Propecia triggered my autoimmune disease

To make a long story short. Propecia somehow triggered my autoimmune disease. After 5 years of taking the drug my nervous and cardiovascular system is going through permanent inflammation. I started using Propecia just around 2003 and stopped at 2008. Since then my whole body is stuck in pain and lack of natural sensitivity. Inflammation makes me feel like a Zombie most of the time. I feel separated from my body, as if I was a passive observer of the reality, feeling the swollen and inflammed brain and body parts.
What I am absolutely sure of, I would never collapse with my health condition to this degree, even If I used heroine, or any other stuff, you could get from the street drug dealer.
Pharmaceutical companies nowadays are far worse then the these drug dealers, as drugs like cocaine or even heroine sounds rather angelic when you compare it to the hairloss drug: Propecia.

This is something that amazes me, something I can barelly understand, how it is even possible. What I also noticed is the fact, that the initial costumers of Propecia became the testing rabbits for this drug. Eventhough finasteride was used for the prostate issues much earlier before, it was never really tested for the purpose of evaluating such a long repeated usage, as it is proposed to the hairloss sufferers.

Hi, have you been diagnosed with a condition?

Have you been told this by a doctor or via testing results?

I have this too and it does feel like constant inflammation, i have yet to prove it.

Is there any effort by the scientists looking into autoimmune condition? Accutane triggers autoimmune problems, I wouldn’t be surprised if finasteride did too. I have the same feelings in terms of inflammation. It feels like my whole body is inflamed.

Form what my doctor says, there is usually no change in hormons but the whole body is inflammed. Usually the only sign of a autoimmune reaction is high Cortisol. I checked my cortisol levels a few times and it was always up the roof. People usually try to deal with autoimmune disorders with proper diets. It is a tough road thow… Eating only greens and less protein for years sounds psychiatric… Anyways, from what I read here, there’s only a few success stories with diets, but changing the habits, sound like an only option I currently have.

Robertino Totti

For whatever reason I cannot answer your question. You do not have an email activated in Your account setting I suppose and I cannot technicaly click to answer Your post. If I am doing something wrong pls do inform me.

My mail should be working fine. Just hit reply type away and send. If still doesn’t work - post back here to let me know. Thx.

I have severe cognitive problems after stopping the drug for years now. Complete scary shift in cognition.
I can’t find a job and am really screwed up bad.
I’m looking to join a brain injury support group in order to get some idea’s as to how I can live my life like this.
I am completely at a loss. Life can be cruel.
I just watched a documentary on a former rocker who took every drug you can imagine, including heroine, crack, had open heart surgery, is recovering and looks fine now. I look like a train wreck, and can’t fathom how this shit fucked me up so bad. Do a video on youtube. I did, so other people stay away from this poison.

What kind of autoimmune disease were you diagnosed with?

New users cannot reply to PM’s due to spammers.

Robertinno, suggest you PM him with an email address he can reach you at directly.

No prob. I just pm’d Otis my email address.

misleading news heading in BBC “Prostate cancer 'damages sex life” it is not cancer, it is poison that damages sex or kill the person.

bbc.co.uk/news/health-21805991

I wish NHS had mentioned the name of the drugs which destroyed health and much better if NHS had showed the mechanism behind these meds too. when it is clear these meds can destroy a person then it is a simple a case of fraud and forgery. These pharmaceutical companies and herbal companies put in jail and their assets should be liquidated to pay fines to those who have destroyed their careers, families and are burden on tax payers money now. An impartial investigation may reveal how much damage instead of benefits have been caused by these modern scientific killers.

I almost threw myself off a high stairwell inside a school building this afternoon, hoping to snap my neck, cause I saw no point in living with a fucked up state of consciousness any longer…

Curious. What ails you my man, spstricken? I have no family left(all betrayed me and left me for a reject), have no job and lost all hope in finding one on this state of mind. Gonna try to get on disability. All I can do.

Let’s see…the brain is less important than dicks? I’m tired of this forum with the dickcentric assholes. Fuck dick. I want my brain back. I agree with you man. I wish I was warned as well…

exactly people are so much concerned about their dicks not working. I am surprised. Actually I came to this forum first time not for dick but for my killing brain pain,muscle pain and arthritis like joint pain. I have learned now never mention your dick issues to your doctors, Even if you mention it with other problems the doctor quickly thinks you are depressed because of your dick. F** you doctor. who cares about the dick now at this stage. I want my health back I will think about my dick later on.
My career has ruined.All my money,My hard work of my life, my years of education (18 years ) has gone to dust. I can not work again. Four years have passed by and improvement is very little (For which I am very much thankful to my God). I can not work even simple cashier job. Firstly can not focus, secondly constant head ache, cold hands and feet with constant pins and needles and lastly swelling sets in quickly in my feet. I am trying new things hopefully will give some improvement.

Sorry to hear guys. My memory is worse and am in a bit of a fog but I manage. My testicles are almost gone and that’s permanently ruined. I agree this poison is just unbelievable how it wrecks people. Stay strong.

The penis/testicle shrinkage reverses itself when you recover. It’s just a matter of when that will be. Keep up hope, man. It’s only been a year, and while that seems like a really long time, I’ve read recovery stories where people get 100% at 2, 3, 4 years and so on. Read through Chi’s story in the member’s section, for example.

My shrinkage was so bad it was like a become a little boy at puberty. That is 90 percent gone. my penis no longer retracts into my body, but I still have no libido. no erections at ll. Things can change

From what I understand, no one has gotten any positive tests indicating an autoimmune reaction. I was tested a year ago and everything came back normal, not even borderline. Eventually, I’d like to get rechecked but it seems no one here has tested positive for autoimmune.

Also, if it was autoimmune, it would not be autoimmune against 5ar because if it was, DHT supplementation would solve all our problems.

No it wouldn’t. It would make them worse as DHT increases 5AR activity.

3 people have tested high for IgE antibodies.

If there is an antibody taking up space inside the cell interfering with androgen conversion or reception or binding to a hormone to neutralize its effect that is not going to show up on those tests you listed.

To be honest i dont think this is the problem, but it could be, there is rhyme and reason for this to be the problem.

Please post a study showing this.

ncbi.nlm.nih.gov/pubmed/8584033

Dihydrotestosterone stimulates 5 alpha-reductase activity in pubic skin fibroblasts.

ncbi.nlm.nih.gov/pubmed/6218182

Still, the role of 5 ar in the skin is to increase DHT. If you give exogenous DHT, that should drive the physiological response of DHT despite low 5 ar or 5 ar attacked by antibodies.