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Where are you from (country)? United States.
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How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) The Examiner (online), which linked me to this site.
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What is your current age, height, weight? 34; 5’,9"; 150.
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Do you excercise regularly? If so, what type of excercise? Yes (weightlifting), but not nearly the volume I used to.
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What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)? Mostly organic meats, fruits, and vegetables.
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Why did you take Finasteride (hair loss, BPH, other)? Hairloss
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For how long did you take Finasteride (weeks/months/years)? Approximately 6 years
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How old were you, and WHEN (date) did you start Finasteride? 25 (March, 2005)
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How old were you when you quit, and WHEN (date) did you quit? 31, (mid-2011)
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How did you quit (cold turkey or taper off)? Tapered off.
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What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic? Generic Dutasteride
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What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? .5mg/day
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How long into your use of Finasteride did you notice the onset of side effects? Dutasteride - about 5 years into it.
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What side effects did you experience while on the drug that have yet to resolve since discontinuation?
Put an X beside all that apply:
Sexual
[X] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[ ] Complete Impotence
[X] Loss of Morning Erections
[X] Loss of Spontaneous Erections
[X] Loss of Nocturnal Erections
[X] Watery Ejaculate
[X] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[?] Reduced Sperm Count / Motility
Mental
[X] Emotional Blunting / Emotionally Flat
[X] Difficulty Focusing / Concentrating
[X] Confusion
[X] Memory Loss / Forgetfullness
[X] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[X] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts
Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[X] Testicular Pain
[X] Testicular Shrinkage / Loss of Fullness
[X] Genital numbness / sensitivity decrease
[ ] Weight Gain
[X] Gynecomastia (male breasts)
[X] Muscle Wastage
[X] Muscle Weakness
[X] Joint Pain
[ ] Dry / Dark Circles under eyes
Misc
[ ] Prostate pain
[X] Persistent Fatigue / Exhaustion
[X] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[X] Vision - Acuity Decrease / Blurriness
[X] Increased hair loss
[X] Frequent urination
[ ] Lowered body temperature
[ ] Other (please explain)
- What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
Other than trying to continue my exercise routine (best as I can), I have tried eating a super-clean diet, and (more recently) taking Clomiphene (Clomid) 50mg. 3X/week.
- If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?
I don’t have copies on hand, but they all reflect secondary hypogonadism: Low T, and higher E2, SHBG.
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Anything not listed in the above questions you’d like to share about your experience with Finasteride?
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Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.
I started using Finasteride in 2005. Not seeing the results I wanted fast enough, I stupidly switched to the more potent Dutasteride, which I took for about 6 years. After about 5 years, however, I started noticing a bit of muscle loss, combined with decreased energy/libido, and some gynecomastia setting in. At first, I thought “okay, I’m in my 30’s now; I’m just getting older; I had a good run” As the combination of symptoms continued, I became more and more concerned and suspicious of Dutasteride, so I switched back to the “weaker” Finasteride.
However, things continued to deteriorate quickly after that. So I went to my primary care physician in early 2011, and asked for a referral to see an Endocrinologist because I knew there was a hormonal issue. Of course, she didn’t take my concerns seriously and refused to give me the referral. Instead, she offered Cialis and a referral to see a mental health doctor, which I refused. Nevertheless, she did order a blood test for total testosterone, which came back high-norm at 851. Ignorant at the time about the significance of Free T, E2, SHBG, Etc, I thought maybe something else was making me feel like crap and my body was falling apart due to aging and diet. But I was wrong again; even after switching to a freakishly clean diet, my symptoms kept getting worse.
I should pause to mention that both before and during the course of these drugs, I was an avid bodybuilder who was naturally highly anabolic and had a genetically-gifted physique. So much so that I was frequently accused of using steroids. I was also hyper-sexual - had to have sex (or jerk off) between 2 and 10 times a day. This all came to an abrupt end though. After quitting Dutasteride, everything went to crap. I lost all of the above qualities. I went from a 5’9", 160lb. muscular frame with 6% bodyfat and high energy/libido, to a scrawny/decrepit-looking (and feeling) 135lb. frame with 20% bodyfat and no energy/libido.
During the rest of 2011, I continued to bitch about my problems to my PC. However, she seemed to want the problem to be anything but hormonal. It was either in my head, a digestive issue, or rheumatoid arthritis, etc. She sent me to a rheumatologist, a digestive specialist (where I had an endoscopy/colonoscopy), which all checked out fine. Having enough of her BS, in 2012 I fired her ass and found another PC. I picked him because his specialty was Internal Medicine and he was Harvard Medical School Grad. Although he was much older in age, and probably less likely to be “cutting edge,” he was old-school in the sense that he was willing to listen to me and order more comprehensive blood work after examination. By the time of that test (Sept. 2012), I was feeling much worse and had lower Total T (500’s). Although he said my levels were still in the normal range, given my symptoms, he gave me a referral to see an Endocrinologist down in Boston…Dr. Shalender Bhasin. By the time Dr. Bhasin had me tested in Oct. 2012, my T levels had dropped even further (300’s) and was diagnosed with Secondary Hypogonadism (Low LH/FSH). The BW also ruled out any other systemic underlying disease, and an MRI ruled out a pituitary tumor (although there was a “small, insignificant” lesion there). After refusing TRT, I was placed on Clomid 25mg/day. During the first few weeks, my total T levels shot up to 1073 and I was feeling somewhat better. Free T however, was still lowish-norm. (high E2 and SHBG), which probably accounts for the “somewhat.”
Progress with the Endo has still been slow at best. Appointments are at least 3 months apart, and when my doctor moved to another hospital in late 2012 / early 2013, I had to play musical doctors for a while until I could switch insurance and follow him over there. I am now on my second trial of Clomid. This time, it’s 50mg. 3x/week, and there wasn’t much of a “spike” in improvement. Although I have gained a little weight during both rounds of clomid, it’s been with the help of weight-gainer/protein powder, and it hasn’t been quality weight; i.e more fat in chest (gyno) and lower abdomen. But the clomid has slightly improved my energy levels, at least to the point where I can exercise a little.
Right now, I’m still at a loss and am waiting for my next followup appointment with the Endo. I feel like I can’t bitch about Clomid not helping that much, or he will push for TRT again. My background is strikingly similar to “Legendary’s” (member on this forum), but my Endo, although at the apex of his profession in the US, is still pretty conservative when it comes to treatment. In any event, I will continue to update everyone with any major developments…