I think they are pretty close. I have PSSD and have all the same symptoms of PFS right down to the penile shrinkage and dry, thinning skin. I think there is a divide in symptoms and their severity in most cases but I think the worst of PSSD/PFS/PAS looks the same. A treatment that greatly helped one would almost surely help the others.
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Sorry for the personal question here, but do you also have a tight scrotum or smaller balls? Does anyone with PSSD have this? To me, this is a physical sign of the disease. To me, I will feel cured when my balls hang low like normal and I have a normal libido and energy.
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I’ve gone all over the spectrum on that one, so not sure how much that one helps. I’ve gone from super low hanging to high and tight, lol. Ok that was a lot of info… but the point being, nothing sensitivity wise really changed regardless of “that” situation
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I see. Well, as long as we keep grinding, experimenting, and communicating, we’ll make progress in our disease states. Research will help add to our cause too, boys. Let’s keep our heads up and keep on reading and (safely) trying new things.
My balls have remained seemingly normal for the most part but there are those on PSSD forum who have testicular shrinkage.
So anyone tried this yet ?
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Many people on the PSSD forum tried it. Only one had succes (Zolofthater420) but he also took shrooms and MDMA in that period so we don’t really know what caused him his improvements. He is like 90% cured
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I never actually tried it, but it still seems promising. Not too many side effects either. It targets the bladder it seems, but it work towards awakening something down there.
Anyone now its mechanism of function? How does this stuff actually do its job, might give us some insight in how it affects ED.
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Doubt it would work for most of us I have severe shrinkage/numbness, I think it worked for the people who tried it because they might have been minor compared to those with severe cases.
It also states the person did not have loss of libido which I know most of us do.
The original claimant of recovery from Bethanechol on the PSSD forum later admitted to fabricating a fraudulent story to see if others would serve as a guinea pig for the drug since he didn’t have access to it in his country.
Then the second person to claim significant improvements from it went silent after the first one came out as a liar.
I think saying it worked for anyone is wishful thinking.
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So messed up how one can make a story up like this to potentially have someone else suffer even more!
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The second person is real. I have his phone number. But he didn’t like to visit the forum anymore. Also note that he isn’t 100% cured and only had pssd for like 5 months in that time. I believe him
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It’s more likely he recovered naturally in the case that he was only 5 months into this condition. Only say that because I didn’t notice anyone else mention benefits out of several who said they took it. I have also spoken with a few Accutane patients over the years who attributed their recoveries to things that worked for no one else.
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What is that about? Why wouldn’t he share the positive news?
He has already talked about his improvements. I think he wanted to relax after a while and not think about this hell anymore. I don’t blame him. If I were to recover, I would immediately tell it, but then I would leave, I would go back to enjoying life and try not to think about this horrible period anymore.
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Hello everybody,
I am new to the forum
I was on Sertraline (Zoloft) for 5 days before finding out about the persistent side effects
I stopped taking it and have regained my libido, but not the sensitivity.
the reason why I am thinking of this medicine (bethanechol) as a potential cure if the problem does not get resolved is becuase I’ve noticed that urinay incontinence has also been troubling me at some point.
I haven’t taken the medicine for too long, which makes me hesitant to try any other drug before waiting. I am a pharmacy student who was deeply traumatized by this whole experience. I am haunted by how delusional and unsupportive doctors and pharmacists can be. Therefore, I have made a sincere vow to spread awareness about this condition and be involved in research as much as I can.
please keep this thread alive! has anyone tried bethanechol for treatment yet?
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I think everyone wants to believe there is some pill out there that they could pop to undo all the damage for an earlier pill they popped. However, after over ten years of doing that with zero positive outcomes the community eventually runs out of pills to try. If there was a miracle pill then someone would have found it by now.
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That guy who claimed that got cured from using bethanechol was lying. He also had 2 accounts on pssdforum, as someone suspected here. It was a scam.
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So, the second recovery was the same guy telling fibs under a different account, meaning there were 0 legitimate recoveries out of 2 supposed recoveries from bethanechol?
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That’s correct. He later acknowledged that he lied. He saw some potential in bethanechol and lied to encourage other people to try it first and see if it works without taking the risk himself.
We need to be careful with ppl who claim that they recover after using experimental treatments.
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