Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate

Looking forward to it Santa! :slight_smile:

btw, can anyone post a weekly list of people that need to fill out the survey? I dont mind PM’ing them on a weekly basis to fill out the survey. @Greek

additionally, @axolotl this next suggestion is just something I want to make sure you are aware of.

I understand that we have a human resource problem here when it comes to certain projects, but i must ask, have you looked into these different apps that might easily create functions that we need for this sight?

for example, i mentioned the “popups” idea earlier to convert more surveys on a daily basis. You stated that we do not have enough people that can help with your work.

so if you take a look at an app like this

It would be fairly easy to implement something that would take hours and hours to create.

likewise, i think it would be worthwhile to look into some of these apps that are fairly cheap, and even completely free for basic features for other projects that you are working on.


I don’t have access to a list like that, but if you see someone without a tick on their avatar, give them a nudge!

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Some info about survey results is currently available in the Survey Basics category.

The reports need to be viewed with a desktop browser to appear correctly.

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When the forum shows ‘Views’ against a post, is that unique views, or total views?

If it’s unique, I am baffled as to why there’s 9k views but only 300-odd people have completed the survey! It took me less than 45 mins from memory.

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I just registered to this forum to be able to participate in the survey. How do I receive an invite? Thanks.


Hi frustratedbean,

Great to see another PSSD person signing up to take the survey. A warm welcome to our forum!

You should receive an automatic invite within the next 24 hours. You may also try the bar icon on the top right side of this forum (on a desktop computer). Please let us know if you encounter any issues.

In the meantime, please consider to post a member forum and check out this thread:

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Hello, I would like to complete the survey too please :slight_smile:


Dear Sam,

Welcome to our forum! It’s great that you want to take the survey. It was a lot of hard work to create the survey. It is based on scientifically validated questionnaires that will create highly relevant data. The preliminary feedback from scientists that we are in contact with has been promising. What we need is more data, though, especially from people who took Accutane/Isotretinoin. So, if you know other people who took these drugs, please ask them to take the survey as well.

You should receive an invite to the survey within the next 24 hours. Alternatively, you can try the bar chart icon on the upper right side of the forum page (on a desktop computer).

If you encounter any problems, please let us know.

I hope you like the forum. Please consider posting your member story in the relevant category.

Thank you and enjoy your stay here!


Hey there! Trying to do the survey, can you please unlock it?

hey @Jazzmatazz, thanks for signing up. If you head to the member stories category and create a new topic telling us a little about your situation, you’ll soon receive an invite to participate :slight_smile:

Thanks and welcome


Shore; already done it :slight_smile:

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I’ve not been active for a long time on any forum, used to use quite a lot (isotretinoin related issues). Been invited to complete this survey, but being met with an error page. I believe this is due to my inactivity. Could a moderator sort this for me please?


Welcome back, Crank92, and thank you for wanting to participate in our Survey!

I’ve upped your user level, so you should soon be able to take the survey. If you encounter any additional problems, please let us know!

As you can tell from the counter on our page, we really need more people from the Isotretinoin community to take the survey. Please spread the word if you are in contact with fellow patients.

Thank you!


Welcome old buddy!

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Hey I just saw some instructions on Big Pharma Injuries facebook group saying to write a reply here asking for survey activation. Thanks

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Welcome to our community. Could you please quickly introduce yourself first by posting a member story?
Thanks :slight_smile:

Continuing the discussion from Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate:

I am a 15 year antidepressant taker and been off of them for 18 months. I have a husband that is a 20 year current taker afraid to wean himself off of them and my son was overdosed thanks to a error at the pharmacy and won’t touch the stuff and has recently mentioned what he thinks are side effects from them. Looking forward to participating in your survey.

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Welcome to our community. Are you experiencing persistent adverse reactions since quitting? Would you mind posting a member story before participating?

Many thanks :grinning:

Hi all

I’ve just joined the forum.
if you think it’d be appropriate and helpful for me to participate then I’ll be glad to do so.
Please can you send me the link?

thanks a lot for your efforts with this.

Hi Everyone,
I open the link Post-Drug Syndrome Survey,
when i press
next (terms of use is checked) , it goes again to the same page…

What should i do?