Stem cells as a therapy

[bryce54]

@joetz

The only real negative I have noticed is there have been a lot of times that I’ve lost my temper or gotten very upset and I’ve mistreated people around me because of that. I don’t understand why this has been happening. I am used to emotional blunting, and maybe I’m not used to feeling things and my mind gets overwhelmed? I’m not sure. I also need to make more progress sexually. I’m better, but not good enough to be content.

maybe testererone boost? did you have any blood tests before on this, maybe it could be worth checking it now that you have noticed something, then maybe again in another few months to see if any other improvement?

anyway, thanks for the update man… let us know if you notice any drastic changes, and looks like the procedure has been worth it for you. not feeling tired and fatigued is a massive improvement that many people don’t realize how bad it can be until you experience it… i had to move back to my parents house and had to quit my job mine got so bad also…

[Mark2012]

Great news joetz I hope you continue to improve.

[joetz]

@scaredoutofmymind

Wow ill say even that much improvement was worth the money, no?

For me, the improvements have been worth the money. This has been one hell of a journey. It’s now been 13 weeks since the therapy. There were times where I was scared as hell and thought I wasted my money and the stem cells weren’t working and I completely freaked out. I was trying to stay positive but at the 1 month mark and six week mark, I had almost half a week of PFS symptoms so bad I thought my life was over. You could see the drop in enthusiasm in my posts throughout september.

Lately I’ve really been enjoying my sleep so much. I have been having very active very vivid dreams, which is something I lost due to finasteride. Sometimes the dreams turn into nightmares and I jump out of bed freaking out, but I’m so thankful to have those dreams, even the bad ones, because it’s another indicator that things are getting back to normal.

All I need now is a little more progress reversing the emotional blunting and libido and I need this blurry vision in my left eye to get better before I can say I’m cured.

[BP7667]

I have been sort of up and down… never really feeling that great but sometimes slightly better than I was before. I had a really rough streak for a week and half and the last three days have felt “ok”. I’m sire I’ll drop again but hopefully it becomes less frequent. I seem to be having better and more frequent erections. … nowhere near what they used to be but better still.

[deluxxxxxx]

@Broken_Pecker

I have been sort of up and down… never really feeling that great but sometimes slightly better than I was before. I had a really rough streak for a week and half and the last three days have felt “ok”. I’m sire I’ll drop again but hopefully it becomes less frequent. I seem to be having better and more frequent erections. … nowhere near what they used to be but better still.

Joertz and BP are heroes in Propeciahelp. Keep it up!

there is a light at the end of the tunnel.

[komas]

This is kind of exciting. Keep us updated gentlemen.

Thanks,

[Kentucky]

It’s been 9 days since I had the adipose derived stem cell operation where they took fat from my love handles and re inserted 388 million stem cells intravenously, intramuscular into my shoulders, through my nose and into my pecker. I have been sharper mentally, where I’m almost 100%… still a little emotionally blunted. I have had a slight increase in Libido and have stronger erections.

[clampdown33]

@Kentucky

It’s been 9 days since I had the adipose derived stem cell operation where they took fat from my love handles and re inserted 388 million stem cells intravenously, intramuscular into my shoulders, through my nose and into my pecker. I have been sharper mentally, where I’m almost 100%… still a little emotionally blunted. I have had a slight increase in Libido and have stronger erections.

Kentucky, thanks for the update. Could you tell everyone why you had the stem cells injected in the places you did? Did the doctors at the facility recommend certain areas for injection based on your symptoms? It seems as if you, joetz, and BP had some variation in where the stem cells were injected, so I’m just curious how that decision was made.

Also, Kentucky, what were your PFS symptoms prior to the treatment?

Joetz, BP, Kentucky, please do keep us updated.

[BP7667]

I do not feel any substantial improvements… I did only have 20 million cells injected thou…

[acne1776]

@broken_pecker true Kentucky had nearly 20x as many stem cells injected as you. don’t know much about stem cells but it seems like that would probably make a difference.

been following this thread closely. looks promising guys. appreciate the updates

[Kentucky]

erections are still better than they have been in a year… way better. still low libido but have better times than others. The Dr. believes its a brain issue, so the stem cells he put in my shoulders were to hopefully goto my brain through my spine somehow. The ones he put in my nose and had me sniff them were also to get in my brain, The penis was if there is damaged tissue that was causu=ing problems, it would repair that. And the intravenous cells were to go where the boddy thinks it needs them. I hope that answers your ?.

[Mark2012]

I read somewhere that clinics that offer the same stem cell therapy for many unrelated diseases should be treated with extreme caution.

Each condition is suppose to have its own tailed stem cell treatment.

I doubt they have a treatment specifically for PFS.

[dgreene]

Awor’s recent post calls on some serious help in funding. Even though I am one of the “big mouths” (or whatever I was referred too) I have to say he’s right. Three people just spend $30,000 on stem cell treatments that may not help in the end. That 30K could have funded 1/3 of the large study that will work towards finding a cure. That is sort of depressing. Ten people here could easily fund a study that would put us A LOT closer to finding what will help. I will be donating any money I have (which is not much) towards the research from now on.

[Luckfax]

@dgreene

Awor’s recent post calls on some serious help in funding. Even though I am one of the “big mouths” (or whatever I was referred too) I have to say he’s right. Three people just spend $30,000 on stem cell treatments that may not help in the end. That 30K could have funded 1/3 of the large study that will work towards finding a cure. That is sort of depressing. Ten people here could easily fund a study that would put us A LOT closer to finding what will help. I will be donating any money I have (which is not much) towards the research from now on.

Right on, man! You’re right, it is depressing and also completely baffling. I reckon the PFS community has probably spent millions over the years on doctors and treatments, supplements and other related costs, so it is not much to ask that people contribute to something designed specifically to help us. From the money wasted on stem cells and Kos alone we could have had six figures easy.

[domino]

@dgreene

Awor’s recent post calls on some serious help in funding. Even though I am one of the “big mouths” (or whatever I was referred too) I have to say he’s right. Three people just spend $30,000 on stem cell treatments that may not help in the end. That 30K could have funded 1/3 of the large study that will work towards finding a cure. That is sort of depressing. Ten people here could easily fund a study that would put us A LOT closer to finding what will help. I will be donating any money I have (which is not much) towards the research from now on.

I understand what you’re saying here dgreene because supporting the Foundation is incredibly important but I’m extremely thankful we have a few guys here financially able and willing to undertake stem cell treatment. I understand it’s in its infancy but there’s a chance it could work. And unlike the other treatments, it hasn’t yet been proven to be unsuccessful for anyone. The only time we will know this is after the 5-6 month marks of their interventions. There’s plenty of reason to have hope that stem cell treatment might help us considerably, especially since joetz has had some notable improvement in a few areas, and research, though our Most Important avenue, is largely unpredictable and does not return results anywhere near as immediately as a quick 5-6 month treatment that can occur right away.

Again, I do agree that funding the foundation, the science/scientists, and the research behind everything is of utmost importance, but if a few of us want to give a promising route a go, I do not think we should be dissuaded from doing so.

[Len]

i agree with domino on this one

overall, we should focus our funds on the foundation and not go after the same old blood tests etc. that have yielded nothing truly useful when all is said and done

the stem cells however are a very, very interesting thing, and the guys who did this were very brave and i am pretty grateful for that, and it could still end up very meaningful in the long run … who knows really?

awor is spot on though in what he wrote today, we need to wise up and focus our efforts into the foundation, because it is BY FAR our best chance

we are moving forward, very nice

[BP7667]

@dgreene

Awor’s recent post calls on some serious help in funding. Even though I am one of the “big mouths” (or whatever I was referred too) I have to say he’s right. Three people just spend $30,000 on stem cell treatments that may not help in the end. That 30K could have funded 1/3 of the large study that will work towards finding a cure. That is sort of depressing. Ten people here could easily fund a study that would put us A LOT closer to finding what will help. I will be donating any money I have (which is not much) towards the research from now on.

I wasn’t gonna say anything but I only spent $4, 500 on it.

[clampdown33]

Hey, joetz. It’s been about a month since your last update and, if I’m not mistaken, four months since the procedure. How are you feeling? Any changes in the last month?

[joetz]

I’m still doing really well but still have a lot more progress to make.
I’ve kept all my gains mentioned throughout the thread. The violent temper flares have subsided and my mood has stabilized over the last month. I have also have had really oily skin the last few weeks and some acne. This morning from 9-10 am I had a very strong erection for about an hour that was spontaneous and no amount of math in my head could get it down. Stuff like that never happened before the therapy. Still have emotional blunting, which kind of sucks but I’ve had some signs of that changing and have had some moments where I felt progress in that area too

[clampdown33]

@joetz

I’m still doing really well but still have a lot more progress to make.
I’ve kept all my gains mentioned throughout the thread. The violent temper flares have subsided and my mood has stabilized over the last month. I have also have had really oily skin the last few weeks and some acne. This morning from 9-10 am I had a very strong erection for about an hour that was spontaneous and no amount of math in my head could get it down. Stuff like that never happened before the therapy. Still have emotional blunting, which kind of sucks but I’ve had some signs of that changing and have had some moments where I felt progress in that area too

Thanks very much for the update, and happy to hear you’re continuing to see improvements. Emotional blunting, libido – are those your primary remaining issues, or are there others as well? Other than the random erection you mentioned, how has your sexual function been?

Wishing you continued improvements, as all of us here are, and definitely hope you’ll give us another update at the five-month mark to let everyone know how you’re feeling.