My problem...............advice anyone?

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#101

We need to keep all options open, because the origin of our wellbeing, might not be the the same for al of us(likely).

Lyme is responsible for causing low test levels in many men, when diagnosed with lyme.

However when you live in a big city, whitout all the green, and you are not to be found in nature, then you have nothing to worry about.
I like to fish, and tend for my herbs, i encounter tics on monthly basis.

However my test came back negative, but stil am looking for what test they used, for not all tests are reliable.
Only thing i,m positiv for is candida but this doesn,t worry me much, its not the cause of my problems.

cheers and keep an open mind

#102

Hahā€¦ do I need to make any comments on that oneā€¦ no i donā€™t.

#103

okay

some strange stuff has been going on with me. I came back to my apartment after being away for a week and i found a strange stain on my sheets of my bed. Now it wasnā€™t white before anyone makes a joke. It was orange and only in the area of my waist. It looked very bacterial to me. Had spread in a strange spotty fashion. Could this be?

I havenā€™t become incontinent just in case you think its urine. At first it looked like it had bleached the sheet. Theres no odour.

Maybe i should start antibioticsā€¦

#104

one of the first symptoms of lyme disease is bullseye type red marks
google lyme disease and view the photos
if you donā€™t have any of those marks itā€™s safe to say you donā€™t have lyme disease

#105
  1. It is very good to make self observation, even if it might sound rediculous to anyone. If there is inflammation process going on and you can become more and more aware of this from one day to another it is a huge step towards recovery. It will basicly make you see things from the slightly different angle then propecia itself.
#106

what iā€™m saying is the stains are on the bedsheetā€¦I have no idea how they got there. I donā€™t drink anything in the bedroom. It has happened to 2 sheets now. A blue and green one. Still the same orange mark. I only slept in one bed for the one night. Its very strange. The pain in my abdomen now feels very strange. I really canā€™t describe it but its not that painful - feels inflated.

On the upside work up today and my morning erection was getting very close to normal size.

If i sort the sexual stuff out thatā€™ll be one less thing to worry about. My eyes i really need to tackle to. I keep noticing this. One observation i have made about seeing different colours in each eye is that say i lie down and lean my head to the left and close my eyes for a minute the colour change becomes much more apparent and the normal tints are in my left eye and the matrix like green tint is in the right. This happens vice versa. Both eyes are capable of seeing the right colours. This doesnā€™t reflect the ghosting, glaring, halos, sensitive eyes. Thats lways there at the moment.

Another thing is i mentioned dry eye i think a while back and waking up crusty etcā€¦ The strange thing is wearing contacts for example should make it worse as it dries the eye out. It should really make them red but it doesnā€™t. In fact it kinda helps forget about the dry eyes. Of course if i wear them for to long its no help.

One theory i had for my eye problems is this: Finasteride causes dry eye problems which then could cause higher aberrations which cause the glaring, ghosting etcā€¦ But this doesnā€™t add up with the colours which suggests a more brain interpretation problem rather than an eye problem.
Could be a bit of both.

Anyway i ramble. Overall some strangeness, some success, some hope.

#107

if itā€™s in the waist area it comes from your penis right?
slap a condom on and get some of that stuff in there hopefully then test it or show a doctor?

#108

another update:

there has been no further improvement yet. I have noticed it is crucial to go to bed by 10pm and get up early. The xyrem alone is not going to do the trick for me. So plan is:

  • Continue xyrem
  • On antibiotics at moment for prostatitis although they havenā€™t helped yet. May be resistant or not penetrating.
  • sleep by 10pm
  • 3 meals a day. lots of fish, broccoli, cranberry juice, lots of water, no potato, no red meat.
  • walking
  • laughing

I think there is definately a prostate issue now as i need to go quite frequently and the flow rate is not as strong as it should be. The drugs are upsetting my stomach a bit though. The adrenals play a key role in this i think and i expect my recovery to be in reverse to when i got ill. I think hopefully if i solve the prostate problem that sexual symptoms will go first and hopefully if i reach that point the eyes will come back right at the end. As they got worse first.

#109

Been taking xyrem but no further improvement. Have been getting consistent morning erections and even the occasional spontaneous one which is good. Nothing else though. Still low libido and size still not back to normal. Hopefully in time. Eyes still messed and brain still not right. Recent bloodtests show everything hormonally and generally to be fine. It is not my hormones. PSA was normal. Prostatic symptoms seem to have gone after the antibiotic. Still eating lots of broccoli and cranberry juice though.

I am planning on seeing an eye doc soon and a neurologist. Are there any suggestions for what i should ask for or get?

Advice would be extremely appreciated.

#110

My situtation is quite similar. Bloodwork and hormones are fine, but function and the physical look and feel is not. Iā€™m guessing only time will help.

#111

So Xyrem has drastically improved your penis, sexual function, and erections back almost to normal?
How long have you been taking it?
And how bad were your sexual symptoms before Xyrem?

Does it just make you feel overall more relaxed? And do you have trouble sleeping?

Thanks man,
~B

#112

Not drastically but some. Morning erections are more common but still not back to normal and size improved a little but not much. It just feels like thereā€™s a little more weight down there.

Still find it hard to maintain any erection though.

Still feel fatigued, mentally and physically. Xyrem helps the sleep as i struggle if i donā€™t take it. I can wake up and find it very hard to even move. Mind and eyes - no improvement.

On a side note is minoxidil safe? Thinking of starting that.

Tried taking mucuna pruriens for a day to see how my body reacted. It didnā€™t really help so iā€™m not sure whether dopamine really is an issue. It was only for a day.

#113

update:

No further improvement. It is curious that i finished the doxycycline a while back and it could just be that it was that that gave me the improvement. I expect alot of heat from people when i say iā€™m going to look into the Chlamydia pneumoniae. The reason it may be true is that it is thought that it may play a role in chronic fatigue syndrome, fibromyalgia and even MS. If there is an infection it could be stopping people returning to normal. I have read of many little comments of people complaining of getting more colds and flus when on propecia so it could slip past.

look at: immunesupport.com/healthwatc ā€¦ terium.cfm

Iā€™m not saying this is the be all and end all coz thats just silly. But in those where hormones are okay and where antibiotics have helped maybe you should rethink. You have to make your own mind up. I may be wrong but its just another test to get done.

I saw an eye doc and next week iā€™m to get my optic nerve pathway checked and also the pathway to the brain. If the doc finds nothing iā€™ll be referred to a neurologist. Some progress i believe.

good luck all

#114

Youā€™ve really been through a long, hard road.

I was reading your posts and just stopped to wish you to get better. God bless you.

#115

thank you for your kind words.

update: pursued the c.pneumoniae avenue but was tested negative. The strange thing is though iā€™m on antibiotics at the moment - doxycycline and azithromycin and i have had improvements energy wise and with the quality and quantity of erections although they are better in the evening. Libido is also slightly better. I also had a brief emotional reconnection.

I donā€™t know why this is happening but i hope it continues to improve. Will stick to me immune boosting diet in case its a different bacteria. Also may start quercetin to also help.

#116

this may be the result of your body fighting infection , reducing non essential functions like libido in an attempt to gather more energy in attempting to fight the bacteria

#117

update:

Checked the test result for c.pneumoniae again and noticed they were testing me for pnemonia. They changed what was asked of them so of course i would have tested negative. Doesnā€™t mean i have it though. Just i may.

Having some reaction to antibiotics some daysā€¦a strange tiredness and a compressed feeling in my lower abdomen which feels strange upon masturbating. Erections are slowly improving except on the down days when it retreats.

Started quercetin.

#118

i always feel discomfort /pain on my low abdomen upon masturbationā€¦i never understood what it could be.
iā€™m not using any antibiotics now.

#119

i also noticed this pain in the lower abdomenā€¦ but it started about 2 month ago, never felt it before

#120

I feel the abdominal sensation is a good sign. This just may be it for me. Keep you informed.