Story of Spstriken

Vitamin D supplements do nothing for me. I need real sunlight but cannot get it in the UK!

how long did you use and what dosage?
I would say Vit D is my med, it is my viagra too.

Ok, something obviously went wrong with my last post.

What I intended to post was something like:

You mean you are taking 4 to 5 tabs on a daily basis? Doesn’t that mean, with that dosage, you’re taking like about 16 times the recommended daily intake for vitamin D? Just checking, trying to make sure, because long term intake of too high doses of vitamin D can lead to damage to the heart, kidneys and blood vessels.

My last blood test showed my vitamin D level was insufficient, so I’ve been taking sunbeds and vitamin D3 to try and boost it. I can also say it’s definitely made me feel better.

I don’t know to what extend, but I’m guessing vitamin D might play a part in PFS. It could explain some of the symptoms people are suffering from: Muscle weakness, joint pain and slow thought process to just name a few.

I felt as good as new for a decent period when i was on holiday in a hot country.

how 4 to 5 tabs/day can be 16 times the recommended daily intake?
I am sorry but do you have very high brain fog?
normal dose is one tab or 1000IU ( the bottle suggests one tab daily it is from Cosco, Health Balance). I am taking 4 times the daily dose. My doctor told me to take this amount as I was low in Vit D. There are many people on this forum who are taking from 10,000 to 50,000.CDnuts is an example

I guess you don’t realize it’s recommended to take one tab of 1000IU which supplies you with about a little over 4 times the recommended daily intake of vitamin D. Just because your bottle suggests one tab doesn’t mean that by taking 4 you’re also taking 4 times the recommended daily intake. It’s really not that hard to understand, even with my apparently “very high brain fog”.

I asked because taking more than 1 tab should only be done on recommendation of a health practitioner, I only tried to be of help. But since your doctor told you to take that amount I’m it’s all good. I guess with our conditions daily recommended intakes are not a good measurements of what our bodies need anyway.

Well anyway, glad you’re doing so much better dude.

oh ok. maybe you are right and again maybe you are right as you say our bodies need more vit D than normal people do. Keep in mind after taking so much Vit D I was still low in Vit D and still have Osteoporosis.
Some people say 5ARs affect ony certain people. THis is garbage. They affect 100% albeit within differnt time frame.My neighbor after taking finasteride was very low in VitD. He got shots for vit D and now takes two tabs for Vit D daily.He has no sexual side effects though.

They don’t, we are a minority. 90% of men taking finasteride will not have noticeable persistent side effects,

How are you doing SP? still sexually feeling better?

Do you have data to back claim up?

I reckon Merck would say the number is closer to 98%.

The number of active members of this site would corroborate this figure.

No one can definitively say any number.

The number of persistent side effects is probably around 2%, or a bit higher if you include guys who take a few months to get better.

The number of guys getting sides on the drug is way higher though, like 20-30%, and for those lies alone the drug should be off the market.

we should write about fin/dut/sp and give address of propeciahelp.com
kijij.com
craig list
news papers in classified or in seperate space

then we see how many people turn out. So far, as far as I see almost 100% of fin users are coming here after googling. None of them mentioned that he heared about fin sides on TV,Radio or new papers.
I am sure acutal number is in millions but when people go to see doctors they waste many months or even years before it turns out that the root cause is 5ARi use. It took me 4 months. Doctor wasted my time. It took KemanGD many years to get on this website. Go back and read many users came on this website years after suffering unknowingly the cause.
So unless there is an open compaign (TV, Radio,news papers) thousands of people will stay in dark.

I don’t agree. I think we are a small number; this website is not difficult to find and neither are the hair loss forums, health forums and so on. I am sure some more guys would appear through advertising but certainly not anywhere even close to millions.

Oh and MartinM, yeah i have some data, if you put your finger up your arse and look up there for a few minutes you should find some.

Of course i don’t have any data. I obviously didn’t mean literally. It always makes me laugh when i see people like you requesting ‘data’ to back things up when your story, my story and this whole forum is based around anecdotal reports.

I don’t think most of the people have side effects after quitting propecia. I’ve seen about 8 or 9 urologists in my city and 1 endo, and none of them had ever heard of people having side effects after quitting propecia. So i’m the first one that told them about side effects after quiting.

Exactly.

Add that to all the hair loss specialists who have not seen a thing. It’s not as if guys who can pay 20k for hair transplants don’t know how to go on hair loss forums or propeciahelp and refute their claims of never seeing cases of persistent side effects.

Hair transplants are only getting more popular too, i don’t know if anyone follows football/ soccer but Wayne Rooney, a player well known for being incredibly ugly just got his hair fixed and it has created a LOT of hype because he does look considerably better. More and more guys will be getting transplants and using finasteride. Not to even mention the fact you can get finasteride off a large number of internet pharmacies, over the counter in some countries, boots in the UK. Yet this forum still only has the same usernames popping up regularly, despite being very easy to find.

I even saw this earlier: chemistdirect.co.uk/propecia-1mg-tablets_4_11992.html

Over 213 reviews at 4 stars. So basically, most out of 213 customers are extremely happy with using propecia. Askapatient rating is very low, i would imagine due to a load of us posting/ flooding it.

Don’t get me wrong - Merck BLATANTLY lied about the incidence of side effects ON the drug, you can tell just from reading the hair loss forums. I would hazard a guess that symptoms such as watery semen and testicle pain/ aching is well above 30% - and no MartinM, i don’t have data for that. Finasteride is a horrible drug and it should not be on the market if it will ruin the lives of even 0.5% of users without sufficient warning. However, we are a small minority, no doubt about it. I still cannot believe how i have fallen into this small group, but it is what it is. The reason that i personally am not holding out for research or scientists to figure this out is purely because i don’t think it will ever happen due to the small number. To put it bluntly, why would anyone really give a shit about us when there are hundreds/ thousands of other chronic illnesses with far more sufferers that need a cure? it’s tragic really :frowning:

I can only imagine how confused you are SP by such severe side effects from Saw Palmetto.

I clicked on that ‘chemist’ site and it wasn’t written reviews, just someone clicking on star ratings. Could easily be the sellers themselves trying to make it look good.

I think we are small in mumber but not that small. There are a lot of guys who get harmed but just carry on with their lives without being regulars here, as any cursory study of the member’s stories shows. I registered for the PSSD forum and that has even fewer active users. Granted it’s a yahoo forum not an open message board but consider how many tens of millions more people use SSRIs. I’m sure most people if they were directed to this site and were aware it’s a cosmetic drug would be like ‘wtf? How is this allowed?’

Part of the problem is that the reporting procedures to health regulatory bodies seem inept. I mean from the specialist consultant level. Uros or endos either don’t believe us and don’t report it or just don’t report it anyway, thus other docs still act surprised by PFS because they have never heard of it or encountered it first hand.

I do feel stupid for being duped by big pharma. I was aware of the possibility of permanent damge from anti-depressants, and the industry’s practice of ‘disease mongering’ to make profits, but I never figured ot could apply to a hairloss product. Then again I was buying it from the moneygrabbing twats at inhouse rather than getting it from a doc so it was too easy to forget I was messing with pharmaceuticals. :angry:

I could of put £1000 on either you or martinm coming out with a conspiracy theory for the positive reviews on directchemist. It’s a possibility, no shit, but i used that store a lot previously and i have found that good products usually have good reviews in high numbers and vice versa, which says to me that the company is not filling the ratings. Plus, a lot of people get there prescriptions from them so it’s likely there would be a lot of genuine ratings, therefore even if the company was filling ratings, they would likely be rivaled by ratings by REAL people. They do have a couple of reviews too and they are very positive.

Anyway, enough of that. I am sure the numbers of PFS sufferers are higher than this website would have us believe but i still think SP’s estimate of millions is ludicrous and we are a small minority.

Do inhousepharmacy really deserve such criticism mate? they would have been provided with the same information on finasteride as doctors prescribing it. Internet pharmacies like that, if anything are quite the opposite of ‘money grabbing’ when you consider how much people are expected to pay for medicines through there doctor. If web pharmacies ever got closed down, it would ruin thousands/ millions of lives because for many, it is the only access to affordable medications that allow people to have a decent quality of life.

I am conident that anyone who takes finasterside for a lenghtly amount of time will develop side effects. I have seen many doctors and the one I just saw, who is fairly new to the practice told me he has seen 8 patients who have come to him recently with side effects from using finasterside. That is why he told me he is now sure that finasterside causes side-effects.

Forget about praticing doctors going public challenging MERCK because they are afraind that they will be investigated themselves by the FDA for treating a supposed problem that doesn’t exist with treatments they could not justify for prescribing since most of our basic bloodtest come within the normal range. They could lose their liscence. A very famous doctor, whom we talk about on this website, told me this personally when I drove out to see him. He also told me the only way for doctors to make this public and challenge Merck are the university doctors who conduct the studies. He said they are the ones who can make this public and challenge Merck. The good news is he thinks it will happen because it is becoming known throughout the medical community that Finasterside is damaging people lives and the university doctors, as we know are conducting studies and going public. He also said that all these Hair doctor’s that are prescribing propecia are going to be subject to law suits.

It only makes sense that if you use finasterside for a long period of time you screw up your hormone balance. DHT is prevented from exiting the proper way and then remains in your system causing your natural levels of testosterone to rise. Then your body compensates by either releasing cortisone, a natural defense mechanism, or maybe increasing estradiol output to regulate itself. Its just why when people use steriods for a long period of time they too become messed up. That is why they only cylce for brief periods of time and then come off to let their bodies regulate themselves and them sometimes have to use HCG or Clomid to help them get normal again.

I think that people that experience these side effects are too scared or embarrassed to see a doctor or openly report what has happened to them. I firmly believe it will mess up every one who takes this drug.

Yes I agree. It happened exactly with me. I showed some printouts to my dr and the email from Denmark (Denmark has banned Saw palmetto there. Danish health Ministry clearly mentioned in the email that SP is Endocrine disruptor). My doctor just threw that in the side. He even did not report it to health ministry or his seniors. When doctors are putting things like this under the carpet how would you know what is the actual number is.
Uk20 you are absolutely wrong in assuming that every body who uses or buys fin/du etc jumps on the google right away. I gave the example of just to males whom I know. They never knew what caused their problem.Their doctors are treating their symptoms but they never bothered to find the causes. Thousands of people just carry on with treating their symptoms without knowing the underlying reason.These people simple believe what their doctors tell them,
We are really smart people that we suspected fin and turned to internet.

sorry, but active members r very few
we have about 2000 registered but where r they?
i see barely 30 ppl hang around
by the post count order the ppl from 250 to 300 has posted max 20 times!!!
if i have a persistent side i would have posted minimum 100 times

memberlist.php?sk=d&sd=d&start=300