Your doc did say not to expect immediate results. Give it time brother. I know it’s hard with the hell you’ve been through. Pulling for you!
Some progress and some regression.
Penile health is better, but not consistent.
Have good days great days and then off days.
Erections are better. Spontaneous are happening, but only to a certain extent. Some resemblance of penis/brain connection coming back.
Then I got through a weird down spiral of bad days where there is regression.
Repeat process above constantly.
Today is a good day.
Very frustrating/confusing.
Depressive feelings are still lingering/ motivation/fatigue still a thing. But again good days are mixed in as well.
If this is my new baseline then I can live with it.
Also great to see a lawsuit has been filed. If anything comes from that it could be great news for all of us. Fingers crossed.
I see my endo next month to do more baseline tests to see where I stand.
The up and down rollercoaster of “recovery” is common but also maddening, atleast for me. I just try to enjoy the up days and stay hopeful they will come again. But it is brutal some days mentally. Glad to see you’re atleast showing some improvement and not regressing too badly. Thanks for updating. Means alot. Let’s keep fighting
Probably the most devastating night to date. Went to have sex for the first time in awhile and couldn’t.
I’ve never felt so defeated and embarrassed in my life.
Didn’t tell her why just said I had to go after about 20 min of trying and drove home.
I was on 7.5mg cialis took 1.5 pils
Took 3 grams of citruline earlier in the day.
Ate Brussels sprouts, spinach and chicken for dinner.
Did everything the way I was supposed to.
This shit ain’t fair.
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Very tough to go through that. It’s what I’m dreading if I start dating again but kudos to you for putting yourself out there and starting the journey to a fuller life in spite of the obstacles and fear. Maybe it was just a down day. It’s hard for me to know when my up days are which is part of why this disease unbearable. I know there’s never a woman around when I could use one but hopefully the stars align one day lol.
Anyway, I hope you can eventually move past this and make this moment a small part of your bigger story to come. All we can do is keep trying with what we’ve got and look forward to eventual success. This disease has taught us we never know what our blessings are until it’s too late, but I know the blessings are harder to come by these days. Any criticisms or disagreements with my response are very welcome.
I don’t disagree with any of it to be honest. Really hard to find a positive.
Been a rough couple of weeks. I feel like I’m back to a few months ago.
Very tired, insomnia is back.
If I do sleep, Waking up with terrible night sweats which hasn’t happened in forever.
Gut health is the worst it’s been in some time.
Libido is all but gone again.
Penis/testicular health is going on wrong direction.
Hopefully only a minor set back and I start to move forward again.
So some exciting news.
I have virtually zero energy.
I need to get back in the gym but I feel legitimately like I’m going to pass out I’m so tired.
It’s not like long day want to just relax tired.
It’s full blow moving takes so much energy tired and I need to rest.
What the hell?
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I have the exact same issue. I’ve literally spent two whole days laying in bed lots of times. I literally feel like I’m 90 years old.
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ME2! For weeks I didn’t stand up before 2 pm because I’m tiered, fatigued and totally demotivated in doing anything.
I feel like a bedridden 90 year old forgotten old man, in a hospital or a 59 yo man, who I am in the final state to leave his house and going to a supported live.
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Try looking at your foods many give me this
symptom and its truly breaking. Foods with polyphenols seem particularly bed.
Have you complained to your health authorities?
With all due respect. Complaining to medical authorities gets you nothing. It goes nowhere.
I can no longer get cialis through my urologist because I disagreed with the tests he wanted to run on me (basically run my insurance). It wa like $3k worth of tests but nothing to check for any leaks nor doing the erection test.
He said he’s never heard of fin causing issues like this, and wouldn’t you know he prescribes it all the time to patients. So you know what that means.
Went to fill my prescription and they denied it, until I go back. Told me I they were dropping me because I wasn’t following routine checkups.
Healthcare is shit and will always be shit.
Have libido today, that I can feel down there but can’t get erections.
Nothing makes sense.
5 mg daily cialis no longer helping combined with arginine/citrulline so that’s exciting.
I’m going backwards now.
Sleep is garbage again 3-4 hours a night.
My urologist is garbage. Claims now my issues were testosterone related when previously my testosterone was not an issue according to him. Making shit up as he goes.
Trying to find a new one but assume it’ll be no different.
Sorry to hear about the setback and frustrating urologist. Are you still on the cabergoline your endo prescribed? Do you have still have a mix of
good and bad days?
I have been in the Cabergoline but ran out of my prescription last week. I had to get another round of bloodwork to see what my levels are.
I couldn’t figure out what changed other than I stopped taking taurine and stopped using the total body enhancement machine at my gym. I’ve started using both now for a week plus and I don’t know if it’s a placebo effect or what but I’m feeling better, and my skin looks better as does my manhood.
I belong to planet fitness and I would suggest anyone who does to upgrade to the black card and use this machine. I use it 4-5 times a week and I go in naked so the light gets everywhere.
It uses low level red light therapy combined with a vibrating floor to promote blood flow, fat burn and overall general health. It seems to be really helping and hopefully if I continue to use it I move forward some more.
Awesome to gear some good news! So you started the taurine and TBE machine again but not the cabergoline. Glad you are having some good days finally.
I’ve read some forum members suggest light therapy so maybe that is helping too. Thanks for the update!
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I saw that thread and I’m Confused about the one response of inhibiting 5AR. I see nothing of the sort. That’s a very baseless and possibly damaging claim to make.
Regardless. Yes back on taurine 2-3 g a day and arginine 3-5G a day with 5mg daily cialis.
Couple that with the LLLT and I don’t feel as terrible and the eye bags/wrinkles are looking better.
Cabergoline I’ve been off for two weeks. I didn’t want to take the stuff still if I don’t need it because I don’t want to kill my prolactin completely if it’s already in range.
Every time I do a blood test it’s $300 out of my pocket so this is my last one for awhile.
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你最好不要恶化，我的朋友，刚开始我只有严重的精神/性问题，过了五个月，我的身体已经在退化了
Woke up with Covid this morning at 330 am feeling like death. What a Christmas present!
Covid and insomnia don’t mix.
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