i do get you completely man. Its difficult to do almost anything. I’d suggest the best thing is to do something online. Maybe a job or a course online. Where there is flexibility.
I think this is what you did last time
1 Like
Yeah I did school online but Ive graduated now. Tried to do an online job but was rlly struggling with it. May just have to wait it out : (
Seems like the crash has stabilized somewhat.
Head pressure has gone away. Fatigue is a lot better. Anhedonia is unfortunately still there. I don’t feel connected to my old passions. I currently have very little motivation to do much of anything. Brain fog comes and goes, at times it is absolutely unbearable. Libido is pretty much nonexistent.
Even though it may not seem like it, this is some sort of improvement. I hope I continue to improve in the coming months and get back to my “pre-crash” self.
Thought I’d update this.
I’m doing better in some very small ways. My hair has stopped rapidly shedding, which started after this last crash. I should note I wasn’t suffering from severe hair loss before this, and still have a lot of hair, so the shedding was almost certainly related to the crash. Also, my scalp has stopped being dry as all hell and producing crazy amounts of dandruff. Sleep has gotten better. Cognition is maybe slightly better. For some reason my body is not producing oil anymore. Hair is dry as hell and I don’t sweat very much even in the heat.
2.5 months out since crash and things have certainly improved mentally, at least a little.
Something I’m really struggling with is extremely dry hair. It’s like my body no longer produces oil. Secondly, my facial changes are quite bad. It’s rounder and less masculine. Anyone seen improvement in these areas?
I have seen some improvement as time went on but not a huge amount of it, The oil and sweating issue is probably at this point my most persistent problem. In order for me to really start sweating I need to be outside for a while in the strongest summer heat exercising. So far haven’t gotten too much to make me sweat, sometimes I’ll come really close but it won’t do the thing. These days I can get pretty sticky if it’s too hot in my room at night, guess that’s a start.
Did you have facial changes too?
I didn’t have any facial changes. I had genital shrinkage, weight loss, my head hair got really patchy/dry/wiry, and I got reduced hair growth on my legs and arms. (more like near inversion, it was very disturbing).
I’m going to be honest, I’m unsure how long I can keep pushing through like this. It’s been almost 3 months since my second crash and I seem to have stabilized with these symptoms:
- Heart palpitations (persistent since first crash)
- collagen loss in hands (persistent since first crash)
- Muscle twitches
- Dry, brittle hair
- Lack of sweating/oil on body (no acne after dealing with it for all of my adolescent and young adult life)
- Penile pain/tingling
- Libido loss
- Penile tissue changes/shrinkage (persistent since last crash)
- Brain fog
- Slowed beard growth
- Inability to build muscle/feel a “pump”
- Increased body fat in some areas (persistent since last crash)
- Facial changes (This is honestly extremely distressing to me)
- the deepest, darkest depression I’ve ever experienced in my life (not sure if this is a symptom in the pure sense or just a result of the severity of this situation)
I’ll try to get on with life as long as I possibly can. The worst part is all of this is my own fault. Life got to a livable state and I fucked up so badly. I walk around all day feeling so ugly and broken. It’s not even about women at this point! It’s about how I feel about MYSELF. Not really feeling hopeful my face will go back to normal- Any physical changes I had last crash didn’t revert. I oftentimes think to myself that this has to be some sort of sick joke. But it’s not
1 Like
I am at the beginning of this journey too, please see my member post, and I had c60 symptoms then so I know where you are. I also took further medication that may have made me worse so I understand the guilt and helplessness associated with that
I don’t know the answer and am not really qualified to do so, just try and distract yourself and get into a routine.
1 Like
Just some things I want to add. I’m supposed to go to graduate school in the Fall but I truly don’t know how I’m going to do it. I’m currently living at home with my family and working a part-time job for the summer and honestly even that is difficult and exhausting. I’m not trying to write a sob story here, but I already suffer from a learning disorder- PFS brain fog makes it extremely difficult to learn anything at all. The trouble is that my degree is paid for. My mom really wants me to do it as I will be set up for life but my mental and neurological symptoms are so bad that I struggle to get through each day working just 30 hours a week. No one in my family understands or comprehends what I’m going through. I try to tell my mom my concerns about school but she just says “you’ll be able to do it.” I want to believe I can but I have horrible cognitive issues, constant anxiety, sleep issues, etc etc. I just feel so unbelievably trapped.
I’m truly trying to figure out how to live with this until a cure is found but I just don’t know what to do. Do I work an easier retail job and live with my family at this age? Honestly that seems embarrassing especially because no one buys that I have a health issue, so I just look like a lazy, unmotivated guy in his 20s. Do I go to school and just try? I don’t even know at this point
2 Likes
Haven’t made in update in a while. I’m still struggling. Haven’t had a good or decent day in about 4 months. I guess I’m at a new baseline. I don’t really know how I’m going to survive but I don’t have any other option. Just trying to keep my head above water everyday and it’s exhausting. Hope everyone is doing as well as they can.
3 Likes
Ure doing a great job don’t beat yourself up. No one can comprehend what your dealing with apart from other sufferers. One day you’ll feel the warmth of the sun of your face once again and the beauty of the world around u , keep going
4 Likes
Thanks Laz, sometimes the mental symptoms are just utter torture but we’ll get there. Hope you’re doing okay too
1 Like
It’s beyond mate but we do what we have too… each day is a victory and another that u might have never had. Torture is better than nothing. Even with torture we still have hope
4 Likes
Unfortunately, no improvements. I go back to school in 5 days. Not sure if I’ll be able to manage with the severity of these symptoms but I’ll try my best.
Also, I’ve been suffering from incontinence/frequent urination. Extremely embarrassing problem but I’m certain this is a symptom of PFS. I’ve definitely had muscle damage down there so maybe that has something to do with it.