My problem...............advice anyone?

Member Stories
#121

Well i’m back. Update:

I felt i was getting better and can definitely say antibiotics have improved some sexual function but not back to normal. I got a bit better and i said reconnected a little from time to time to things. I actually stopped xyrem for a while as i woke up refreshed without it. Urine flow rate has varied alot.

However! I have got more tired again due to lots of work and i feel its all disrupted my sleep again and things have backtracked a bit. Eyes have not ever improved but i’m still hoping. There is no damage so surely eventually it will go. It seems neurotransmitter related. And diet too has suffered. All these are essential. Exercise too. I remember after exercise getting a strange feeling in my head which seemed to connect.

I am hoping for a recovery like ithappens as i was improving. Thinking of restarting xyrem, trying to amend lifestyle and maybe pray…we’ll see. Hopefully things will click…

#122

I try and stay off antibiotics myself b/c that affects gut bacteria. If I took antibiotics for like a couple months (obivously under medical supervision), the gut bacteria would return back to normal right?

#123

of course.

I can’t think of any documented evidence that says they do not return.

I took minocycline twice a day for 9 months… no side effects.

Be careful as to what antibiotic you take.

#124

update:

well…i stopped taking antibiotics and sexual function got markedly worse. I am continuing xyrem (the one dose a night) as it just helps me get through the day.

Plan is to see urologist and ask why antibiotic improved downstairs considerably. With it i would say i went from 30% to 75% in terms of sensitivity, size and even semen volume.

Also i plan to get a sleep study done.

Anyone any ideas why antibiotic helped? Bacteria or just inflammation?

#125

I do not exactly understand your question. Bacteria or inflammation. If there is a sign of inflammation in your body, and you can actually feel it then it is due to either bacterial or virus that is the cause. There is no possibility of inflammation if there is nothing abnormal present in your body.

The idea of feeling better while taking antibiotics suggests that the process of inflammation that you are going through (if so) is rather bacterial. There is no anti-retrovirus mechanisms within antibiotics, because they fight bacteria.

Good source of natura anti-inflammatories is reservatrol. It will not cure you but it will help you to feel somewhat better.

It is present in Red Wine, Grapes…

#126

About feeling better on your drugs it could just be that most antibiotics are anti estrogenic. I remember finding that out when i tried to educate myself when coming off fin.

I think the reason they disscovered that was because of women getting pregnant while on the pill when they took Antibiotics (alltho dont quote me on that). Seemed to help the liver to breakdown estrogen faster and when doing so they negate the estrogen taken by these women in form of birthcontrol pills.

Estrogen metabolism… hmm sounds familiar.

#127

not true at all. take many inflammatory conditions such as arthritis, alopecia areata, ms, lupus, etc etc the list goes on. they all are conditions where the body is inflaming itself with no bacteria present. so in turn yes there very well can be inflammation without bacteria present

#128

Etiology of the conditions you list is not fully understood yet. It might be either due to bacteria, virus.
We do not know it yet as we do not understand etiology of hundreds of other disease.
Generaly the idea that something is definietely not due to the unrecognized pathogen, when the whole etiology is unknown is a quite foolish one.

#129

im sorry not trying to stir up an argument but this is just flat out off. So in essence since they are musunderstood they are assumed to be entirely bacterial, that is just not the case. Im not one to advocate what modern medicine knows or doesnt based on our cases around here but what any common medical sense states is that with inflammation in all these cases it is at the very least auto-immune. on top of that there is constant inflammation in the bodies of even healthy people, it’s everywhere. Digestion, disorders, bodily functions, organs etc all have processes of inflammation that have nothing to do what so ever with bacteria so in turn no, you are very wrong in this regard.

#130

You guys are spouting off opinions without any medical evidence to back it up, which makes it a “he said she said” scenario and ultimately, kinda pointless… such is life of arguing on the Internet.

I’d rather this guy’s thread not get taken off topic. If you’d like to argue about inflammation, please start a seperate thread about it. Cheers.

#131

yes it does seem like people are simply twisting the facts to fit their particular theory.

update:

Sensitivity has continued to worsen but now experiencing constant burning pains when urinating. I do get pains in my lower abdomen in the hypogastric regions especially if i try to masturbate which now is proving difficult yet again. What was happening with the antibiotics??? thats a rhetorical question but rather key. It shows treatment potential.

Really need to see urologist.

#132

I think i’m slowly getting better. I’ve been diagnosed with prostatitis and prescribed more antibiotics. Anyhow its been over 2 weeks of levofloxacin and erections are becoming more and more common and size, sensitivity, are also improving. I am even sleeping and i look a lot better and feel in my mind that things are improving day by day. Prostatitis is a hard thing to get rid of it seems but i know i can. I’m hoping the vision thing is also related but i am very hopeful overall. I had the best orgasm a few days ago. And lots of pearly semen. Things are looking up. Pray that things continue or for the atheist hope that probability goes my way.

I would advise you to get a rectal exam. Because it was inflamed, it was very painful for me and was uncomfortable for the rest of the day.

Happy new year.

#133

How long have you been off?

And when you say size has increased, do you just mean that erections are improving, or that the actual physical dimensions increased, as in a reversal of penile fibrosis?

#134

I have been off 20 months now.

Erections are stronger, fuller as in wider and feel less narrow and more fleshy than before. I am having a morning erection (a strong one) every day now. Whether there was actual fibrosis in the first place is a different question. There are no peyronie plaques if thats what you mean.

#135

Hi 19

Great to hear that you’re seeing improvements; keep up the good work. I’m praying for you.

Can’t remember if I’ve asked you this before in another thread, but I think you’re from the UK? I’m having terrible sleep problems, and am keen to try Xyrem, which I read that you managed to do.

Can you give any advice/help on getting hold of it? Are you going to a sympathetic doctor, or anyone that might also be able to prescribe it to me? I really think sleep might be key to my recovery.

Any help much appreciated. Thanks.

#136

That pretty much describes the problem I have. At this point I assumed it was some sort of fibrosis because, well, I can’t think of what else would make it consistently narrow and have that dense rubbery feeling to it.

I’m extremely glad to hear you’ve recovered from this; I haven’t come across many men who have on this forum or elsewhere. Thanks also for being so prompt with your replies.

Would you say antibiotics have been the largest factor in bringing you back? If not, what?

#137

hi 19,

are you taking anything else, other than antibiotics? I’m happy for you man that your situation is improving and continue to keep us posted. good luck. oneday.

#138

I am not currently taking anything but the antibiotics. I did take Xyrem and it did give me some mental function but it seemed like more symptomatic relief. It is definately the antibiotics that has made the improvement. Its not going to be a quick fix to get back to 100% as prostatitis is a bitch to get rid off but i will get there. Little things like drinking lots of water, wearing loose clothes, not sitting too long, avoiding some foods, emptying bladder frequently all need to be done.

If you want to get Xyrem you’ll have to convince your own doc. Mine wasn’t very willing and since it didn’t actually help me that much he wouldn’t prescribe it as readily again. I’m sorry i can’t help you in that regard.

I’ll keep you all informed.

#139

sorry i lie. I also take cialis one quarter of a tablet twice a week. Urologist said this would help. I must add though i didn’t start this until i got the constant morning erection. So the antibiotics are doing the majority of the work.

#140

ok 19, so thats why you’re getting such quality morning erections!!! :laughing: Ahhhh