If arguing with a teenager with the same affliction as you via the internet wasn’t enough, you are now lying. Martin, get a grip.
Maybe attacked is the wrong word. I’d like to go back and find examples but strangely enough they’ve all been deleted. To be safe maybe it is better to say you challenged the moderators regarding their opinion on legitimacy of this thread and not to ban you. Fair enough?
Regardless of your opinion of me I don’t wish PFS, including further manifestations or exacerbations, on anyone including you.
Another example of editing/deleting posts.
You changed from “I only attacked you and cannot prove it because the posts are gone” to “you are like a lying teenager on the internet”.
I’m officially done and won’t be visiting this thread again.
If anyone else has questions about logic behind why taking finasteride is not going to solve your side effects that finasteride caused PM me or just search this site, there are plenty.
No that’s not fair enough, that’s a complete lie. I just said i would prefer it if Mew did not delete my posts or ban me - that is a far cry from what you are claiming. You didn’t need to come in here and do any of this, i warned people a number of times that taking finasteride again was a big risk that had the potential to backfire massively. I also did not hide the fact that at the time, it was an act of desperation due to my worsening symptoms and therefore mental stability, so i don’t know why you are taking pride in bringing up my depression and suicidal thoughts?
I was simply reporting the improvements that occurred when i took it. Are you not going to go back and sabotage Denarion’s members story? after all, he has cured his erectile dysfunction that plagued him for 5 years with the use of finasteride, yes, the substance that caused it in the first place.
I deleted all my posts because it was mainly pointless arguments. I am not going to repeat the story. If my condition improves or worsens significantly i will report it here in the future.
You are lying again, this time out of complete spite.
I didn’t intend to use the word destruction literally. If there is something like permanent nerve damage, for looks like the case for me personally at least, I sadly must say there is no point in hoping for a recovery or reversal. At this point, it does not seem too healthy to continue with false hope constantly checking on PH.
My hope is there is no direct ‘damage’ but rather some persistent endocrine disequilibrium that I cannot further elaborate upon due to lack of knowledge. Nobody yet knows if permanent damage has been inflicted. If permanent damage has in fact been inflicted, we should probably all disband but I have not yet seen conclusive evidence this is the case and as a consequence the analogy may or may not hold.
EDIT: The last sentence is one that I meant to say should be the case only if we find conclusive evidence that the condition is permanent. At this point, it is not certain that the condition (for all of us) is one that is definitively irreversible.
Anyway guys, here are the facts:
The user ‘Denarion’ was suffering post finasteride erectile dysfunction for 5 years. He re took finasteride on the advice of his doctor and his erection problems have resolved.
See his thread: viewtopic.php?f=3&t=5296
I myself restarted generic finasteride on the 16th August. My symptoms improved profoundly up until 26th August. I previously described it as a 65% sexual improvement and a 110% mental improvement. Penile sensitivity, erectile function, libido all improved and my mood and cognitive abilities were very good.
I would not recommend taking finasteride again because the results have not lasted. As MartinM has kindly pointed out to us all many times now, putting finastride into an already broken body obviously presents a risk. If i come back in 2-4 weeks having had a severe crash, i owe him an apology and a lot of credit for being persistent.
Nerve damage only explains the sexual sides not muscle loss and other testosterone driven effects.
The bold bit is very defeatist, almost laughably so. Even if this is proved and there is no reliable treatment on the horizon, the forums highlights how experimenting with various substances can alleviate symptoms in the meantime. Plus, the compnay needs to held to account for what it has done and the medical world at large needs to recognise this as a legitimate condition and try to solve it. I could go on. None of that will happen if we all just slope off in silent acceptance.
Frustrated - I hope you were just having a bad day. I have mine too, we all understand those feelings. I think its a bit premature to speculate that there has been “permenant” nerve damage. Consider the few who have come back after several years recovered. I’m not saying nerve damage hasnt occured or we shouldn’t check for it (actually, I have no idea how we’d do that) but lets wait a bit until the researchers have had some time to investigate more promising leads before we start on that route. Just my humble opinion but I think we have much more reason to be hopeful with the current research than we do to be pessimistic about any permenant nerve damage at this point.
By definition, if there is nerve damage then there are currently no treatments available. I don’t really see this as defeatist, but I would see it as acceptance of reality. Unfortunately, this mentality I have developed is something that has been growing over time and is not the result of a bad day. I will not hijack this thread and will discuss and provide an update in my own personal thread.
Regarding the attempt to retake Propecia, I mentioned it again to the some medical professional and this time he felt that the risks were significant and this wouldn’t be a good idea. UK20, it is definitely your choice and I would like to hear your updates out of curiosity but you risk developing some of the neurocognitive effects if you don’t have them already.
I still think it would provide useful information to know what would happen if somebody with PFS were to restart Propecia use, but I can’t in good conscience encourage you to do so given you will be the one assuming the risks.
I am weening it off it slowly over the coming two weeks - i have gone off the idea of trying it again. The improvements i made initially were probably just due to a boost of T. Who is the practitioner you asked?
OK - I am kind of posting this as a general question and I quite sure it will be met with vicious attacks from many members.
I am coming up on two years off the drug this December. Never while on the drug did I have nearly the issues and huge fluctuations that I have had since being off. Since I quit I have had terrible testicle pains, severe shrikage, testicular atrophy, bad ED as well as being up and down emotionally. Couple of periods of suicidal thoughts. Right now I going through terrible scalp burning and itching and sever hairloss but still have all the sexual sides.
If I could turn back time I would have stayed on the drug as the sides then were nothing compared to the crash and subsequent state I am in. Now I am turing into a bald eunich. My body cannot seem to settle into a hormonal cycle that is stable or good and I fear it never will. Semms like everyone who has tried hormonal treatments have really never improved.
Why not go back on - maybe at a very, very low dose to stabilize some of these fluctuations. Not sure it can get any worse?
OK - let the attacks begin…
It’s been tried a few times, and I can only think of one time that it was “successful” and that was reported by a new member who I am extremely skeptical of even having PFS… In other words, I dont think it’s the answer…
You must have missed my thread. I deleted all my posts because it simply became an argument between myself and MartinM, i would not be surprised if he came into this thread and repeated his actions.
There is also the user ‘Denarion’ who suffered from post finasteride erectile dysfunction for 5 years. He restarted finasteride and his erections have improved.
Similar to you, after 16 months of suffering, with things getting worse and worse i did exactly what you are proposing. The result was a drastic improvement in all of my symptoms for a 10 day period but then things dropped off again. I am on a very small dosage of finasteride as we speak as i am weening off it slowly. I honestly thought that i was going to get better, i felt incredible. I am still feeling some benefits - my sleep has improved and my libido is a little better than before i re took the finasteride, but otherwise i am back in ‘PFS’ mode. I would like someone else to try it to see whether they react like me, but it’s totally up to you. My sides were so bad, i felt i had nothing to lose so the risk wasn’t a big deal.
I think I am all out of whack right now - my scalp is literally burning. This is not normal even for someone losing their hair. When I first found this site I had some hope but after two years I realize there are almost no recoveries - just people who seem to manage with their new state or iother who bounce around from one treatment to the next with little to no improvement.
woah - someone took my thread and appended it to another…
post - never said anything about tapering
This may be in the wrong thread
Its the right one… simmer down now…