Is it possible to be hypothyroid with a TSH reading of 0.99? Then again my testosterone is above range at 31.2, had these tested last week and few other things.
Yes, but unlikely. That would indicate pituitary failure. Only way to tell is to get T3/T4/Free labs.
how come pfs sufferers with normal thyroid values benefit from NDT and/or T3?
i know more than 10 cases
Good question. Either it takes more thyroid hormones for us to feel good, or perhaps normal patients feel good on thyroid hormones as well. I’m a little afraid to go on thyroid because i don’t want to swing into hyperthyroidism.
I was highly advised by my endo not to mess with my thyroid. I do suspect adrenal issues though as I’ve tested both high and low for cortisol so I’m curious to see how the hydrocortisone works for @zadig777
ofc,im not using thyroid meds without hydrocortisone
Does hydrocortisone protect you against hyperthyroidism? Can you send me links that show that, please?
they are from closed forum i cant share u sry
there are links
these are anecdotal experiences i have gathered reading
moonman used thyroid and HC and recovered everything except sexually
Why don’t you re-post the relevant information here, so everyone can see it?
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i dont have the data collected in a single place except in my memory
i know for shure that moonman recovered on this protocol and i know arround 10 other guys who had at least partial recovery
i did a lot of reading everywhere and thyroid forums and found out that male hypothyroidism is almost same as pfs
all the symptoms are same
everyone who wants evidence can look at moonman or search hydrocortisone/ndt/thyroid/t3 on the search bar here
thats how i was studying this matter
and this is the best thing i have read in the last months
i dont have any content but memory of gathered anecdotal experience
u can only trust my word or search urself
regards
If you are talking about @moonman1, I don’t think he is currently recovered. Did you find him mentioning somewhere that he perhaps had a good temporary recovery with thyroid meds?
Or was this a different person with “moonman” in their user name?
im speaking about the same moonman u can search urself and find that he states hes fully recovered except sexually
hes on some t3/t4 and hydrocortisone
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Well, it’s good to hear he is feeling better in other regards, but that isn’t quite being recovered if he has remaining sexual symptoms.
people have just overlooked this aspect and every other working aspect
but i wont people to recover ofc lol
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I can confirm that hypothyroidism -and its treatment- may be very important to amelioration of PFS symptoms
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Details?
Both anecdotally and also based on the research i’ve been performing. I hypothesize that the problems of Finasteride originate from disruption of bile acid metabolism and an unfortunate combination of other issues that sets the body into a vicious cycle. In the link below i discuss about Chronic fatigue syndrome but i also believe that PFS, Post-accutane, post-lyme disease treatment syndromes are all related.
http://algogenomics.blogspot.com/2019/01/liver-bile-acids-and-thyroid.html
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If this were the case wouldn’t we have a lot of symptoms as someone who’s had their gallbladder removed?
Good question.
Things are not that simple according to this theory. We are looking at any issue that can affect liver / bile acid metabolism. This means that we have to look at Wilson’s disease, hemochromatosis, cholestasis (you need a test named “total bile acids” for this). Some people may have gallstones which is also an issue. Unfortunately there are many things that can affect liver function negatively and at the same time have no problems seen in SGOT / SGPT, γ-GT liver panel tests.
The best way to assess liver function is through liver biopsy from multiple sites (…!) , which of course may also have complications. Next best test is a Fibroscan.
I believe that no PFS study has ever performed these tests, if you happen to know otherwise please let me know.
I will be contacting PFS researchers shortly.
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What cases? I don’t see anyone on here who recovered with t3.