Propecia at 20, near complete ED at 34

Hi there, I was born in China but lived in the UK, US, Brazil and Spain.

I came across this website via pfsfoundation.org.
I’m now 34 years old, 1.69m, 70kg

I used Propecia (finasteride) 1 mg/day to battle what I thought was an imminent baldness Armageddon at the age of 20! (2005-2006) only for 1 month or a bit more. I reacted badly immediately and stopped.

Symptoms:
Sexual
Loss of Libido / Sex Drive
Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

No treatment was ever given to me as all doctors thought I had prostatitis initially, but then the tests for blood, urine came back all good.

In my own words: what a drama! at 20 I was worried about my hair. Now ironically I still have quite a bit of it, and I’m burdened instead with an unrealised sexual life at 34. Due to my initial trust in the doctors, who diagnosed me with prostatitis, I accepted it as a prostate condition. Little did I know that the erectile inconsistencies and poor sexual performance during all those years were the result of post-finasteride syndrome!
By 2011 my then girlfriend was unhappy about our sex.
By 2013, I was completely inconsistent in bed.
By 2016 I literally dreaded being with a woman
All the while though flying solo was flawless and I was a happy solo flying man. Then just recently the bomb fell. In September 2019, after a year of bad quality sleep due to waking up to pee, I completely lost spontaneous erection. No visual or tactile cue could get me aroused. To get an erection now I have to properly work towards it. I literally need the stars to align to get it going. Ejaculations are weak and at 80% erection. and I don’t know if it’ll get worse or better…

Now I started to read, now I realised that this is no prostatitis. I marvel at my own naivity in trusting Propecia, and trusting my doctors (NHS and Spanish health care in particular). I’m hoping to be part of this community to support others and receive support. I hope there are partial remedies and breakthrough research… I’m hopeful. Nice to meet you all!

Merlinm

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Welcome, Merlinm.

I am really sorry to hear of your difficulties but I am glad you have found us.

We are running a couple of projects that you should involve yourself in. You can read about them and some other things here:

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Hello @merlinm and welcome. I’m so sorry you’ve had to deal with this for so long and that you were misdiagnosed by your doctors (you’ll find many people here who have had similar experiences with their primary clinicians).

The best thing to do next is to give this thread a read

Filling out the survey is one of the best things you can do in the short term to help with the goal of getting to the bottom of this mess and hopefully developing a treatment.

Thank you for joining our community!

Edit: What Greek said :grinning:

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