But fucking Hypo is here scared me out of taking it “without being under the care of a competent endocrinologist!” Well fuck that!! Maybe I woulda rebounded! I mean shit, thats why they do that shit after a steroid cycle. I was so stupid. I was manic!! But I’m fucking tired of waiting for some magical cure to come along. I’m going to get this treated now.
Anyway… I think NOW IS THE TIME! I think as many of you as possible should go see him right now! (PS> SORRY IF I’M HYJACKING THIS POST FOR A MINUTE, BUT THIS IS A PUBLIC SERVICE ANNOUNCEMENT!) We should saturate DR. CRISLER’S thoughts with this Propecia case right now! Come on Mew, get your f#$^in act together and come down from Canada, even if its just to visit. You’re not gonna do anything from your computer. Leave it to the Doc. come on. Take off your skirt. We need you. I’m sorry for my demeanor. But You’re not gonna get cured from home on your computer… WE really need you! We really need all you! From the looks of your quote here above Thisucks, it appears to me now that he is really actively trying to treat this, and I am excited! Is your dick worth a thousand bucks guys! Well then come. I have a feeling my timing, and tactfullness of my short letter to him was also effective in sparking some interest by him with respect to helping all of us. If any of you would like, I can post the letter here on this site. Just ask me to and I will.
Anyhow, he seems to be trying some things, which is encouraging! Go now people! Go Now please! This is a good time. Lets give him at least 5 or 6 of us right now, and really try to get this going, and his mind into this.
I suggested some things to him also, and maybe it has sparked a more active approach to treating us Fin users…
I also told him to read Oneday’s post, and comment in person.
Thank you guys for reading, and hopefully for listening.
Go cop a ticket, and go. I’m just doing a day trip. Hop on Kayak.com Take care! May god be with us!
Boston~
Hey thissucks, sorry to hear about the crashout – I know exactly what that’s like and am still pretty much there. Question: How much hydrocortisone has Crisler asked you to stay on for the six month treatment? I’ve started the same med on a trial basis (the same kind of 10mg-plus-5mg increase dose he had you on) and am curious about what the longer range plan is with that. I guess the h-cortisone hasn’t helped you out on its own, or at least it’s hard to tell what’s doing what when you’re taking a few things. Hang in there bud!
!!! ALERT!! GO SEE DR. CRISLER NOW !!! IF YOU WANT TO INCREASE OUR CHANCE OF BEING HELPED !!
(Hint: “Trials” is a word that is used when doctors actively try to put together organized typically larger scale potential treatments when they are trying to persue information about particular unknown conditions and/or diseases, and help further medical knowledge.)
We constantly talk on this forum about finding a doctor who will represent all of us Propecia-users, and work to help find a cure!
WELL DR. CRISLER IS OUR MAN RIGHT NOW! I AM CONVINCED! YOU SHOULD GO SEE HIM NOW!!! THIS MONTH! THIS WINTER! Before he gets very busy again like most doctors do once the weather is nicer. Namely with patients that are less of a headache, with conditions that are not so uncommon such as ours!
DR. CRISLER HAS THE TIME, DESIRE, ABILITY, & I think CREATIVITY TO HELP US POST-FIN USERS NOW!
Now, YOU, have to be the ones to act and go sign up, give him your bloodwork, meet w/ him, and let him work, so he has enough patients to start experimenting with to find a solution, do some trials of different things, compare results from many of us, and really have enough of us to get into this and find a cure. This is what he needs to really start drawing conclusions. He needs enough of us men to actually look at, and start finding similarities, compared with differences. Let him SEE YOU, and TAKE YOUR BLOOD! I’m sorry to say this but THERE IS NO BETTER TIME THAN NOW!
The hardest part about finding a doctor to help us has always been finding one who will dedicate the time, along with one who has the ability…
Well lets face it people…nobody knows for sure how to treat this. What this will take is a plethora of us sufferers to come out in droves so that someone really does then put forth the effort, see this as really a serious problem that they want to help with, also obviously get paid something to make it even worth their time at all, and so then work hard, and think hard, have enough of us there to find a cure,… by coming up with ideas, plans, and hence solutions.
Signs right now are also telling me that John Crisler is one of the ONLY DOCTORS actually ACTIVELY trying to treat this problem at the moment! At least to me, on this forum right now!!??? And I mean TRYING DIFFERENT THINGS, because lets face it, no traditional means of medicine have been effective, so this takes a FORWARD THINKING ENDOCRINOLOGIST!
Now we all can talk about other names when talking about “forward thinking endocrinologists”… But how many of these guys do we actually currently hear about actually trying different things to cure us right now, or even recently!?? None that I know about!! And if I’m mistaken guys, please bring it to my attention!
I haven’t heard Dr. Shippen’s name mentioned on this board for over a year! Anyone else???
How about anyone elses!??? (I didn’t think so!) So this is my case for why you should go see Dr. Crisler now.
(I’ll also ad, because it is a concern with some, he is also one of the most affordable doctors to see. $395 to see him and start treatment. While airfare from just about anywhere in the continental US will get you roundtrip tickets to Lansing and back for under $500 if you look on kayak.com. I suggest doing the trip in one day.) If enough of you respond, I will also talk to him about trying extra hard to help us Fin-users in particular, many of us who have already spent thousands and thousands, and while resuloution is still not a guranteed thing… I will let him know that many of you will come visit so we can get to the bottom of this as long as he can just at least keepthis a little affordable for those of us who really need treatment from him, and who are willing to undergo trials, and really sign-on… But however you want to approach it if and when you decide to sign-up is also up to you…
NOW IS YOUR TIME PEOPLE, IF YOU REALLY WANT A DOCTOR ON BOARD WITH US TO HELP FIND A CURE! I HATE TO SAY IT. Bite the bullet and go now, strike while the iron is hot, join the club, jump on the bandwagon, however you wanna see it… Save your penis! Save us! Save Fin-users!!
And again, this is a public service announcement!! I am TRYING TO GET YOU ALL INVOLVED, TO HELP US! This is not just for me!
Do you ever hear the stories about how it is usually one man who really finally makes things happen. Well I am stepping up and trying to be that man and convince people to finally organize and make this pilgrimmage, meeting, happen. Lets do it!
…Just from the looks of what he has been trying with ‘thisucks’ lately, from what he has tried with some others THIS YEAR, from what I have heard over the phone already, it seems like his creative juices are flowing… All you naysayers out there can talk all the shit you want about creativity, but that is what forward thinking is! On another note… From the way the economy is right now and from how many appointments he seems to have available right now, it seems like he really has the time, and we could really get something going right now. I like what it seems is going on with ‘thissucks’. He seems not to be giving up. Lets give him more of us people.
HE HAS TIME, AND DESIRE (WORK ETHIC) TO HELP US RIGHT NOW!
CALLING ALL FIN-USERS!!! GO SEE DR. JOHN CRISLER RIGHT NOW!!!
I am really going after things aggressively right now, and I have been very effective with people lately, communicating well, etc…
—If there are any questions that anybody want me to ask him tomorrow, tell me now.—
I plan on covering a lot with him tomorrow (Mon. 2/2), regarding thoughts and brainstorming what the overall plan of attack could, would, or rather should be, what he has in mind, among other things. PLEASE GIVE ME SOME IMPUT GUYS!!
My brain is moving at an agressive pace, and I am going to try to ‘prime the pump’ so to speak for more of you guys making your way to see him and communicate with him about what he could possibly do if enough of you guys show up. I mean, I’m talking things such as more regular bloodtesting (which it seems he has already started doing with ‘thisucks’ to probably start getting more frequent “snapshots” of what is actually going on with us, before, during, and after particular treatments, to probably aid in his decision making process, and hence treatments, and efforts, etc.) -Mew get involved here!- Also some of the other ideas that are discussed on this site. I’m going to talk to him about trying to cure the prostate pains a lot of us are having. How this ties in with our sexual dysfunctions. If he can use PCT therapies to help cure our prostates. I’ll talk with him about ‘Oneday’s’ success, along with boosting ‘free T’, among other things…
GO SEE HIM NOW IS MY BEST ADVICE FOR YOU ALL. HE WILL HELP US ALL MORE EFFECTIVELY IF WE FLOOD THE OFFICE, AND FLOOD HIS HEAD WITH IDEAS! GET THE BALL ROLLING, AND SOME MOMENTUM IN ORDER, GET ON THIS GUYS PLEASE! IT IS NOT MUCH MONEY! IS YOUR SEX LIFE WORTH $1,000.!??? PLEASE COOPERATE GUYS! He is less likely to help if people wait.
Once you are signed up with him, and if it takes him longer to find a cure, he will still be able to treat you from home through virtual visits in the future easily with very little money!
PS. Mew, can you please make an announcement with this post? If you want to rewrite this, without all the ranting and raving and can post this somewhere where people will see it, that would be a great idea and I would really appreciate this. You are an eloquent writer and people listen to what you say. We really need as many of you as possible on board here. ALERT all people on this forum who are looking to be helped by a doctor if possible? Please make this a sticky!
Thank you guys for reading! Again, sorry for all the ranting and raving, but I really want to create a sense of urgency here in this posting! It is a great idea. I think a better chance than we’ve had… AGAIN, Crisler is actually doing things, and trying different things right now. I’ve also talked to his secretaries… Not about Fin, but mostly about his schedule, and how his appointments and office visits work, and things like that, and it seems this is a reallly energetic, confident, hard-working, and very competent young man, who ALSO has A LOT of experience with things. He seems like a very good bet for many of us. Lets try this guys!
…I was hoping to also get some responses from you all before I fly out tomorrow early in the morning! Maybe some questions any of you think would help us in making some our decisions. I’m all ears. I’ll put it on my list of questions I will have, if it is a good question, and pertinent to our situation. Wish me luck fellows!
And if it isn’t obvious,… I will also be trying to increase his awareness towards our forum here, so if any of you already are thinking of visiting let me know by tonight, and I’ll at least mention your name (screen name is fine) just to get him excited that there are numbers, and so he’ll get serious about this.
Again, Mew, as the moderator and leader on this forum, please give me some feedback as to your support, and/or lack thereof, so that I can help maintain and hold on to some of this enthusiasm that I have here right now so that I can just go in there with some confidence. I know that you do not ALWAYS agree with my approach, or should I say rhetoric, however, hopefully you do see the value in this announcement, and value in this request to all members of this forum, which I think you probably do seeing that this is what you have been hoping for for years. Thak you to all… This would not be possible without all of you!
For fucksake already. Boston, if you want to spam this shit out of this forum then at least start another thread. I’m not really sure why every time you make a decision about your life and treatment that it’s necessary to announce to everyone else that they’re fucking up by not doing the exact same thing. I’m happy that the “prostate = every problem ever” phase is over, half of your posts still sound like you’re totally high. The “IT"S THE PROCESS!” thread sounded like a pyramid sales rep who just did a hit of ecstacy.
Lol.
Hey man, you’re missing the point. More people have been seeing Crisler. He is busy now, but not that busy. He has enough time to fuck with us right now, to say it simply, and is one of the only doctors, with good experience, who is willing to try new things! If you know doctors, and you know how they and their practices work, then you will understand the value of what I am suggesting! Its called tact!
People’s memories fade, and interests wane. Who gives a fuck about us, really! Noone really! How long have you been suffering?? Do you believe this has anything to do with hormones??! Ok then.
If you spent any time reading in this forum rather than composing hysterical manifestoes you might have noticed that I was in Dr Crisler’s office a year ago and am still a patient of his. I’m not missing any point. I’m just telling you to chill the fuck out. Please.
I AM looking forward to hearing about your visit with him (honestly). But I am living proof that even the best doc is no guarantee of solving our issues.
LOL. Good stuff Quint. So anyways Boston, since you probably spent an entire workday typing that crap out, just how did your visit with Dr. Crisler go?
As Quint said above, people like the two of us have already been seeing him, and although I don’t necessarily regret it, I’m still not any better than I was before my first appointment.
So sure, go see Dr. Crisler if you can afford it, but I wouldn’t expect any miracles.
Thisucks - I was treated from mid 07 to mid 08 for adrenal fatigue + topical testosterone, and did have a brief period of about a month went I felt pretty good and everything was working pretty well (including anogasmia going away).
I was prescribed a cortisol/DHEA/pregnenelone topical cream that I took at 7 AM, noon and 4 PM, I can look up the specifics if you wish. As my cortisol levels evened out (I was very high in the morning then would absolutely crash in the afternoon) I was able to stop taking the afternoon dose, then cut the noon dose back, then eliminate the noon dose most days (over a period of about 6 months). So give things some time, you can get DHEA tablets (25 mg is a reasonable low dose from the books I’ve read) and I saw pregnenelone at the health food store the other day.
My problem was I kept needing more and more topical T. My old Doc thought giving the adrenals a rest would allow my pituatary a chance to start working again, but it never did.
I am currently trying Clomid as I have indicated in the clomid Recovery thread. After 3 weeks there are some signs of life.
Solonjk interesting summary on sufferer’s commonalities, I certainly fall into the abnormally low LH/very low FSH category… I found this thread by searching on “ACTH”, because I just got a blood test back (taken the day before I started clomid/clomiphene citrate) which showed my ACTH to be about 10 (scale 6 to 46, I understand though that the range used to be 10 to 60 recently, but of course the blood labs are only testing sick people . . . and using that data to select ranges), and am trying to find its significance. AM cortisol can sometimes be above range, and sometimes be in the middle of the range. Unfortunatly I took the last cortisol reading on a different day than the ACTH (which was not a challenge test).
Thoughts? Has hypo-is-here been around? kazman
I remember this thread. Still suffering. Still hoping for a cure.
1 Like
Fuck man that kind of posts make me suicidal, youre 30 now!