A message for those who have not yet made an account or have not yet completed the survey: We need all the help. I also test things. I also try to find some improvement. Trying to fight for yourself is important. Trying to find a cure is important. But more important than that is to know what is actually happening, to act in the right direction. Everything is guesswork. We know the symptoms, but we don’t know the cause.
What I have seen are longtime members returning to the forum without being healed. In addition, the oldest forum discussions were more scientific than the current ones, and even then the cause of all this has not been found.
There are members of this forum who know this condition more than Most doctors, but that is not enough. They know that. This whole knowledge can only be applied when we know what is actually happening. We need real science.
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