Just my general experience with saw p and pumpkin seeds. I though natural would be fine, but that mistake caused me a great deal of suffering.
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Soy experiments have gone like this in the past:
Person1:
“I feel better with soy!”
Person2:
“Soy can cause you problems, it has led to people worsening their condition in the past”
Person1:
“How can it be a problem, I feel so much better.”
Some time passes.
Person1:
“I have crashed and now my symptoms are worse”
Sorry it’s happened to you, but this isn’t unheard of and experimenting to go the other way could well end up with the same result. Caution may well be the best policy
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How much soy are we talking about here?
I eat tofu every now and then. Appears to have no effect on my symptoms.
Pass. Caution could be the best policy.
I think every food impacts hormones in some way. I’m assuming moderation is key. Just don’t go overboard?
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In 2018 I are an entire plate of tofu and 4-5 hrs later started rubbing one off when I was driving and also woke up with morning wood. When I read that it’s risky to eat that stuff I never tried the experiment again however.
In general, my opinion is that trying to eat your way out of this isn’t going to be very successful. We have endless examples of people who have tried to do just that with limited to zero success. It’s my opinion that those who claim diet has dramatically improved their fortunes without any further drawbacks were doing things that either had no effect or it had a mild effect, but they recovered naturally. Recently, I read someone say that vitamin C and enjoying being in the sun was part of their plan to get better. This categorically is not the cure for pfs. If that guy comes back and says he’s all better, you can assume that some will then megadose vitamin c and vitamin D. In the past, one guy who megadosed vitamin D dramatically worsened his condition and I presume is now dead.
We know that some people have had terrible results with Soy. We don’t know if there is a safe amount and if so, where the safe limit is, or if it varies from person to person.
As such, I don’t think I can say moderation is key. It’s a substance which could be very damaging to us.
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Without trying to do nothing i will stay at the same spot that ive been for the last 18 months, severe P.E that i just cant afford to happen, E.D that can only be temporary resolved by dangerous pills, and of course the top of the crown, penile shrinkage, i got to expriement because other way the syndrom will take away my best years, i believe that every case is different, and i will not sit and wait until “time will cure me” just a reminder, some people suffering for decates.
I can say that for me, the strong reaction to soy is positive for my mind set, because everything that impact my symptoms has some logic behind it, we tend to forget it.
With enough knowledge i will be able to manage my personal case. Hormonal imbalance is personal.
I wish i could be optimistic enough about the cure, but i truly not believe that in the next 5 years we will see one…
So nothing left than trying cure myself.
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Well, you got the advice you asked for.
sorry for being a little bit aggressive, but I was trying to justify worsening in my symptoms and you got in my way.
but seriously im pretty curious, you are not a fresh new sufferer of pfs, you even older than i am, how can you just sit without doing nothing? except from the bigger cause of funding and raise awareness, there is also finding ways to manage the syndrom, if no suppliments and no special diets, what else do we got?
@Greek
Man you sure you have these effects from a bit of soy??? Because in my opinion this is placebo effect. I have eaten a lot of soy with no difference. If I would give you soy without you knowing it you probably would feel no difference
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soy flour is very concetrated, if you will eat one tablespone of it you might see effect.
I must admit I still use some things that others in the forum would probably avoid - like pumpkin seed oil , I drink a green tea daily for the health benefits and have occasional soy products too.
I agree caution is the best policy but at the same time I think taking these things in moderation is ok depending on the person and how their bodies react.
There was a list of foods to avoid written on this board, and they literally listed almost every food. It was ridiculous and sounded like a troll post.
Personally, I haven’t noticed much difference when it comes to different types of food. I think the problem comes when people take certain things far above the RDA.
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I agree totally about the RDA - I think you’re spot on with that !
Yeah I think I saw that list …to be honest if you were following that list you would not be very healthy at all lol
Link please?
Just tried searching for it again but I can’t find it now . It cropped up on the main page thread about a month ago so I saw it again . When I locate it I’ll tag you in there
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Here ya go
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That’s the one !
Thanks @Sawproblemo,
I really only wanted to see it because I wanted to know what a list of “almost every food” looked like and it’s quite a long way from that.
I’m not vouching for the accuracy of the list, or saying that people should or shouldn’t eat those things but you could avoid those foods if you were paying attention without suffering major distress.
What’s interesting, I think, is that the psychology is that avoiding those things to see if it helps is too much trouble but a substance that we know has harmed people significantly, is worth a try. That might be an insight into the levels of understanding of how bad this condition can be.
People with some sexual problems that can be fixed with viagra are pretty much the lucky ones here. Incredible to think that, I know, because if you’re one of those people, you feel like your life has been ruined. But remember, people here who have killed themselves haven’t done so because they couldn’t get an erection without a pill, it is because their entire lives have actually been ruined. They’ve seen their bodies physically break down, their ability to sleep removed, their ability to think clearly be taken away, amongst many other things.
That is what you’re risking by trying substances with a cavalier attitude. Any of the severe cases would swap places with you.
Personally, I’d say that if you’re going to try something, give avoiding some things a try for a while instead of adding things which have caused people to get worse.
I dont think avoiding things is a cure, but I will say that in 2 years I’ve gone from practically no sleep, complete impotence, shrinkage, bouts of severe depression, fatigue, dry skin, painful prostate and genitals, panic attacks, a racing heartbeat, difficulty concentrating and no libido, to essentially being able to live a comparatively normal (but still impaired) life and the only thing I did was avoid foods that hair loss websites said I should eat to help keep my hair. I think there’s something in avoiding foods, but I also think it’s a long road that, reading this forum, most don’t have the patience for. I also don’t think it’ll work for everyone, maybe even most people.
I don’t write about this much because people get angry about it, but I think you’re wasting your time and risking your health with these supplements and diets. I have read almost the entire forum and don’t think you can add something to your diet to fix this. My first post in this topic outlines a story that we’ve seen play out over and over. Much like people taking propecia - people think it won’t happen to them.
Best of luck with whatever you decide to do.
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