So a friend of mine is a big doctor, renowned Physiologist (a unique field of medicine), anyway, he just got through with prostate cancer, so I imagined he might know who might be able to help with this. So he referred me to a good Endo he said would get me back in balance, my plan is to see this Endo, and a lot of others, I am going to see several. I am not going to have like 5 to 10 doctors working on me, that way I can have a lot of input. I know this isn’t something everyone here can afford to do or even have time to do, so I am going to do it and let you guys know what happens.
Who knows, maybe one of them will suggest something that might help. The one I am going to has experience with prostate issues so perhaps he has seen patients with this, so I will keep you guys up to date. I am managing my condition right now with hormones and an HRT doctor, but the roller coaster sucks, need to get back to where I was pre fin/dut. My HRT doctor seems to think I am young and will recover and to give it time, but I want to try different therapies.
I decided I am not going to mention “PFS,” I find that if you try to tell the doctor what is wrong, it doesn’t help the situation. I am just going to tell him my symptoms and what happened, in the end I will mention PFS, or if I find I need to. I will share my experiences here, so this thread will be what this Endo tells me to do, and things I try. Let me be clear, I have managed to recover about 50-60% with HRT (though it doesn’t work properly, it is 100% better than nothing). I have had a lot of success getting my body to respond to hormones with high levels of Protodioscin.
I am going to play dumb with these Endo’s, my problem is I am too knowledgable and the last Endo told me I knew more than he did, but prob the wrong Endo, his specialty was more diabetes I think. I have found a way to make myself feel consistently the same, and got my muscles pumped up and I jerk off 1 to 2 times a day. Pre-dut/fin crash, I could orgasm unlimited, I know that sounds crazy, but that was how I was, during my few recoveries before relapse again, I went back to unlimited orgasms. It is possible that because my body used to over produce 5AR enzymes, that that is why I am doing better than others. Not sure, but we will see what happens. I live in south Florida where there are lots of doctors, so let’s see what happens.
I want to add that I was recovering really well, to a point that I felt I was almost cured, but started losing hair again, went on a tiny dose of fin, and completely relapsed. I know it was stupid, but I just want to warn others who are new, not to go back on it. Also, stay away from Nizoral shampoo, it is even worse than fin! The only thing you can do is rogaine and hair transplants. I know it is the least of most here’s concerns, but this is to help others who are new. I also want to mention that due to the long half-life of Dutasteride (5 weeks), it really will stay in your system a year or longer. A pharmacist I know explained to me that in 5 weeks it is at 50%, in another 5 weeks, at 25%, in another 5 weeks at 12.5% etc… It will keep splitting in half every 5 weeks. So if even the smallest amount is fucking with us, that might explain a lot.
I am not going to just sit around waiting to get better, I am going to keep trying new doctors, new treatments, I managed to recover almost completely, I can again. I am a unique case, I was on HRT, before, during and after the crash, I have test results before the crash, and after the crash. If I go to any Endo, they can pull up these results through Quest and see, so let’s see what happens.
nizoral shampoo is not worse than fin, thats ridiculous dude
I used nizoral shampoo for 4 years for my eczemas. No side effects, nothing.
I’d also stay away from rogaine as some guys on that have had the collagen on their face adversely affected. Just google rogaine + wrinkles for even more stories of the delightful side effects from an FDA approved treatment.
Yes, i heard some guys got permanent brainfog due to rogaine.
Oh no??? That’s what I thought and said, “it’s just a shampoo,” that’s what my friend said too btw, libido, DEAD as a door nail, worse than fin, the only positive thing is stopping it and things reversed. It is a topical anti-androgen which is effective for controlling hormonal acne and hair loss.
Maybe it is not worse than Fin long term, but in the short term it killed everything, maybe not for everyone, but for me, and for my friend, just a warning, beware!
I get filler and botox, so I would get that to counter it if it did that to me, I mean, I have to try to keep my hair, I am getting more hair transplants next year. Life has to go on and I am not going to let this disorder completely ravage me.
BTW, NOT IMPRESSED thus far with my initial call to this “top” endo, they asked what I was coming for, I tried to avoid saying it, so they said they need a name of a disorder I was referred for. I told them a friend referred me and no doctor’s know what is wrong with me, after pushing me, I eventually said PFS.
She said she never heard of it, so, let’s see what the doctor says, I have a feeling this condition can’t be helped by Endo’s, I think hormone doctors are the only hope. Did you guys know hormone doctors are never Endocrinologists? Endo’s say they deal with hormones, but they never seem to.
I may try some different HRT doctors as well, I am not going to just sit around waiting to get better like my HRT doctor tells me. I am going to start experimenting with these HPTA protocols.
They cancelled my appointment after asking over and over what the diagnoses was and I tried to avoid saying anything, I finally said “post finasteride syndrome,” they cancelled my appointment. Now onto find an Endocrinologist that actually deals with hormones and not just diabetes. Be careful guys, never say “PFS” to a doctor or they will shut you right down, FUCK THEM.
This is why the studies are so important. If the results confirm the existence of PFS, you can take the study in from Harvard and say: ‘This is from Harvard. Now you must take me seriously.’
What good is it Gelhead, they don’t know what to do, I have had an Endo tell me I knew more than he did, at this point my knowledge of this stuff surpasses most doctors. I am WAY above the heads of doctor friends I have, they would always agree with me in conversation, I thought they were following me, only I realized that the egocentricity of doctors makes them unable to say “what do you mean?”
I am ready to go to a prostate doctor next, the reason being, prostate doctors have experience with these drugs and probably have seen guys go through this. Perhaps a good one might refer me to a good Endo who might have a protocol that works. I agree though, hopefully we can prove this to be a condition that is recognized and there will be doctors who will treat it.
My next approach is going to be to play very dumb, they think you are crazy when you mention PFS, scratch it from your vocabulary if you go to a doctor. You must let them find out what is wrong and diagnose you, I made the mistake of mentioning it to my HRT doctor and I am getting no where with him now. I need to find one of these Endo’s that are creative and will try reset protocols and stuff.
When is this Harvard study supposed to be completed? Do you have a link to it? I have heard a lot of people referring to it, but I haven’t read much on it. A doctor friend of mine suggested I go to the Clevland Clinic, so my next step will be the Cleveland clinic.
thanks depressed guy, I see why you have that name now, but I am going to get past this thing and so will we all.
I have an appointment with the Cleveland clinic tomorrow, a doctor friend got me in, I’m seeing an endocrinologist who deals in hormones. I’m not too optimistic, telling them what is going on and what I have done saves them time but not sure it I will or not. It’s usually how I can tell if they have any idea how to help me. I may go in and play dumb this time, we shall see.
If the Doctor doesn’t recognise PFS you should just walk out of the clinic without paying.
I completely agree with you Mark, but what I am trying to simultaneously do here by WASTING my time going to another Endo, is to hopefully find a creative doctor. Perhaps one who might come up with a protocol that we haven’t tried, that could help me and others here. Also, it is the Cleveland Clinic which is supposed to be the best, they have access to lots of doctors and resources. I have really though hard about what I am going to say, if I go in and mention PFS, it will just give the doctor an easy way out.
I want them to try to fix me dammit, so I may just say what I took and what happened and has been happening and play dumb. So far I have gone into several doctors talking about everything I know and it hasn’t resulted in anything but them being unable to help me. I am going to act like I know nothing, the mere mention of “PFS” causes them to cancel appointments, I had an appointment cancelled on me with the last Endo for mentioning it.
Maybe she will try some protocols or come up with an idea, perhaps she or others have seen something like this before. I said from the beginning that I would try everything and go to every doctor I could find till I got somewhere. If I don’t get anywhere with the Cleveland clinic then I will see about what from there I do, but I am being optimistic and hoping for the best.
I have managed to get my condition under some control with HRT and Asparagus and supplements, but I want to be myself before PFS as we all do, I will keep this thread apprised of what happens.
There are doctors out there that will help. Problem is they do a lot of the shit your already doing. There success rate has been zero full recoveries. They will take your cash and you will still be in the gutter. If you have all this shit to self medicate and it’s working. You need to be happy and move on. 
Well MCI, incase you haven’t noticed, I am quite persistent lol, I am a well known problem solver, and I will pretty much drop everything until I solve a problem, been this way my whole life. While I have 0 faith in these doctors, I do pay a fucking lot for health insurance, so it is paying the bill, if I was paying I wouldn’t go probably lol.
Not sure if you saw my latest post, but I got ahold of a bottle of testosterone propionate, this form of testosterone interests me because it has such a short half-life. Based on my progress thus far, I believe I may be able to make more progress with this particular form of testosterone as it is in and out in 3 days. So just enough time for the positive effects, but not enough for the crash.
BTW, have you tried the raw Asparagus? I am trying to find out how many people this is helping. As for these doctors, you are correct completely, but what if I go in and play dumb, and just say “I took this drug and now all of a sudden my hormones stopped working correctly.” I will play the patient, I have found that when you present a doctor with too much information or knowledge, it triggers their ego and they shut down.
The different thing here between others and my previous experiences is that this is the Cleveland Clinic, they had teams of doctors and research facilities. Perhaps if she doesn’t have an answer, she can send me to someone who does. Maybe they have treated patients with PFS, but not called it PFS, maybe they consider it something else. Then again, maybe I will be back here tomorrow night posting curses at the doctor lol. The key here is I am covering multiple protocols including doctors, HRT doctors, hormones, supplements. I am a practical person though, I know this is going to require something strong to fix it. So far I have already confirmed my theories about 5AR enzymes, and have been able to manage this condition based on my theories.
The good news is I have a few things to try, the new test propionate, the PCT protocol from body builders, that I have on the way, plus a few more irons in the fire including HGH therapy. I want to add that I do believe this condition will heal overtime for most people here, the body is good at adapting. It seems to me that a lot of recoveries are at the 4 year mark.
I will keep the thread up to date, let’s see what this BIG ENDO from the CLEVELAND CLINIC has to say, this time I won’t mention PFS, I am going to be the simpleton stricken by this mysterious illness. The last thing you should do is mention online forums, that shuts them right down, so I can’t mention the forum or the condition. What I hope is that this Endo tries some protocol to reset my HPTA AXIS, they do stuff like this in cancer patients after prostate therapy, maybe there is something there that will help us.
Anyway, I will write back after… If this doesn’t work it will prob be the last doctor I see except maybe another top HRT doctor, but then that’s it.
I lost all collagens on my face, i look like 20 years older now. What do you think about it?
Depressedguy, I firmly believe you will have SIGNIFICANT improvements if you go on low dose HRT, LOW DOSE, what is your testosterone? Have you tried eating raw asparagus? I know it sounds silly, I would have thought so too, but the Protodioscin is helping people. I don’t know your financial situation, but there are cosmetic solutions to your problem with collagen loss, there are fillers, cosmetic fillers that can be injected by a cosmetic dermatologist that will restore your face.
Find a cosmetic dermatologist nearby, you can probably have it all fixed for around $1k to $2k, not sure how bad it is, but as guys get older they do lose collagen in their face and their are solutions for it. If you were to go on low dose HRT it would help to restore your face as well, I suspect much of what you lost in your face is actually muscle and not collagen. When you lose all the muscle in your face it makes your face look weird. When I crashed my muscle all shrunk and my face did look different, when I managed to get HRT working again my face pumped up again.
If you are willing I can help you, I can’t cure you, but I can tell you how to get at least 50% better, maybe 60%, since your case is so bad, it may for you be much higher. You have seen my photo, I wouldn’t look like that if I were not on HRT because of PFS. Tell me what your testosterone is and let’s go from there, also, where do you live? What is your financial situation? If you don’t have money for cosmetic injections or even an HRT doctor, perhaps you have enough to buy hormones online and I can tell you where to go and what to get.
You saw my picture, you saw the drugs I am on, I jerk off about 2 times a day now, before PFS the number had no limit and I was an animal. I was a sex maniac, and I am not sure how to handle being quite normal, but I managed to recover almost fully a few times and my sex drive went through the roof back to normal. Let’s start with my questions first and I will try to help you if you are willing.