Is it possible that chronic fatigue syndrome is the cause?
Yes! I think so too! Sleep is important. I realized my waking up in middle of night is altering my whole sleep pattern!
starting tonight i will sleep thru night and wife will handle baby. i will report out next week!
im so excited about this that i have had 3 erections over the last few hrsā¦and masturbated 2x! i think im cured!
For the last two days iāve been experiencing strange pain in my left side. Not sure if this is related to anything. I have a constant urge to pee although this only came about today. Maybe tomorrow things will improve. Also have been wondering about whether i should boost my testosterone with dermacine sustain. Testosterone has fallen to 21.5 (9.9-27.8). Just a few other observations - potassium at high end of spec, sodium - also high, bilirubin high - just over range, high rbc count - 5.5 (3.00-5), low mean corpusc Hb. conc - just. Neutrophils -low end of spectrum - other WBC fine. Glucose - fine. All these may mean nothing but thought iād say.
Does anyone have any suggestions for me?
I still have sexual problems - size and libido
eye problems - light sensitivity, dry eyes, different colours in each eye, blurry
mental function - insomnia, depression, flatness of mood anxiety, lack of concentration
other - seborrhea, noticed face is a little puffier - sags - am onl 19 - canāt be normal. Strange sensations in head - very central - not painful - pulse like - canāt explain very easily. Thin straw like hair - all over although fallout alot more so on top.
just feel like iāve aged so much
Any help? Would testosterone help - increase test ā> and LH and FSH ------> upregulate GABA receptors right? - would this help? Or should i wait?
It feels like my body just isnāt in balance whether it be adrenal related or thyroid but no tests have shown anything conclusive - both connected. Blood morning cortisol seems normal - waiting for evening result. I am also under a lot of stress at the moment which isnāt helping.
Thatās weird, I too have seborrhea especially in my scalp (donāt know if it was there before fin, maybe that was causing my hairloss and not MPB). In addition to the vision problems, my hair has also turned strawlike. Face is sagging too and lost its elasticity and form. I was sure it was a thyroid issue, but TSH, T3 and T4 were fine.
Will run progesterone and cortisol testsā¦donāt think raising T will help, as 21 is an ok value
Seborrhea is probably stress related but also hormone related and is also probably part of the eye problem. Thyroid and cortisol and testosterone are all interconnected. If cortisol is raised the thyroid struggles to fulfill its role and vice versa. The stress of the situation sends you on a spiral. The reduction of GABA-A receptors in the brain caused by allopregnelone deficiency causes sleep problems and anxiety which stresses you out increasing cortisol which in itself makes the sleep problems worse as it messes with the circadian rhythm. If adrenal fatigue sets in then the body canāt cope with stress which seems like a constant. Poor sleep means inadequate regeneration time. It takes a long time to recover from things. Depression leads to a decrease in monoamines which affects mood and lifestyle - leading to stress. I think stress is key. For example my body can not cope with stress esp. if adrenaline sets in. Also alcohol increases the amount of cortisol in the system which affects any recovery.
I tried progesterone cream with little success. I doubt anything will be found in the tests as if balance is the issue the results donāt look at the big picture only individual results. Maybe the diurnal regulation of cortisol is lost but iām still waiting on this. This is lost in chronic fatigue syndrome which is related to the imbalance. Also steroid users occasionally have similar symptoms indicating a hormonal upset.
Another thing i noticed was my blood sugar was ok in the morning - after little food - yet i am pale - must be cortisol or thyroid related. Increased testosterone may help in the GABA department which may help sleep. It may also further upset the hormonal balance. Hair loss in my case does not seem DHT related - its all weak and iāve often thought telogen effluvium - caused by stress. Testicular size is related to testosterone and if its metabolism is messed with through cortisol. Iāve speculated 5alpha reductase type 1 which is in sebacceous glands is relevant but iām skeptical.
My thoughts on getting better:
- Stabilise sleep pattern
- Exericise - not too heavily
- Eat healthy 80% veg 20% meat
- Reduce stress factors
- Laugh
- Consider sorting out hormones
- Avoid this website and be positive
This is my plan and i think as long as you stay positive - over time things will improve.
19 everything u listed is the same shit iām going through. itās all related to adrenal fatigue and cortisol being out of whack. the problem is once it gets as severe as it for most of us the only way to cure it or get by it is to go on some sort of drug protocol as in Hydrocortisol plus thyroid hormone etc. Trust me eatting right and living a healthy lifestyle will certainly help but will do very little to improve the problem at itās core. The advanced aging is pretty much permanent the more i research it
well at least the physical part is so iām looking forward to when iām around 30 i should looke oh about 45-50 by then.
If you have high cortisol hydrocortisone will not help - itāll make it worse. I have a within range TSH level. I think my LH and FSH are borderline low but testosterone mid range. I think you may be worrying yourself to death. My age issues seem to be just a puffy face - less tone and the hair issues. Skin seems drier as well. Stop stressing!
I highly doubt that if are experiencing chronic fatigue and other adrenal corticol symptoms you have high cortisol. Most people donāt realize that your cortisol varies on a 24 hour basis and the only way of knowing for sure is to take a 24 hour saliva/urine test where you give samples during different times of the day. You know the chronic fatigue feeling of waking up exhausted all the time etc etc thats because your morning cortisol is probably baseline, where even if it doesnt show up low in the 8 AM cortisol blood sample it is well below what it used to be pre fin. The reason why Hydrocortisol helps is because when you take two doseages within the 20-30mg range when you awake and at noontime, it raises cortisol levels and puts the stress off your adrenals of producing cortisol throughout the day. This helps in terms of giving you energy and helping your adrenals to recover. In terms of stressing well Iām not sure how long youāve been dealing with all of this, but I have been going through hell for the past year and Iām trying to get myself better. I donāt care what people say about stressing and looking at this site, if it wasnāt for this site and others out there where Iāve been able to gather information and share experiences learning of different ways to overcome this I would be even worse right now. If you want to be happy and maintain a positive attitude through all of this hoping you will recover you are more than welcome to. Just be aware a positive frame of my mind will most likely do very little to cure your problems, and in my personal opinion I donāt have years to see what will happen and if I will recover Iām not trying to throw away anymore years than I have to.
Any ideas on the skin-issue? Dry skin can be caused by many things including low T, but we donāt even have low T anymore. Low DHT? I also noticed that my skin is more red (especially the cheeks) than before
True lots of things can casue it but the issue for us or most of us i think is mainly low cortisol and or low thyroid function. Iāve talked and heard many stories of people with adrenal fatigue and hypothyroidism with dry skin who have had it reversed after getting their hormones back in balance.
At least my thyroid is ok, so that leaves the adrenalsā¦will look into that (again)
My eyes are 90% normal at the moment, donāt know if it just took time or did the meds help. According to the doc who examined me, there is nothing physically wrong with my eyes.
Any change in the trouser department? I find this the most disturbing symptom of all, my d*ck still points to the left, is darker and has those weird veins and is even narrower than before. I had a straight large vein on the top of my shaft before and now it sits pretty loose and you can actually poke at it and it will move on the shaftā¦extremely scary. I also found at least two hard ringlike tissue ādepositsā on the shaftā¦is this PD? It would explain the humble erectionsā¦
edit: eyes are not fine, the right eye still feels puffy and vision is not what it used to be
I thought iād give a one year update. For my past information please look at my other post in this section.
I am afraid to say there has been nearly zero progress. I still am currently suffering from:
Low libido
Shrunken genitals
Problems with vision - light sensitive, different colours in each eye, glare
and halos
Brain fog - poor memory, hard to concentrate
Depression - a certain lack of pleasure in things. But not full blown out
depression. Iām still trying to be positive.
Poor quality of sleep - i sleep but do wake up unrefreshed
Irritability
I would say there is a certain correlation between whats wrong with me and chronic fatigue syndrome but i am sure it is not the latter due to the obvious sexual symptoms which are not present in CFS.
I have seen a few doctors all of which have said give it time. My eyes themselves are fine. I have tried the following treatment:
- OXO-6 - i started this for a month straight after i came of propecia
- Sustain Alpha - on this at the moment - no change as of yet
- Mirtazapine- an antidepressant to try and relieve some of the symptoms and help sleep- little change as of yet
- Thinking about Roprinole a dopamine agonist as Onni tried it to some success
- Phenibut - just started.
- Tyrosine - took it for a month or two - little help
- Vitamins - ongoing
- Sleeping tablets - helped get to sleep but still poor quality - not on now
- progesterone cream - no help - not on now
I am growing very tired of these symptoms especially the eyes and mind problems. I do get some morning erections although quite weak ones and i do occasionally get the spontaneous one. I think my problem is complicated to say the least. I donāt think its a simple low testosterone situation. It strikes me as being something that could involve the thyroid hormones, cortisol (although this came back normal), dopamine, prolactin (maybe), and sleep.
Any advice would be much appreciated.
I can not think of what else i can do apart from GHB. I shall give my current regime more time before i look for that. I donāt know how long i can keep this up in general.
Thanks
I am sorry i do not have better news.
Sad to hear that. As your measured hormones seem very fine, it just shows that the problem is much more complex 
My hormones are at the moment far from optimal, but should not cause such horrible effectsā¦
I have come off all treatments. No improvement has been noted as of yet. Thinking of trying Xyrem. It seems if nothing else has worked it is my final option. Any ideas or thoughts?
Also experienced a strange dizziness, faintness and i actually puked up when i did anaerobic exercise. I did a bit of running before that as well but it was after the weights when i did puke up. It has happened once before when i was wrestling someone. To me it indicates a chronic fatigue like issue but not quite. Therefore xyrem which has on occasion cured people and definitely improved quality of life in patients with CFS seems appropriate. Also poor quality of sleep may indicate for this.
A bit more time has past and again there has been little improvement. If i donāt get up early i feel extremely physically drained.
I donāt really know what to do. A doctor has said go see a neurologist. Would this help?
I am so very tired of this. Self esteem is very low - the ED, the mind fog, blurry glary starbursty lights, the increased hair loss (there\s like alot of white crap in my hair - like the bottom of the hair. What does that mean?
But all in all I feel like a huge shadow of what i was.
Regarding the hair loss, I have been going through that for two years ever since I started Propecia. Itās been affecting all the hair on my body except for my beard. I also have the āwhite crapā towards the bottom of my hair which the dermatologist said is seborrheic dermatitis. They gave me some topical corticosteroids to put on my scalp which didnāt really improve things too much and I was weary of using the corticosteroids for too long. The leaflet that came with the corticosteroids said it shouldnāt be used for longer than 2 weeks in a row but the dermatologist had me on it for like a month at a time a few times. Unfortunately me and you seem to be in the minority around here in terms of the increased hair loss.
I know this ISNāT a hairloss site, but for the Seb Derm (white flakes), try rinsing your scalp in Organic Apple Cider Vinegar (Braggs brand if possible)ā¦ it does wonders. Also Nizoral and Head & Shoulders 2% Zinc shampoo.