had us fooled!!!
employed by Merck.
You know what, good luck with your PFS. They say the road to hell is paved with good intentions. I’ve been here for YEARS and all of a sudden I’m a Merck employee?!?!?!
I was trying to help you guys by talking about my experiences, but there are so many difficult people make this a really frustrating place to be sometimes. I think I need a break from this
joetz, calm down man, you are a great member and are very brave for doing what you did … it sounds like some things have gotten better for you, and hopefully they will continue to improve gradually over the next few months … thanks again for the update, i hope you kick the sickness soon, i have noticed when i fall ill it is much more intense and shitty feeling since my PFS began … anyways, thank you man, feel better
Due to his poor English (I think SA mentioned he uses Google translator) I’m usually not sure what deluxxx is talking about it. I do seriously doubt Joetz is a Merck employee if that’s what he means. Thanks for the updates, Joetz.
Joetz,
There are many of us following the story of your treatment. Please stay strong for us. I know it must be hard to hear negative comments when you are just trying to help people.
Tlecum
joetz a merck rep? god this is fucking absurd…get a life deluxx
Stupid posts …saying someones a merck rep is ridiculous. Though I do believe you should give more evidence like blood results etc. Keep track of your progress.
got ya… glad you are in better shape.
what type of diet do you have? the reason i ask is because if you are super strict on diet (paleo esque), you really shouldn’t be getting sick, so then you will know its from some kind of detox that you had.
but then again if your a smoker or you eat a lot of junk food, then it could make more sense…
thanks man.
Since 3a-diol-G and Vit D (i think) are the two main markers of PFS, it’d be interesting to get a before and after of those two. Because if I remember correctly, your other hormones are within range and on the good side.
Do you think low vitamin D prior to finasteride made us a candidate for PFS? because my levels where exactly the same before and after taking it. Low end of the scale.
I don’t know. I don’t know my vitamin D levels before. But I think my vitamin D levels now are middle range or maybe a little below middle range.
I will be getting the same procedure, (intrevenous adipose derived stromal stem cell treatment) done next week, November 7th. I have been in contact with Joetz and his progress has been inspiring enough for me to take the dive. Its a considerable amount of money but even thou I was demoted I do have some cash to spend on something that it appears will drastically improve my condition.
I have had extensive blood work done recently Sept 2012, including vitamin D and 3 Adiol G. Dr. Jacobs currently has me on clomid, vitamin D and klonopin. I will get more bloods done a month or two post procedure to compare with thou and we can see if there is any measurable progress in that department.
Oh man, are you sure about this? Joetz has improved via a lot of ways in the time that I’ve been here, so he is not the most reliable indicator of something being a good treatment option for someone else. That’s not a criticism of him, I just think his condition is perhaps more flexible than your typical PFSer.
Stem cells haven’t been licensed or even done any real trials yet so it is a very expensive and optimistic step into the unknown. And even potentially dangerous.
Are you feeling any different on clomid and klonopin btw?
Different yes. Better no.
This is life and death for me bro. I’ve lost everything because of this shit… I could give the money to the foundation but I don’t think we’ll see tangible results from that for years… all the while my life passes me by.
Diet is standard american diet. I’m trying not to do anything that would introduce variables, like loading up on supplements or diet changes. The only thing different about my eating habits are that I am sometimes so hungry I think I’m going to lose my mind and that never happened before the therapy.
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I’m really excited for you BP, this is going to be great for the community because people are skeptical if one person sees results, but if this works for 2-3 people, I think we might have found our cure.
At this point I am 50% recovered at least a few hours of every day and the times of the day where I am 50% or more are becoming longer and more frequent. I’m willing to do a second treatment in March if I am not 100%, that’s how much I believe in this treatment, I would do it twice and spend the money again.
I am hopeful about it. I’m looking for specific markers to determine my progress… besides the obvious sexual and mental ones… if acne started breaking out on my neck again like before fin that would be major for me.
Far out, be careful of that shit. Why did Jacobs give it to you?
Joetz, have you considered trying neural stem cells? I say this because we have a clear problem with neurosteroids. I don’t know if you guys are aware of this:
ucsf.edu/news/2012/10/12939/ … tudy-shows
I don’t think intravenous adipose derived stem cells will fully repair neural damage. There is a reason why they use specifically neural stem cells and transplant them into the brain or cerebral spinal fluid. Thing is though is that you would somehow have to get enrolled in a clinical trial. That requires a diagnosis of neural damage and a team willing to accept you into their clinical trial. Nevertheless, that study shows the safety of neural stem cells which is bound to speed up the experimental treatments in other areas. What would be an interesting study is if researchers could replicate a mouse model of PFS, and then give them neural stem cells and see what happens. Actually the mouse model would be great for all experimental treatments (DHT, HDAC inhibitors, whatever).
Tim,
I had extreme anxiety when i got off first 6 months or so klonopin didn’t do anything. Now it definitely helps… its actually pretty mild stuff compared to the trash the doctor who cost me my job put me on. He had me on heavy duty psych drugs that actually made me worse in many ways.