that is the absolute truth … luckily, the foundation is working on fixing this in a big, big way
Actually they know already there is a difference in neurosteroid levels between PFS and control group. They know more than that too, they just haven’t released that information yet. The scientists are not as in the dark as you make it sound.
I hate to lawyer you dgreene but I said “we” meaning this group, not them lol
Yes, the diminished neurosteroid levels was a huge findings IMO, both that they knew to look for it and that the results confirmed what they believed.
Why will they be shocked? What do you know that the rest of us don’t?
haha, i am not referring to the scientists, i am referring to all of us on this board who think they are “in the know” and have figured this syndrome out with their google search, because they are not and it is nothing more than a useless distraction… and that is a fact, plain and simple …
I also agree that the problem is 100% neurological. that is why some peoples’ hormones are not decreased. something is not right with signaling. a curved penis means that something down the path of signaling is not working properly. sleep disturbances are pure neurological. depression and anxiety are also neurological. fatigue, muscle spasms, cognitive problems also and the list goes on and on. that is why people do not respond to exogenous administration of hormones. if they have adequate hormones but the signal is not working then the system does not work. It is like the nervous system attacks our own bodies every time we crash. muscle wastage and genital shrinking also point to the neurological direction as they can occur very rapidly. Muscle wastage due to low testosterone happens over time not overnight. That is why urologists and endocrinologists cannot help. Hopefully, top level neurologists and even psychiatrists could address the problem more adequately.
i agree with you…100 %
journals.prous.com/journals/serv … &p_ispdf=N can anyone actually read this?? this is very valuable information!
If it is 100% neurological what can we do to fix it ?
I do not know exactly, trying to figure out. right now im on bupropion and it helps tremendously. Im going to try progesterone cream, allopregnaonolone pills. if nothing happens, ill try selegiline and then the methylation treatment with active folate and b12. thats the only guns in my arsenal right now, until i find a top level neurologist to discuss about this and hear what is he gonna say.
I feel like I need to fix my penis and libido is coming back for sure! thats it…thats all I need my fucking normal penis again, cerebrolysin has helped me tremendously.
Interesting video here on Neurotransmitters. apparently Amino Acid can help restore Neurotransmitters.
i googled how to repair neurotransmitters and was reading up on the same thing last night “amino acid therapy” im thinking of going to see a naturopath and getting a comprehensive metabolic profile done,apparently if they can get all your amino acid levels right your neurotransmitters will start working properly again,it said even if half are damaged beyond repair once the healthy ones start working on all cylinders they will produce more healthy ones to make the numbers up,sounds to me like its worth a try…
Wow very interesting
I searched that too… and I found this web site, I´ve read it all and he talks about a doctor that works just with that and actually measures the leves of dopamine and serotonin.
bengreenfieldfitness.com/201 … our-brain/
Dr. Daniel Kalish is a real expert when it comes to neurotransmitter repletion therapy, and I’d highly recommend you visit the Kalish Institute website, read the Kalish Method book or speak with a licensed Kalish practitioner prior to experimenting too much with this stuff. Another very good resource to learn more about neurotransmitter repletion is NeuroAssist.com.
youtube.com/watch?v=zjdWxE7uUOc
It sounds very interesting…however cerebrolysin is basically made of aminoacids too…and im injecting it directly in the system, cant think of anything better than that. However he really sounds like knows what hes talking about.
can androgen deprivation cause dimmed night blidness vision and tinnitus? just wondering.
Anyone have lesions on their brain?
No? Ok than you don’t have MS
Wow that was hard…
I spoke with Dr. Roberto Melcangi on the subject. His research concerns neurosteroids and their implications in PFS and Multiple Sclerosis. When asked whether the diseases might share a similar pathogenesis, he responded that anything is possible due to the obscurity of both diseases. However, he said that in his personal opinion the diseases are “very far”.
There are studies suggesting that low androgens were fundamental in causing MS. There are also studies which demonstrate low neurosteroids in MS sufferers. Allopreg is neuroprotective, as is DHT. So 5-ARI’s would have detrimental effects on neurogenesis and protection. That said, there must actually be active degeneration in multiple sclerosis.
I personally think there is certainly some overlap between MS and PFS. As the others who have posted before have stated, MS involves actual evidence of demyelination. If any of you reading my post have had evidence of this, please let me know. It would help in further research.
Taking GABA enhancing substances like glycine, l-theanine (from green tea), niacinamide, etc., as well as 5a-DHP might help.
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He never replies anymore. Apparently he is doing well now.
I do wish he’d check in with us.
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Im agree with you there is a huge overlap its worth spending time on it.
- Low vitamin D
- Both associated with low testosterone levels
- Anxiety and difficult of speech
- Bothrelated to inmune system