Yesterday I met with a Dr. Yonah Krakowsky at Mount Sinai (same clinic as Dr. Keith Jarvi). Sadly it was about what I expected it would be. He was very sympathetic and kind, even going so far as to call my GP and confirm a DX of PFS. Unfortunately he told me that the prognosis wasn’t good and that there wasn’t much he could do. He recommended to my GP to let me try methylphenidate for my EF problems and also Fibanserin to see if that could help with my libido. Beyond that he said I could try Yohimbime.
It was nice to have someone validate my experiences in person, but it was a bit of a crushing blow at the same time. Not feeling to great about it all.