nvm its back on
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Hi @lakehouse, once you dismiss it with X it should stay gone for a day or so as to not impede use of the forum for regulars.
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Itās on its way. I can complete it only since a few days. The survey is long and in english, so it takes timeā¦
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Thank you @Estelle, thereās no rush - itās designed for you to take as long as you need. The length ensures that your time is well spent by providing a lot of valuable data 
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Itās done. It was difficult for me to answer because itās since such a long time. All I can say is that I havenāt really symptoms during the taking. A few years after, I had a loss of hair and tryglycerides and then tiredness and digestive symptoms have appeared slowly and it gets worse with time. Itās just as if my body was exhausted. Only a very hard diet and rest decrease some symptoms to make the life tolerable, quiet and a little happy sometimes but Iām not in life and it isolates me from others. Fortunately I became an antisocial person because of this drug 
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Thank you @Estelle. I saw the Isotretinoin survey counter go up by one today and cried a little tear of joy.
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I have a doubtā¦when asking for our sexual performance before, during and after the drug, i do not know what to say over 4 weeks after stopping. I felt great during 3or 4 weeks, then i crashed and felt crap, but during the last 4 weeks i felt much better than after the crash. Soā¦i cannot mention how i felt several months after crashing?..
Same fore many questions but I have try to make an average.
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Hi @Tomas,
The survey was constructed according to good practice standards and 4 week time frames are highly translatable to a number of scientifically validated scales, some of which are included in the survey. As many symptoms anecdotally onset or intensified in the weeks after cessation this time frame was added to capture this common experience. However, standardisation can never account perfectly for every individual experience in any survey. To accommodate users who feel they would like to add pertinent information related to their case, we included text boxes for elaboration at the end of each section.
In your situation, as a specific question in the initial sections asks about how you were feeling between cessation and worsening and you crashed three or four weeks after, it seems to me you could therefore accurately record your condition at the time of your crash in the 4 week after time frame while still having recorded feeling great before hand via the early question regarding this.
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@kate220220 cannot access the survey, please help her @Northern_Star @Greek @axolotl @Dubya_B
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Hi @stephane1,
Please could @kate220220 post a topic introducing herself and her situation in the member stories category? The system will issue a personal invite by email shortly after this, and at that point her survey will be accessible either through the link emailed to her or the bar graph icon at the top of the forum when browsing on a desktop or laptop computer.
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Hey, I found this survey on the PSSD forum, if itās still active Iād like to participate.
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Welcome!
This topic is for you:
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Sorry but i do think that the crash period is really important, and there is no way to do an averange between sexual desire 12 out of 10 before crashing and -10 afterā¦so please let me know what to specify knowing that the crash has no interest here and many people will get confused: before or after crash? Thankss.
Just been on the PSSD forum. Are they supporting the survey? I canāt find a sticky on the forum asking people to fill it in.
There is a thread that is bumped every couple of days.
Sorry I mean on the PSSD forum, I canāt find a thread on there for the survey.
So am I . I am one of a few people who bump the thread on pssdforum.com. They have a lot of categories, so itās a bit of work to keep the thread visible.
Ahh cool 
good to see they are onboard.
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Do you have links to the other groups? I will join and chase them for the survey. Already joined PSSD