The only symptom I do not share with you guys is the shrunken penis… However I am sure that my testicles have decreased in size, as well as the scrotum is also like 1/3 of what it used to be. It’s always tight and high…
It’s interesting because docs always said my prostate was normal and even came back in volume at 10.76 cm cubed or w.e… I remember somebody telling me that that is below normal. Now on my less check it says my prostate is enlarged so I don’t know wtf to think anymore…
He says he has this condition from three years…
I also had severe restless leg syndrome. It lasted 1 year but it completely resolved itself. I also claimed to my doctors that I had some discharge come out of my nipples at work. I was swearing alot and it was a stressful day at work…
Only happened 2-3 times never again. Can it be a dopamine problem? Dopamine-restless leg syndrome-erectile dysfunction are all linked together.
Something made me lose that weight rapidly. I never had the focus or drive to get that ripped/lean. I was never overweight, in fact I was already around 12% body fat and in amazing shape…I don’t know if it was a loss of appetite? At 5’9 getting below 160 lbs was like impossible to me before. Somehow I dropped down to like 138 lbs when all these symptoms came. I mentioned before I am going to see a hematologist, as alot of my blood test results are out of range like GGT, ALT, BILLIRUBIN, URIC ACID, SHBG, DHEA-s, CREATININ, CHOLESTEROL, DHT, E2
Also I don’t think I will be on this site much longer. It makes me miserable, and there’s a lot of bad energy on here…
Not alot of people on here BELIEVE in a recovery.
Just as doctors dont BELIEVE in your/our symptoms.
Ohh ok well That deff explains why he was telling you to try Saw P. He thought you had symptoms of enlarged prostate
Why are you excluding the antifungal?
Same thing with me I had docs touching the prostate telling me it felt larger than the norm even after having PFS.
I took researching this to the extreme and had the most high tech MRI of the prostate in a research hospital in Washington, DC. It came back normal size
My end conclusion:
Go by what the MRI, cat scan, ultrasound says
The docs are looking for answers and already have a bias before feeling the prostate gland. It’s hard for them to judge size of a gland with their thumb that they are only feeling one side of
Yes he made that clear after my post about my opinion on his recovery which obviously changes my opinion
But let’s still not forget it sounds like more recently he started having hormones checked and serious about trying to treat it sounds like . So there is still hope he does not have PFS. He may still be a simple case and responder to basic things
I also feel that the main issue is genital numbness. It is my main complaint. If I had sensitivity like before surely I would have decent libido. Dr. Crisler said low dht can cause genital numbness. So I guess I should at least try that before claiming I have some kind of PFS or something…Anyways I will be looking around on other sites, to try to find some kind of cures. Good luck to you all, and may god be with you all through these difficult times.
If you decide to stick around ignore the bad energy. Most use the site to simply complain. Some use it as a source of information for the best over all chance at recovery.
If it makes you miserable best thing to do is take a break come back ignore the haters
I need to add one more thing. So I was on the diet from June 2016-December 2017. However around Jan/Feb 2018 I decided to eat like an animal , and gain a bunch of weight back, eating eggs, milk ,meat, bread , etc… I gained weight back but I got fat in places like never before. I got a moon face, buffalo hump, and love handles and back of back fat as well as chest. My fat depositions has since improved alot but it was really strange…
Im a simple man, I always used to be freaked out by people claiming all kinds of invisible illnesses, like depression, bi polar. I feel I have low testosterone but my testosterone is normal/high. Testosterone has 2 metabolites. DHT and e2. So it is possible that many low t symptoms are actually low dht/ low e2 symptoms.
You too man. If you decide to post here again please let us know how increasing the DHT goes
He crashed 5HT with Creatine in my opinion. I see no other explanation.
Stimulation of 5-HT receptors reduces androgen receptor expression.
I exclude antifungal because it is topical, it is absorbed locally at 4% in the blood.
I think he put it on his legs. For me it is absurd that this is the cause.
Different speech for diet, he may have acted together with creatine.
In the end, however, the real dilemma is:
How can it cure this condition? I don’t know, I’m in the same boat.
I strongly advise against using any hormone to supplement them.
Some substances do block both yes
You should hear my endocrinologist why don’t you contact him? It could give you Clomid and DHT in gel and see how it goes. But I wouldn’t trust any doctor or treatment because we don’t know more about our condition. It’s dangerous.
could you send me his contact information?
Yes in PM
Good advice
Nothing is sure to be safe for us. If you do decide to try something and Looking at it from a “did it make me worse point of view” DHT has proven to be one of the safer options. Several do not get help from it but in my experience over the last nine years I do not see people getting worse from it. When I say worse I’m talking about worsening of symptoms that last after you stop taking it.
The AI is risky. Here is my opinion on AI’s and inhibiting estrogen with PFS. More people with PFS will not get worse from taking an AI than those who do. HOWEVER those PFS guys that do get worse from taking an AI get MUCH worse. For this reason combined with the fact that reducing estrogen alone has not cured anyone DO NOT TAKE AN AI.
I was on Clomid after my First PFS crash from Saw P before I even knew that I had PFS. My endo could not figure out what was wrong with me and why my hormones randomly went low. The clomid made My total and free testosterone levels go up over the labs reference range. No improvement in my symptoms
The endo said we’ll wait a second your estrogen levels with that rise of testosterone from the clomid also went over the labs reference range. So maybe you are not getting improvements because your estrogen is too high. He put me in armidex and within 6 days my shrinkage got twice as bad.
So In some PFS cases inhibiting estrogen is dangerous. There is something to this… and if we can figure out the mechanism behind why some PFS guys get worse from inhibiting estrogen and some don’t we can find markers that may pre determine who should not be taking what. This is my goal to try to help do this. It’s how I want to focus my contributions and efforts moving forward.
Here is an example of a theory and what I’m proposing:
I have low 3b-adiol from a 2014 lab test.
3b-Adiol binds to the estrogen receptor and activates it.
I get worse from inhibiting the actual production of estrogen.
Is there a connection? Possibly ? If we could establish a connection like this we would know that if you are a PFS guy with low 3b-adiol you do not want to inhibit estrogen.
This is where I’m Going with this. Patterns we need to find.
disclaimer:
This is theory not fact
Clomid in reality raises estrogen…
It can.
Clomid blocks the hormone estrogen from interacting with the pituitary gland. When estrogen interacts with the pituitary gland, less luteinizing hormone (LH) and follicle-stimulating hormone (FSH) are produced.
This leads to a decrease in testosterone and therefore decreased sperm production. Because Clomid blocks estrogen’s interaction with the pituitary gland, there’s an increase in LH, FSH, and testosterone in the body.
With the increase in testosterone comes the increase in estrogen
When My testosterone went over the labs reference range while on clomid so did my estrogen. We inhibited my actually Testosterone to estrogen conversion and got my estrogen right in the middle of the labs reference range while my total and free T were still above the labs reference range. I got worse . It shows I needed that extra estrogen with that extra testosterone. This is why we are all different and different cases are a factor
disclaimer:
this is theory not fact
I really doubt all that post, PFS is PFS, caused by finasteride, or similars.