PFS Podcast

General Discussion Media & Awareness
#21

Another excellent podcast Adam.

Thanks also to Paul for telling your story. Hearing your voices is so much more effective, immediate and “real” than reading your stories. This is another fantastic arsenal in the fight.

Your story Paul reminded me of one of the many things that gets me about propecia when you spoke of choosing to go on propecia again when you were single. The bastards at Merck et al know that even with little warning inserts that losing hair and looking your best is an emotional issue and as long as propecia is on the market more and more guys will make that decision and discover that it was the worst decision of their life down the line, guaranteeing future victims. That’s why propecia must be banned.

#22

Well said Scotsman, I could’nt agree with you more.

#23

propeciasideeffects.co.uk/pr … dcast.html

#24

youtube.com/watch?v=XIgmHG_Pp_I (Episode 1)

youtube.com/watch?v=iz6P6ujIwXU (Episode 2)

youtube.com/watch?v=XoKDe4qPiDo (Episode 3)

#25

Each of these podcasts has less than 100 views we need to get more people watching them.

#26

I just listened to the Paul Innes interview:

blogtalkradio.com/pfsglobal/ … paul-innes

I give that guy a lot of credit for coming forward and telling his story to the world.

But I also noticed that the Dr. Irwig is scheduled to appear on Jan. 17:

blogtalkradio.com/pfsglobal/ … hael-irwig

If that’s true, it’s big news – and promises to give great credibility to PFS awareness.

#27

Maybe Adam can book Dr. Irwin Goldstein in the coming weeks as well:

onlinelibrary.wiley.com/journal/ … 91743-6109

#28

Well done to paul for putting his story out there.

I’m looking forward to Dr. Irwig interview.

Anyone know if Dr. Irwig has ever recommended a treatment for PFS ?

#29

Though Dr. Irwig is a pioneer in PFS research – and should be commended accordingly – the truth at the moment is that the global medical community knows very little about the root causes of PFS. And even less about how to effectively treat the condition.

Science is still in the stage of demonstrating that PFS is in fact real (and, attorneys take note, CAUSED by Merck’s finasteride).

The next step will be to identify its root causes at the molecular level.

After that, strategies for treating the condition can be developed. That stage, of course, is largely trial and error and could take years. Or the researches could get lucky find that some medicine(s) currently on the market are effective it treating it.

The good news is that two major clinical studies are already in the works, so we’re well on our way toward closure in Stage 1. And that closure could come in 2014.

So just sit tight.

#30

It would be also worth getting Dr. John Crisler on the show he has done a lot to spread awareness of PFS.

#31

Agreed, all the medical professionals who have PFS-research experience should be booked as guests.

Then we can get a consensus of what IS known at the moments, along with respective theories about how PFS might be effectively treated.

#32

One thing I’ve noticed is that our community seems pretty inactive lately.

The fact that we can’t get more than 30 views on one of those videos is insane. There are more than a hundred of us at least that check this forum almost daily.

#33

Finally listened to Paul’s interview. I thought it would depress me to listen to (that’s why I held off) but it was really nice to hear someone else and know exactly what it felt like. I was moved by his confession about how he feels about his kids… the emotional numbness.

Definitely looking forward to the Irwig interview. Even if he doesn’t have any good news for us, it’ll be nice to hear his thoughts and where things are at.

Thanks for doing this Adam.

#34

Agreed – I will be tuning into Dr. Irwig’s interivew as well. Will be nice to hear him talk for a full half hour, as opposed to a 3-second soundbite on a news program.

#35

Is their a date and time for the Irwig podcast?

#36

It is scheduled for Friday 17 Jan 2014 at 2:00 PM (I think EST?)
blogtalkradio.com/pfsglobal/ … hael-irwig

#37

I got pretty choked up listening to Paul’s story. It’s nice listening to people who actually understand what it’s like to go through this shit.

#38

Yes, there does seem to be an important psychological effect here – chiefly the affirmation that you/we are not crazy. This is a very real physiological problem whose impact sees many commonalities among those afflicted by it.

#39

Just noticed that the PFS Global posted another patient interview, Vincent from Australia:

mail.aol.com/38252-111/aol-6/en-us/Suite.aspx#

What’s striking to me is how similar all these stories are. It seems that every man who took finasteride was duped by the same erroneous promise of any side effects that might occur going away after quitting the drug.

#40

The Dr Irwig interview is now online.

blogtalkradio.com/pfsglobal/ … hael-irwig