My Story, 26, finasteride


#1

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?
USA
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
searching for help with side effects
What is your current age, height, weight?
26, 5ft11in, 160lbs
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
finasteride
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
1mg/day
What condition was being treated with the drug?
mpb
For how long did you take the drug (weeks/months/years)?
5-6 weeks
How old were you, and WHEN (date) did you start the drug?
i was 25, started beginning september 2018
How old were you when you quit, and WHEN (date) did you quit?
quit at 25, mid october 2018
How did you quit (cold turkey or taper off)?
cold turkey
How long into your usage did you notice the onset of side effects?
probably 3-4 weeks
What side effects did you experience that have yet to resolve since discontinuation?
still have weak erections/ED, no libido, loss of sensitivity in penis
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[x ] Loss of Libido / Sex Drive
[x ] Erectile Dysfunction
Complete Impotence
Loss of Morning Erections
[x ] Loss of Spontaneous Erections
Loss of Nocturnal Erections
Watery Ejaculate
Reduced Ejaculate
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility

Mental
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Confusion
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Suicidal Thoughts

Physical
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Pain
Testicular Shrinkage / Loss of Fullness
[ x] Genital numbness / sensitivity decrease
Weight Gain
Gynecomastia (male breasts)
Muscle Wastage
Muscle Weakness
Joint Pain
Dry / Dark Circles under eyes

Misc
Prostate pain
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Hearing loss
Increased hair loss
Frequent urination
Lowered body temperature

Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
none yet
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience?
had worse side effects during taking the drug, luckily most went away
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

I started taking a generic finasteride at the beginning of September as I had become concerned about losing my hair and wanted to stop it. It took me a while to notice any side effects as I wasn’t in a relationship/sexually active at the time and was assuming a lot of the mental “side effects” I was experiencing were due to other issues and general stresses in my life. I had gone through a rough break up earlier in the year, was in a new city with no friends/connections so was pretty lonely, and was working a stressful night shift job so I assumed the depression, mood swings, and the moments of anxiety/panic were more related to those factors. I became concerned when I eventually tried to have sex and was unable to get hard enough. I let my doctor know of my concerns and we decided I should stop using finasteride for a while, this was mid October.

As soon as I stopped, I noticed a huge difference in how I felt. My head felt clear again and the strong feelings of depression and panic went away. It was really shocking how much better I felt and I am very thankful those side effects did not stick around. The sexual side effects did stick around but I have hope that they may improve. I started to pay more attention to my side effects once I stopped fin and realized that I was no longer getting morning wood, or night erections, no spontaneous erections, lost feeling in head of penis, and the only way I could get an erection was through masturbation although it was weak. These symptoms have stayed the same for the most part. I do notice that I will occasionally have morning erections and very rarely can get a spontaneous erection, but these are very weak- probably like half strength. If I masturbate I can get better quality erections, but these are only decent quality if im laying down- never standing or sitting. I still do not have much feeling in the head of my penis and can’t get hard enough for sex.

I haven’t tried any treatments yet. I’ve moved back to an area where I have social support, have taken a less stressful job, and have started to exercise more frequently and eat healthier. I’m setting an appointment with a general practitioner as soon as I get on my new work insurance to see if my issues could be caused by something else or if the doctor can help me in any way.

If you all have any advice for me I’d greatly appreciate it.


#2

Hi there mate,

Welcome to the forum. Your very early in your symptoms and so there is a good chance that you may recover naturally within the next 3 months.

If you don’t recover after 3 months then do not worry as some people have then had improvements in their symptoms over a number of years. There isn’t a cure for pfs/pas at the moment, but research through the pfs foundation is progressing steadily and a very important study by Baylor university is due to be released next year. There is also research taking place at the University of Milan and a drug called Sage 217 which is to be released in two years which many are excited about. If possible please can you donate monthly what you can afford to the pfs foundation as they are determined to find a cure.

Please also do take part in a project that we are doing on this forum to identify the genetic cause of pfs. The project is analysing genomes from members who have used the 23 and me genetic test and uploaded their data:

It is positive that your still having morning erections sometimes. Please do take a look around the forum and people have tried many protocols and supplements. I would try and be careful and research and discuss before starting a protocol to ensure what you are doing is safe. I would recommend kegel exercises, mindfulness for relaxation, and also taking things as easy as you can and trying to avoid stress. I’d recommend things that raise nitric oxide like pomegranate juice, raw garlic, broccoli to improve the blood flow in your penis. ED drugs such as Viagra and Cialis can also help with blood flow and just improving confidence. I’d also try and avoid things that inhibit the 5ar enzyme. You can search online for this information, but zinc would be an example of something to avoid.

There are plenty of reasons to be hopeful, and so please try and stay strong, but always get help if you need support and reach out to other members where you can.


#3

Hey I’m also in the same boat as you I think. Got hit by sexual side effects after quitting. You used Fin roughly 5-6 weeks… Good! Thats relatively a a short period but now never ever touch that stuff ever again. Judging by your story you don’t have brain fog or mental exhaustion! Thats a good sign.

As for the sexual sides, It will take the body some time to recover, do not take any other medication or herbs or anything… Let your body adjust naturally by working out and eating healthy. The human body is an amazing well oiled machine with hormones keeping the balance / emotions / pleasure etc in check! Fin has disrupted that system but I say give it some time, dont stress too much! Most probably you will bounce back. I learnt all this from some supportive gentlemen I met here :slight_smile:

I was freaking out too at first but now I feel much better. (I mean mentally, sides are there still. But i’m giving it some time too) If you have more questions ask the more experienced members of this group! We are here to help


#4

Canabis is totally right about relaxing and keeping stress to a minimum. However I wish that at the start of my post pfs journey that I would have taken more things to help with blood flow as I think my recovery would have been a lot quicker. I think even small amounts of Viagra like 12.5mgs once or twice a week would help, just to get the blood flowing and increase morning erections. I have found that some natural products such as pom juice and raw garlic can also have a similar affect. I’m taking L Carnitine too, but I don’t want to recommend that as I only started taking recently, but so far I seem to have had positive effects. I’ve had pfs for just over 3 years, but I seem to have finally started making some progress with my symptoms this year.


#5

Have you thought about low dose aspirin or pycnogenol for blood flow? I’ve been obessed with blood flow to the brain, so I take the above and I also actually use an inversion table every day lol


#6

Thanks mate. I hadn’t heard of pycnogenol and will look into it further. It’s also from pine and so I wonder what the diference is between that and pine pollen.