Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

ssri
survey
accutane
finasteride

#82

Hi, steps completed but no mail rec’d. Does it matter that I’m just using my phone.

Cheers
Ryan


#83

Thanks - I have now had the system issue you a reminder of your unique invite. Please check if you have received it now and let me know if not.


#84

Submitted cheers R


#85

I just submitted my name and email address. I received this email:

“Subscriber Activation
To confirm your subscription please click on the link below:
[Subscriber Activation]
Thank You”

After I click on it I get the message that my account has been activated.

After that nothing happens. I guess not all problems have been solved yet…


#86

Hi @razac, I presume you mean the form? That step is what lets our emails get through to you if you have unsubscribed. The reminder email then still needs to be manually triggered by an administrator when you let us know you’ve filled that form (as you have). This is because you were already sent an invite, which I can confirm, but did not arrive either due to the delivery problems hotmail is having with our emails or due to you unsubscribing from our emails in the past.

Did you also follow the step of adding the forum@propeciahelp.com to your contacts?

I have now issued you a reminder email. Please let me know if you’ve received it.


#87

hi, here to participate in questionnaire, I have pssd.


#88

Hey @anacleta, thank you - the system will now automatically send you a unique invite within the next six hours


#89

What is the goal of this survey? I’m willing to help any way I can but if the goal is to present the data to researchers, doctors, ect. what is the benefit? I think most of us here have experienced giving doctors lucid, in depth descriptions and examples of our condition and have been met with skepticism at best. The 23 and me project seemed to be important because if you can pinpoint hard data to researchers it gives us a very strong case, but a survey that the medical community in large sees as a group of hypochondriacs describing what they perceive to be wrong with them seems similar to what we’ve all gone through in person.


#90

Hi @Trav, telling a single doctor your symptoms and submitting to a standardised representative data set comprised of recognised scientific measures are not comparable. The aim of the survey, background and information on included validated measures are posted on the blog as well as discussed in the FAQ at the start of this thread.

Thanks


#91

I tried to see my survey but when I click the link I get the next message

" This invitation has already been used.

We are sorry but you are not allowed to enter this survey."

Does this means my survey is OK? I saw a thread a few days ago saying you had to do again a few parts of the survey.


#92

Hi @Victorcillo, yes - this is the message that is displayed when you visit the link after submitting your survey. Before submission, the link can be used to return to the survey. We’ve received your response, thank you for taking it. We are currently having a considerable tech headache trying to map the original submissions to the new database structure since the necessary update recently I mentioned previously. Along with the time spent on the design, the technology under the hood of this is more complex than might be appreciated when taking it. All in all there’s about 2400 potential points of data from each survey. However, we are trying our best to ensure this data can be translated and currently this is our working aim. If not, we’ll notify everyone who submitted the survey before the update as necessary, but this will be a last resort.


#93

Hi axolotl.

I would like to participate in this survey, but I am not sure how.

Am I supposed to receive some kind of e-mail?