I am talking about ‘Boston’. All he said was “not quite! still working on it.”. Apologies if i was a little off with what i said previously.
Never seen this place before but take note Kaploun appears to be a nurse.
Is it recommended that you avoid alcohol altogether with prostatitis? has Georgiadis said anything more than to avoid it, i.e. you can enjoy it occasionally?
From what i have read, beer is probably the worst because of the yeast and hops. I am going to try and cut alcohol as much as possible and when i do drink, make it vodka and tonic water. I haven’t touched even a drop in alcohol in months and i believe it may be contributing to some recent improvements.
Boston recently PM’d me and told me he still has ED issues and is still seeking treatment from various docs, so his issues have not resolved.
I didn’t say his issues had resolved.
I think we need to wait and see some traditional PFS sufferers recover, or at very least, markedly improve, before we can make any conclusions here.
I mean, solonjk, with all due respect you are a more uncommon example of the usual PFS sufferer. That’s an understatement, in fact.
I’m definately not sold on the idea that hormone manipulation “makes things worse”. It may or it may not depending on a myraid of factors: so to make the blanket statement that manipulating, for instance, your thryoid levels, is going to further aggravate an inflammed prostrate, i think is unfounded and frankly, unhelpful.
The thing about all of this is it doesn’t really explain why some people get their worst sides ever after say 1 week of finasteride and then cessation (and slowly improve in most areas thereafter), nor does it explain healthy recoveries. It further doesn’t explain why some people, traditional finasteride users (not PFS sufferers per se) suffer these sides temporarily. I mean - are you trying to tell me they developed prostratitus on finasteride and then it goes away forever? You see - unlike most guys on here i still continually liaise with guys on hairloss forums who have taken and also - are taking - finasteride. Countless people get the exact same sides as myself, and a good deal of these guys either cease the drug and improve, or find that their sides improve even without cessation (i know, i know). Did everyone in the MERCK study who did report side effects have some sort of prostatitus or is this theory attached only to PFS patients?
Ultimately, tt’s difficult to reconcile this; particularly the crash and recoveries from other methods (which, at the time of writing emphatically trumps this theory by way of number of people “recovering” or have ever “recovered” in comparison).
I guess time will tell. I definately believe there is merit in all of this. I do worry Dr G is overstating it, or perhaps we are. It’s surely a part of the puzzle for some, and very potentially myself because i had NSU before and i have a fear there is a lingering infection which i can’t trace despite my urologist tellling me im as healthy as a horse. I’m going to take a three week spell of bactim so see how that goes.
If you want my best guess, which i happen to believe will be proven right eventually, is that “PFS is a prostate centric autoimmune/inflammatory condition that can and will wreck havoc with the adrenals, thyroids and other key sex hormones as well as critical neurosteroids and neurotranmitters”. I do think that the Central Nervous System is also a key element here. I’d go as far to say that, most recoveries are by chance, in that they did just enough to aid their body into fixing itself (a successful reset in the problem areas). I think PFS is difficult to cure because so many things go wrong which stresses the body in so many unnatural ways. Many of us have fluctuations, i think this is a vital clue.
As regards the traditional argument that we have simple chronic prostatitus; i don’t believe that. That doesn’t tell us that Dr G’s treatment can’t help repair us, but i definately believe there should be a very strong distinction made between our “acquired” prostrate issues and the normal chronic bout of prostatitus. Why do you think most urolgists get impatient with us? Because we come into their offices, we tell them we have prostatitus but yet, in most cases (certainly mine) have no pelvic pain, no urinary trouble and no other of the classic signs of prostatitus that all their other patients will have. Further, we also have “normal feeling” prostrates and in my case a swab for bacteria from my prostrate, also came back negative. It’s a tough one. That said, solonjk is completely correct to say urology is in the dark ages. As ive already admitted: it most certainly is.
Good post Mens Rea
Additionally, my urologist seems very frustrated with the guys who come to see him about pfs and act like they know more than he does about his own field. Modern medicine does not have all the answers but it is not helpful to the entire community when we show disrespect to doctors who initially offer us respect.
These the same doctors that say 300 testosterone is normal? Their are more reasons to question there judgment then not too…
Slight digression but, your uro has seen a few guys with pfs? And he isn’t one of the pfs docs I take it?
You are not an expert in endocrinology. These doctors have seen plenty of men with these hormone levels that do not have our problems. It is obviously fine to inquire about some questions you have but it reflects poorly on yourself and the rest of us when you disrespect fully challenge them. As you seem to be a believer of the prostatitis theory I dont understand why you are focusing on hormone issues.
Who said I’m focusing on hormonal issues??? What about those with healthy hormones and still having issues… Docs and endo’s say theres nothing wrong with us, so I guess you agree then?
I have not been told there is nothing wrong with me. The unfortunate response I often get is that the dont know what the problem is and are not sure what they can do to help. Embarking on haphazard treatments is not a good idea, at least in my opinion.
I have seen over 10 doctors and spent over $5,000 on consultations, tests, meds, etc. I have even seen the Dr. who everyone seems to think is the #1 in the world when it comes to anti-aging, endocrine, etc issues. All of this got me no where.
It wasn’t until I decided to do research on my own and then go tell my Dr what to test for and how to treat it…that is when I started to make huge improvements.
And do you know what the funny part is? The very first month I crashed (6 years ago)…I went to my first Dr telling him what I thought a huge part of the issue was (adrenals) and he laughed at me. Because of that I didn’t even think about adrenals for 5 more years. Now guess what, I treated the adrenals and mentally and physically feel 99% better.
You can continue to trust your doctor and just sit in the back seat if you want, but I am happy that got over that long ago…
hi moonman, i don’t see your member story. It would be interesting to see what you have done to get to 99% recovered both mentally and physically… why are you still here out of interest?
so how are you now? how much recovered in %age.
James & spstriken:
Check out my member story
viewtopic.php?f=3&t=5286&p=40341#p40341
I am still here because I still have the sexual and prostate issues.
Man are you just writing for the heck of writing or just feeling there is a need to add your thoughts for someone like me to chew upon?
After i have posted 150 times in this section we seem to chew the same stuff over and over again and i feel the need again to start explaining.
a) hormone’s wont solve your issues and i can bet you A N Y T H I N G in the world, because i ve tried them, doctors have tried them, patients have tried them and none doctor i 've seen reckons its a hormonal issue, let alone very little.
Use all the cortisol in the world you want along with armour/erfa thyroid and testosterone and come back and report. I did it. It didn’t help, ONLY made me worse. W O R S E. How many times do i have to repeat it.
b)Again and again and again and again. A negative bacterial culture is not a sign of clear prostate. I had 5-6 negatives and 5 positives and another undetermined (one culture). So i paid up hundreds of euros in the best lab around here to find twice the same result. Staph aureus + chlamydia. Prostatitis is an inflammation caused by bacteria, whether or not cured by anti-biotics all the time that doesn’t mean anything more or less than the fact that it doesn’t just appear from nowhere. There is bacteria in there and slowly they cause more and more inflammation to develop. You DONT NEED TO HAVE ANY SYMPTOMS to have prostatitis, like i never had appart from the first weeks post-fin (watery ejaculate or and testicular pain/loss of erection). When this dropped erections improved too so did sense of well being. Prostatitis comes and goes. Noone has it steadily at same level. It improves and gets worse based on various stressors.
c) using hormones can ignite prostatitis. Ask the majority of bodybuilders. They know it first hand
d) finasteride aggrevates the prostate badly because it shrinks it and affects immunity and structural proteins of all the genital tissue. SO it is THE PROSTATE, THE TESTICLES, THE SEMINAL VESICLES, THE BULBOURETHRAL GLANDS that get HIT BY finasteride. Your brain and your hormones are very far up the chain. These organs get a massive beating
e) noone said PFS is only prostatitis. If it was i would’nt have shrunken testicles.
Its a mixture of low dht, fucked up immunity, inflammation.
Again, hormones don’t do the trick
Anti-inflammatories, anti-biotics help
Prostatitis is bacterial/protozoal
I don’t say PFS is prostatitis (you said that or understood that)
just came in here today to say that my erections are massive and very strong every day almost
never seen that for years
take care
300 testosterone is not bad
you can still fuck lift massive weights and do work all day long
my father has 220 and he works 12 hours a day lifts weights and has all the stress in the world as a politician and still feels perfect.
its a receptor game mostly rather than a number’s game
plus testosterone fluctuates deeply
during having boots of prostatitis ===>340mg/dl
weeks afterwards ===>480
other patient 450mg/dl during prostatitis
lately seen his test around 800mg/dl
no improvement in energy or physical strength
he is actually a wimp physically but his testo is twice as mine
so why bother?
*to correct my previous post, using Cortisol,thyroid/testo might mask some symptoms but it will not cure you. Cortisol is an anti-inflammatory but it is not the way to treat “adrenal fatigue” by using sub-optimal dosing. There’s other active ways to treat, like decreasing noradrenaline, holding inflammatory cytokines,interleukins,TNF down and basically by avoiding stressors.
You can also heal adrenals by even stimulating them to override the Noradrenaline-locus coereleus system. It will take some time 3-6 months and you might reach complete agony and madness from the intensity of symptoms, because you are doing the exact opposite of substituting hormones- your are pressuring your body to produce cortisol despite it being exhausted, but you will eventually heal them because the adrenals are forced to overcome the LC-NA signal to keep you alive.
Animals cannot do that, they die. But humans can, because of their simple ability to rest when they want. So stressing the adrenals with a big stressor when they are shot and resting for a good period of time is the best way to recover.
Using cortisol you will never recover just substitute, because maybe your enzymes and intermediary hormones get a chance to redistribute and reproduce, but pituitary atrophies and even dropping cortisol doses weekly doesn’t ensure you will recover your axis properly.
So before playing with that, try other means like controlling noradrenaline with anti-inflammatories/antistressors or if you are too eager, boost it even more into an overdrive so that your own body is forced to control it by overproducing cortisol and regrowing the adrenal glands
So many beatiful means of recovering your HPA, yet very few ppl know them
solo do you plan to have your 3a-diol-g retested post treatment?
Hey Solon, good to hear about your erections… from a recovery point of view that is.
Think this prostatitis protocol would do anything? (just the list from quercetin to flax oil).