Another worthy show on Adam Held’s PFS Global support.
Former financial executive Paul Huber tells his disturbing story:
And don’t forget to offer yourself as an interview subject on Adam’s show, if you have not already done so.
He is doing extremely important work.
I think its great you organised this interview with an expert on the subject, good work.
And this leading prostate cancer academic and researcher thinks the upregulated ARs are the result of locally low levels androgens, not some change to the ARs themselves.
Hopefully in the future this ‘epigenetic’, ‘molecular’, ‘methylation’ AR theory will be long forgotten and more sensible ideas investigated.
Why not try and get Prof Roberto Melcangi on the show? He speaks English.
You think harvard and baylor searching false areas?
She isn’t an expert in PFS. She is an expert in androgen receptors. She even admits that in the show. If Oscar is correct, then the Baylor/Harvard studies will still be important as they will allow us to cross some stuff of the PFS list. If Oscar is not correct, then we are closer to a cure. Either way, you should be donating and/or participating in the research ASAP.
Oscar - why don’t you come on the show?
Oscar, you are exactly right once again. Undoubtedly, the most important piece of evidence/study we have is the below case, which has just recently been cited by another case study!
europepmc.org/abstract/MED/24719069
This is also smack dab EXACTLY, what I have been preaching for 2 years. Let’s hope the Harvard studies can explain this phenomena and other lead to a more solid understanding of PFS, other than the Androgen receptor issue.
Hey Jorbie,
I’ll do the Podcast. Send me a PM to set it up.
I’ve been struggling through a divorce and missing my kids for the past 9 months thanks to Propecia so I just haven’t been ready to talk till recently.
I plan to write up my timeline of events spanning 11 years so I can stay on track. Still get sidetracked easily.
I’m essentially 85 to 90% recovered after having stopped Propecia 4 years and 4 months ago, but the vast majority of recovery occurred over the past 8 months once I got serious about trying the natural solutions and stopping TRT. Anyhow, I’d be glad to tell all under an alias, and if there’s time, I could discuss what I did to get better. I cannot claim to be 100% recovered until all my lab results are taken again and the values are good with a clean baseline; (no interference from TRT, prohormones, tboosters, vitamins, supplements, minerals etc…)
By the way, I qualified for full disability through the SSA over this, but under other symptomatic diagnosis names. PFS isn’t on their list, yet.
I don’t actually know the full details about these - Can you pm exactly what they are studying? As I understand it the AR stuff is only a very small part of the studies at Boston.
No thanks, I am too argumentative at the moment. Melcangi is a much better choice.
Oscar -
I agree Melcangi is a much better choice. However: http://imgur.com/vvACQUg…
Looks like its your turn to contribute. When do you want to do the show? And I just think your story will suffice, no need to argue. I am free for the most part until mid August when school starts up again. Talk soon!
Adam
Also - anyone can help me solicit guests for the podcast.
Its not MY podcast, its OUR podcast, and I am game for almost all guests. (Unless you want to talk about leaky gut/parasitic leech/sauerkraut cures)
If you have a doctor that seems particularly passionate about PFS, for example, send him the link and ask if he/she would give a bit of time to talk about their experience with PFS.
Thanks.
Adam
Another compelling interview on the PFS Global Support podcast.
John Davis tells his heartbreaking story:
And yet another excellent interview, this one from Mitch in Australia:
blogtalkradio.com/pfsglobal/ … hs-story-2
“Merck should have to pay for the research and recovery of the PFS community,” the 23-year-old (former) journalist tells host Adam Held.
PFS truly is a global epidemic. But it’s heartening to see victims fighting back.
Isnt this just the member towm8er?
Isnt it important we hear more about his recoveries - like here viewtopic.php?f=6&t=8775#p78882 ?
I mean, I know he mentions adrenal fatigue and ‘methylation cycle’ and fasting and gut health and probiotics and gluten - but this person has made an amazing recovery so far, isn’t it vital we learn more?
I liked the one were Mitch from Australia said he walked out of the doctors office without paying.
Thats what I should of done on a number of occasions. Some “doctors” out there are completely stupid. I had a endocrinologist tell me that fin was automatically safe just because the FDA said so. This clown cost me 250euro for his “consultation”.
If all of us just refused to pay “doctors” who do not recognise PFS it may get them thinking and lead to further publicity.
Also if they brought us to court to try get the money we should just say that we are not going to pay a “doctor” that does not even recognise our illness let alone try and treat it.
Agreed 100%, Mark.
Patients are conditioned to believe, at least in the U.S., that doctors are always correct; that they know everything – and we are conditioned to act accordingly. Which is to say, don’t question their prognosis.
But the finasteride epidemic has shown that they are often clueless. What’s worse, they don’t want to take the time for further investigation.
So, yes, just stand up and walk out. But before you do, get the doctor’s email address. Then post the doctor’s name and email address here. Then we can all email him to tell him what we think of his “skills.”
We need more people to tell their story. Get the word out.
I’ve got a couple more podcasts coming up…but please let me know if you are willing to tell your story. The more stories we have, the harder is it for Merck to deny the lives they have ruined.
Big thumbs up to you for your continued efforts with these Podcasts.
You and are one of only a few members on this forum that has my full support in what your doing.
You dont talk crap but are to the point, just as I like it. You support the studies and promote awareness instead of talking about asparagus, swimming pools and phone sex !!!
Lucky forward to hearing my mate ‘G’ from Wales on the podcast !!!
The cure for PFS is likely to be a mixture of both funded studies and lifestyle enhancements that members learn through self exploration. Why can’t we live in peace. I think everyone has good intentions.
Keep up the good work Adam. I’d like to see some positive stories on the podcast from people who’ve seen hell but found a way back, what about towm8er?