@Sibelio you’d have to ask @awor if your specific dollars can go into maintenance. I have no power in that aspect. Idk how we could fund money into other studies outside of the Foundation. I guess that would be up to you and whoever else to fund that money. But I don’t think that’s a good option. We must stay united financially and as a unit.
@vanquish I respect your opinion and you don’t have to donate anything. But previous studies HAVE shown us a ton! For example, the facts that we have lowered neurosteroids, unregulated AR, quantified depression, ED scores. They may not be cures, but they are the foundational facts to our condition.
If we wait for Baylor to come out for us to donate and make moves, well thats just gonna make us move even slower. We need to prepare for the next battle, before finishing this one up, right? Because no matter what Baylor comes out with, I personally don’t think that will be the end of the race. Do you?
@dgreene I personally am a huge proponent of the allopregnanolone medications and treatment. Maybe that’s all that PFS is, a lack of neurosteroids. Maybe we’ve already uncovered the mechanism. But, I don’t know how much money the Foundation has and if donating that much to one trial would be a good plan on a risk-benefit scale. We could lose all of our money. It’s like the episode of South Park where they fundraise a good amount of money for the city, and they decide to gamble it all at the casino to try to completely secure it.
I’ve emailed the Foundation asking them if we could participate in free, or cost-reduced medical trials. Maybe the company that makes allopreg meds would be willing to run trials on us. That way, if we’re good responders, they just received another market for their drug. It’s a win-win. Let’s wait and see if we can receive free or cost reduced treatments in the name of a study or trial run for our condition.
