PFS sufferer from Saw Palmetto.

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)? India

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Google

What is your current age, height, weight? 29 , 5’8" , 58 kgs

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Saw palmetto extract 500 mg + beta sitosterol 120 mg + lycopene 10 mg .

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
500 mg saw palmetto extract + 120 mg beta sitosterol
What condition was being treated with the drug?
Hair loss
For how long did you take the drug (weeks/months/years)? 8 tablets beta sitosterol + saw palmetto extract for 8 days , and after 3 months 2 tablets 500 mg saw palmetto extract

How old were you, and WHEN (date) did you start the drug? 2nd May , 2016

How old were you when you quit, and WHEN (date) did you quit?
How did you quit (cold turkey or taper off)?
How long into your usage did you notice the onset of side effects?
Now 4 yrs persistent
What side effects did you experience that have yet to resolve since discontinuation?
0 libido
0 sex
0 desires
Soft penis
Testicle / penis shrinkage
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

[:heavy_check_mark: ] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[:heavy_check_mark: ] Complete Impotence
[:heavy_check_mark: ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[:heavy_check_mark: ] Watery Ejaculate
[:heavy_check_mark: ] Reduced Ejaculate
[:heavy_check_mark: ] Inability or Difficulty to Ejaculate / Orgasm
[:heavy_check_mark: ] Reduced Sperm Count / Motility

[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

[:heavy_check_mark: ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[:heavy_check_mark: ] Penis curvature / rotation on axis
[ ] Testicular Pain
[:heavy_check_mark: ] Testicular Shrinkage / Loss of Fullness
[:heavy_check_mark: ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[:heavy_check_mark: ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
PDE5 inhibitor medicn
Tongkat Ali
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
Post drug hormonal test I have ,
Everything normal
Total testosterone 390 ng/dl ( baseline )
Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

Hi All,
I don’t knw how to tell my story ,
I was too much sexual active in 2016 or before ,
From 2015 I noticed hairfall , I tried everything ( oils , shampoo ) didn’t work, though I was not bald , but I was tensed with hairfall ,
So in 2016 I checked everything on internet , and found , finasteride is harmful or its side effects can last long , so I dropped finasteride idea and searched something natural , Yes , herbs I was searching and I found Saw Palmetto which can reduce DHT , I was tensed though, so I ordered a bottle of Saw Palmetto 160 mg ( low dose ), I took it for almost 20 days …
Result : I was feeling good ( normal ) nothing wrong , I was active , but I found I didn’t have much hairs , so I decided DHT blockers herbs are safer than finasteride , so I bought little high dose Saw Palmetto ( 320 mg extract ) with Beta Sitosterol ( 120 mg extract ) with lycopene ( 20 mg ) , Beta Sitosterol and Lycopene all are DHT blocker , I took continuously 8 tablets in 8 days and after that I got severe headache , I stopped taking the medicine and went to neurologist , he said I have anxiety, and I noticed my penis is soft and can’t erect , after anxiety medicine ( for 3 days ) I felt better , I could erect , though my penis was soft , I didn’t have brain fog though , after 3 months I felt my hair is falling and I didn’t have brain fog or anxiety , so I thought I can take saw palmetto , I thought previous side effects was due to beta sitosterol ,
So I ordered 500 mg saw palmetto extract , and I took 2 tabletes in 2 days ( 1 on each day ) , after 2 days , YES , you’re watching right, after just 2 days I lost erection , libido , ejaculation , everything …
I thought it’s a herb, so if I discontinue this I will be OK within few days/months …
So I didn’t go to any doctor …
After a month , I got severe chest pain , lung pain , cough , colds etc, I couldn’t walk, one day full blackout while having lunch, I went to doctor after taking rest few hours at my home, and Dr gave me few tests …
Yes , I HAD PNEUMONIA , my body couldn’t make heat , my body became cold …
After 4 months I suffered with that and then I defeated pneumonia … ( during this 4 months , I never tried to masturbate , ejaculate , sex ) my penis was soft and cold .
After that in 2017 , I didn’t go outside , as I was weak , suddenly one day I got erection , and after 4-5 months I got little libido, I ejaculated and yes I could do it, I was happy , I got some times morning wood too,
One day I checked Ashwagandha can increase/boost testosterone, so I felt let’s give a try , took 3 ashwagandha tablet 500 mg extract for 3 days after dinner , but after 3 days I found my penis became softer than previous, so I left , from then I didn’t feel good , again at morning everyday I was energy less , but whenever I went outside and came home I felt little good, though I didn’t do any exercise as I was waiting for any miracle but :cry: that never happened ,
In 2018 someone told me fenugreek can boost testosterone, this time I didn’t buy fenugreek extract but I bought raw fenugreek seeds and at every morning I took some seeds with water .
But again it’s soften my penis , I left , one day I found my testicles are decreasing in size that in October 2018 , I was too tensed , and immediately went to urologist , told everything , he gave me anti-depression medicine – that soften penis again
I left
He gave PDE5 inhibitor for ED , but no work …
I left …
In 2019 I found on internet Tongkat Ali can boost testosterone by 30% , so I took Tongkat Ali 200 mg extract …
Yes it reduced my anxiety / headache/ depression / I lost muscle though …
And next I went to homeopathic, where I got Ashwagandha mother tincture , Ginseng , testis siccati , but 0 effects except heart pain, after consuming too much homeopathic , I had high blood pressure, I couldn’t move , I lost muscle , bleeding mouth ,
In 2019 December I had all this symptoms , I was too weak …
But I never tried / did any gym / hard work .
In 2020 , January , I decided not to believe any doctor , anyone , I will do whatever I can to recover ,
I stopped to take anything …
I started to run , weight lifting , and started 16-17 hrs fasting daily …
My mind is clear , I can think , feeling energetic , no depression , but still 0 libido , 0 ejaculation ,
I forget to say one thing, I didn’t have / don’t have erection problem , if I try to masturbate I get an erection but no ejaculation , I think this is because of low testosterone levels ,
I never thought I would have this problem due to just 8 beta sitosterol + saw palmetto and two 500 mg saw palmetto extract :sob:
Guys can I recover ?
Plz send me link if u find anywhere , I read saw palmetto side effects reversible , that’s why I took , or else I wouldn’t have done this biggest mistake in my life …

Welcome to our community and thank you for taking the time to share your story @Poisonpalmetto. I’m sorry to read that you’ve been suffering with these problems for this amount of time.

We have an action guide for new members, please give it a read.

Your participation in the survey would be much valued, particularly as you’ve been living with the disease for such a long period.

The data gathered so far has already generated interest from some world leading scientists/researchers. The more data entrants we have, the stronger our case and the likelier we will receive the interest and funding our problem so desperately needs.

any updates?