The First Dance

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?

Italy

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

TV

What is your current age, height, weight?

28, 1.83m, around 82kg

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

Fin

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

1.25mg every day

What condition was being treated with the drug?

MPB

For how long did you take the drug (weeks/months/years)?

One week on march 2018, then from january to may 2019

How old were you, and WHEN (date) did you start the drug?

25

How old were you when you quit, and WHEN (date) did you quit?

26

How did you quit (cold turkey or taper off)?

Cold turkey

How long into your usage did you notice the onset of side effects?

Couldn’t say

What side effects did you experience that have yet to resolve since discontinuation?

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections (less, not lost)
Loss of Spontaneous Erections (extremely rare)
Loss of Nocturnal Erections (couldn’t say)
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

Took probiotics, Vitamin C, CoQ10.

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

I don’t have any.

Anything not listed in the above questions you’d like to share about your experience?

Nope.

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I took it the drug as presented above. Crashed after 9 months following a major stress. After the crash, I was recovering, but my stupid stressed lifestyle kept me from recovering. To this day, I don’t know if I have “real” PFS, whatever that means, or if my body is actually ready to heal and it just need a more “relaxed” state.

That being said, I got hit very bad.

2 Likes

You heard about this forum on TV? Where was it mentioned?

A national network in Italy hired a service about Fina and its adverse reactions, and there was this one woman complaining with doctors about her son’s sides, and she mentioned PH.

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Let’s write something. Not really an updated, just a rant.

This condition is eating me alive.

In the past months I’ve lost a good portion of my cognitive abilities. I translate and write books/articles for a living. I used to speak English like a native speaker and was a very talented writer, now everything is mostly gone. I keep asking myself why this is happening this way. I set up my business like two months before the cognitive sides hit, and in no time I had enough clients to earn like 5k a month, net profit. It was a good first step.

Needless to say, the cognitive decline led to a decrease quality of work. And when combined with the depression linked to have gone from being the smartest guy in the room to the most stupid person in the world… well, I’m working very little.

My identity was based on few things, and this condition virtually took’em all. I’m not smart anymore. I’m not funny anymore. I’m not emotional anymore. I’m a pain in the ass to be around. A couple of years ago, depressed as I could be, I was still very smart, and used to crack my friend with a very sophisticated humorism. I was very pleasant to be around.

Right now, I don’t even know why I don’t kill myself. And I’m dead serious. I keep thinking that one it’ll just hit me how screwed up I am, and I’ll just end this torture.

I’ve spent this entire day with my friends, and it was painfull to see that I’m virtually no longer part of the group. I can’t connect with anyone. Sometimes even my family members feel like strangers.

I see people going on with their lives with their business, family, and stuff. I’m stuck.

I think the most dreadful part of it is, I’m no longer able to show my emotions. Most of the time I’m in such a pain it’s just unfair, but my face always has this sort of “relaxed”, uncaring espression, not even my psychologist will believe I’m suffering.

Every single piece of my psychology is falling into pieces. My believes are reshaped, my identity is demolished, my values are shaking.

I’m definitely a worse person.

Every time I start writing, I do it hoping to be able to put my feeling in words. But there is no translation for this kind of pain.

I’m so confused, so hurt, so heartbroken.

Phisically, I’m weak. My muscles lost a lot of strenght. My body hair have changed. My jaw is thinner, my face is more feminine. And I have a thousands other symptoms I don’t feel like going through right now.

I’m so depressed I struggle taking care of myself. I think a took 3 showers in the past 3 months. Often times I don’t brush my teeth.

At this point in time, I go to sleep every night hoping not to wake up the next day.

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I know exactly what you mean. It feels like a nightmare but I’m not even able to feel it. Fuck this cursed drug. How such a hell can be possible is beyond me.

Hang in there though. If only to say “fuck you” to all the naysayers and idiot doctors who don’t believe this is real.

I couldn’t really care less about the deniers.

I’m sorry to read your story. PFS is truly a disgusting disease.

However I would encourage you to hang in there. Do your best to take care of your body and esp teeth.

Taking care of yourself can do much for your mental health to. I’ve read some studies that indicate that something as simple as mouth health (flossing and brushing teeth) can improve the health throughout the entire body.

You’re still young and the chance that we find a cure or something to help at least during your lifetime is still high!

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Wanna laugh? My worst fear is not that we don’t find a cure.

My worst fear is that we find it when I’m like 60 or 65.

By the way, thank you for the kind words, very much needed.

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Let’s set up a few little steps I can take to at least try to get out of this fucking shit. I’ve spent the past 3-4 months lying in my bed all day long watching Netflix and YouTube. Too depressed to even think about anything else.

  • Starting by tomorrow, I’ll resume fast walking, I’d say 30 minutes every day. My phisycal shape is bad. Like, very bad. Let’s start from here.

  • I’ll cut gluten and dairy again. I went for a solid 8 months without both of these products and the results were pretty good. But when I’m depressed is just easy to find comfort in food. There’s no doubt eating right plays a role in my condition. It’s not that drastic, but definitely noticeable.

  • I’ll force myself to work more.

  • I’ll sunbathe. My Vit D was pretty low, and since I’ve responded very well to Vit C before, I hope it was not a one time thing.

Obviously this is just basic stuff. The next step will be supplements, which I’m deadly scared of.

Just for the record, the only three I took were:

  • Vitamin C 500mg a day in october fixed my nails.
  • CoQ10 60mg, gave me dark urines, which I was told was “a sign of detox” (actually not sure about it)
  • Probiotics around one year ago. Felt very little.

Well, that’s it.