Mens Rea's Battle against PFS.

21/6/11

Just back from urologist.

Man oh man, what a difficult session. I now understand exactly why some guys have almost blew their brains out over this shit. Trying to reason with some medical “professionals” is simply impossible.

Anyway, so i went in. I hand him my referral letter with a few letters from my endo (That were sent to my GP) and he has a read. He then asks me “so what erection problems are you having?”. I explained that they haven’t been the same for a good 14 months (since March 2010 when i stopped fin for this reason). I then tried to mention my other sexual sides, he interjected and “explained” that finasteride can cause “irreversible” sexual dysfunction to a small subset of men and that he is very aware of that. He seemed to imply that he has seen it before although ultimately he said he’s been prescribing finasteride for a long time.

Anyway, i obviously too issue with this “irreversible” thing and said “well, many guys in my shoes also recover, so i don’t think we can say ‘irreversible’ especially when unsure of the mechanism of cause right now”. He clarified that he meant a small group that don’t recover, ever. He then “explained” that “all finasteride does is block the DHT conversion from T”. I, without any form of confrontation added that it actually “also blocks the conversion of progesterone into dihydroprogesterone and also blocks synthesis of the critical neurosteroid that is allpregnanolone”.

At this point he said “ok, so i take it you’ve been doing alot of reading about this. Are you still taking cialis?” I told him yes but i found that i had to cycle it to get decent effect otherwise things tail off. He asked why don’t i take it every other day and i said my experience was the more i take it the less it helps. He “disagreed” with me and told me that’s not possible, that the effects cannot wear off and that any such experience is placebo. He went into detail about how the enzymes worked to make that a physical impossibility. Supposedly. Again, I ensured to stay composed, retain a very unconfrontation tone and stay articulate despite it being clear he had already made his mind up. I said “well, I can’t comment on the science of it, simply that that was my exact experience and one that ive read many other men also having” …i even reiterated that i “didn’t know much about the science side of this”.

He then said “so anyway, what do you want ME do to?” again. I said, “well basically we know that finasteride is a prostrate drug that affects the prostrate, we know that this is where semen fluid is made and we know my symptoms are sexual and definately physical…i wanted to get a prostrate screening”. He asked “why, exactly?” and i told him because i wanted to check for any irregularities and potential inflammation or enlargement. He said “but you don’t have prostatitutus”. I said “how do you know?”, and he said “because you don’t…I’m happy that you inherited this problem from finasteride and you are in this subset of men but hopefully you recover”.

I then said “yes i am in that subcategory of men but many are presenting with prostrate problems, myself included…i think that warrants prostrate screening of some sort”. He again said “but these problems are from finasteride not prostatitus”. At this point i knew it was a losing battle and there was no chance of him playing ball so i figured i’d atlest try, respectfully ofcourse, get my point across given it might help a future patient.

I said to him “Look, i appreciate this isn’t your everyday case, but I’m asking you for a transrectal ultrasound to see what comes up, that’s all…”. He said “i don’t like where this conversation is going to be honest…you came in to me with a preconceived notion about things…but really, you need to accept you have taken a drug with sexual risk and you have these problems”…he continued “you’ve became obssessed with this and i think you’re on a dangerous path.”

I then said “so how can you sit here and tell me i don’t have any prostrate problems when i’ve got prostrate pains, sexual dysfunction and messed up semen quality?”. He said “because im the expert and im telling you you don’t”. I then told him others have had their prostrates screened and some have found inflammation and they treated it with a cocktail of antibiotics and massages. He interrupted and said “i know how to treat prostatitus”. I just about refrained myself from telling him he probably doesn’t really :smiley:

Instead I said, “how can you tell, sitting here” that i don’t have bacterial prostatitus, even? Without looking?". He reitterated that he’s the expert and that i don’t have the symptoms. I said “well i appreciate your opinion but i am sitting in front of you and telling you i’ve got physical problems that i want to you help me with”. He replied that i’ve probably made things worse by worrying about it. I said "it’s hard not to worry about things when you have shooting pains in your penis, penis tissue change, watery semen, ED and prostrate pains…‘how can i think this up’? " There’s no way he believed me completely DESPITE me speaking excellently (im a solicitor i know how to communicate professionally) and being well presented. I said “well, I’m assuring you these problems are real whether you believe it or not”.

He then said “Look, as i said, you’ve taken this drug and this is where the problems have came from, hopefully your system will clear out over time”.

We interchanged for a few more minutes, he said he wasn’t going to “take this any further” but that he also wouldn’t charge me for the consultation. He suggested I stop following this avenue up to which i said “doing nothing hasn’t got me far yet…as a 25 year old man you should maybe appreciate that this is difficult to for me and i want to do everything i can”. I then shook his hand and left with a sour taste in my mouth…basically in disbelief of what just happened.

Let’s recap: he’s know finasteride can cause persistent side effects, he’s SEEN this before, but didn’t care to look at the prostrate “because finasteride causes these problems”. How is that logical? Yes, finasteride does cause these problems…it’s a fucking prostrate drug and it messes with the prostrate. He clearly was a very intelligent man, too, that was the most difficult thing to swallow.

This sucks. He’ll now write back to my GP basically telling my GP that im crazy to be asking for a prostrate exam. I appreciated him not charging me but I’m getting fucking sick of these ego-maniacs with this face to face diagnosis’ and continual self-preservation regarding their “expertise”. It could even be difficult to get another GP referral after this. I’ll tell my endo what has happened and hopefulyl he will help out. If not ill try another urologist.

This is exhausting. I now realise how lucky i am to have a semi-decent endo who actually takes me seriously and admits this thing is complicated, as opposed to someone who is more worried about being seen as not knowing everything. I also realise how difficult this coudl have been without having that endo - having continual knock-backs from the beginning must be soul destroying for many guys. I now appreciate the feeling. I cried in the car in sheer frustration about how all this is turning out but im now more motivated to try recover through living good etc, too. I need to keep a good mindset and keep chipping away at things.

I do worry about where this is all leading if im honest but right now there’s zero quit in me. If the does ruin my life atleast i’ll have tried my best to fight against this hell. If i can even make small improvements ill be happy to be honest, i think i can attain that through very good living and exercise so i’m going to attempt this.

Disappointing overall, though. I think i need to start realising how difficult this whole thing is to get good medical attention. Sexual health is something medical professionals seem to care about very little beyond STD’s and prostrate cancer…and selling you cialis!!! Cruel world but i’m here now so gotta roll with it. Greece mightn’t be too far away…

Over and out.

You’lll try another urologist?.. Uh hopefully its Dr. G, other-wise you are wasting your time/money and energy… The things that uro said were unbelievable though… I would have just sat there stone walled and stunned like I usually do when docs tell me there’s nothing wrong with me.

Why not? The ultrasound is recommended before seeing Mr G anyway, right?

I’m seriously considering a week to Greece, holiday, and get a diagnosis from him, though. Then go from there.

As you say though - the things he was saying were unbelievable. There’s such an inbalance in a debate between patient and doctor so we can’t even really say much. If you do “disagree” with them, even you are 100% sure of your personal experience, you simply lose credibility and they won’t do what you want. But yet what’s the point agreeing with them if they’re wrong and they’re going to mistreat you (or not treat you!) anyway? Lose lose.

Well as you can see from others, some of there trans-rectals come back normal, which im about 95% skeptical about… I honestly believe that uro’s have no clue what the hell they are looking at when it comes to inflammation… I agree you should take a weekend and get a diagnosis, that way it will at least give you some peace of mind… I know this discovery has given me a lot of POM.

A urologist told me once, that " I have 5 fingers and everyone of them is different" that was his explanation to me as to why I was fine… I still to this day have no idea what in the hell he was talking about…

First off, you acquitted yourself admirably and quite knowledgeably in front of an “expert”. Seems he wanted to remind you who’s the boss in your conversation.

Just wondering:

i) did he know you were a solicitor? I had a similar horrible experience with a urologist in feb. as a matter of course he asked me what I do for a living. i told him (lawyer). seems his tone and demeanor changed after that. the fact you werent charged may be because he wants no record of your consultation in his books. just a thought.

ii) cant you get a requisition for a TRUS from your family physician?

i) I don’t know if he did or not but i wore a suit and definately presented well. I’m not convinced he would have a different tone for anyone but I may have been wrong. I guess im still young at 25 so it still can be difficult to command respect from a 50+ year old “expert”.

ii) I don’t think so. I’ve asked my endo to speak to another urologist directly. We’ll see if that can lead me somewhere.

Ultimately its just so bloody sad that every “expert” that we ask for help ends up disliking us or being unable to resist an argument with us. It seems that any complicated cases like this simply irritate them. It’s a travesty.

This is why this whole post finasteride thing is such a nightmare. You can’t explain to anyone what’s happening to you. So cruel.

Yeah, i know.

By the way guys i’ve given up on the Progesterone for the time being. The 1% cream isn’t enough. I might revisit this.

I experimented with a large dose of pregnenolone last night (TD preg)…about 800mg. Previously i was applying up to 400mg 3 times daily without effect which was why i stopped. There are guys, including Chilln himself, who seem to be bad absorbers or need much higher doses for some reason. It looks like I might actually be one of them afterall. I’ll not jump to any conclusions after one night but after having literally a month of by my recollection practically zero noctural erections and libido, i had erections all night, woke up with one (weak) and have had libido all morning. I think that warrants more experimentation. So there ya go, all is not lost. Edit: even my penis is fuller. Much fuller.

The fact i am able to boost my sexual function alone proves that my urologist is wrong in that i “should accept what this drug has did to you”. I mean, how can you say that without evne testing me. The more i think about it the more angry it makes me.

If Irwig and Traish hadn’t published their papers, your urologist would have told you: “fin cannot cause these problems, it must be prostatitis, let me examine you”
But since Irwig and Traish published their papers, your urologist told you: “fin is the cause of your problems, but they are irreversible, so live with it, I won’t examine you”

Brilliant

1 Like

Yep, that’s it.

It’s sad these guys are so thoroughly unimaginative and non-innovative that they simply have no ideas of their own beyond the antiquated concepts they adopted early in their careers. They take lead from other doctors who actually do have the brains to look beyond current understanding. The real top doctors look at things with an open mind and understand that the literature is always lagging behind for obvious reasons. The “experts” let the good experts take the lead

The reality is that these guys make big money and are busy doing what they do. There is zero pressure on them to “update” their thinking or indeed, revolutionise things. They are comfortable doing what they are doing and anything outside of that is an unwelcome, challenge; a threat. I understand this.

It is what is it. I can tell quickly how good a doctor is by how receptive they are to ideas. The doctors who are open to an open dialogue are almost always the most exceptional.

Oh yeah i just recalled another “interchange” that myself and this urolgoist had.

He asked about my hormones. I told him they are slightly irregular in that my T/DHT/E2 are all very high for the normal person. I then voiced my concern that high DHT and high E2 are the two perfect things to cause prostrate issues.

He said “why?” in an almost sarcastic voice. I said, well, because they are…DHT is attributed to being a factor in prostrate cancer (and general enlargement) and now there is a leading school of thought that estrogen is also a strong contributer if not the main one. He baulked at this and said “prostrate cancer is hereditary”. I said “yes, it is, but these are the links that seem to be arising in the literature” and said that just because it was hereditary didn’t mean there weren’t clear reasons as to what directly causes these problems. I don’t know what he made of this but I doubt he agreed…

I emailed my endo about my visit with the urologist. He said he was sorry to hear about that and is contacting a better Urologist who he knows personally to see me. Great to have someone on your side!!!

On another note. Despite my initial burst of libidio and abatement of shrinkage, i must have had a mini-crash last night because i actually had a tiny erect penis and very watery semen last night. I aslo had a bad night even after lots of preg. There is something seriously wrong in my body; maybe i’d be better trying to let if slowly heal naturally because in fairness my semen has slowly recovered since Nov/Dec time.

Getting my bloods tomorrow, i’ll see what my E2 is. I’ll try aromasin if it’s still high and ill try stablise my E2 for a month or two to see how that goes.

You clearly had to deal with an egotistic asshole. You come seeking help and bring excellent arguments for him to check your prostate, but he refuses only because he thinks that he’s the expert and you should just shut up and stay at your “ignorant patient” place. Any REAL doctor with some of the Hippocrates (of Kos!) ethics, would have made the prostate examination, what the hell could it cost him??? I have dealt with many of these arrogant, egotistical doctors and don’t want to have to anymore. This is why I’m going directly to Dr G and not even trying to diagnose the prostatis in France beforehand.

Just got in the post:

  • Letter to book my Glucose resistence test

  • Ultrasound dates for Testes and also for abdomen and pelvic area.

Are these necessary??

Why not get them? anything for further diagnostics. However you may want to get a TRUS instead of just an abdomen scan, if you can

Yeah, blasé has had an abdominal ultrasound done that barely revealed some of the inflammation on his prostate, whereas all inflammatory loci were very clearly shown by the trans-rectal ultrasound (check out solonjk prostatitis thread)

Will the ultrasound for pelvic and abdomen area include my genitals then?

My uro checked my genitals also with ultrasounds.
You can ask to your uro to do it, he did it with the abdominal probe so once it is on it takes just a few more seconds.

Update:

Since the start of this week ive been taking aromasin. Tiny dosages (via liquid) about 6.5mg ED.

So far so good. Definate improvements in erections and libido.

I had a nights drinking on tuesday, the next afternoon i took a levitra. I could barely get my erection away to pee. The first time that ever has happened to me post-fin. Encouraging.

Despite that my penis continues to throw some ridiculous shapes. It’s continually fluctuating; it’s hard to keep up with.

So right now between aromasin (and prior to that proviron) and cialis/levitra i can get by. It’s probably a band aid, we’ll see.

Last night i got very strong libido, strongest ive had this calendar year. Again, i’ll attribute that to the initial benefits of the aromasin and the reintroduction of regular cialis.

I am beginning to think if i cannot mount a sustained improvement in the coming months that Greece is my end game. I’m making friends with that idea. A 4-5 week holiday in Greece wouldn’t be the worst thing in the world, i’d try make it as a positive experience as possible.

Lastly, i got my last oestradiol reading back:

140 pmol (<156 pmol/)

IN RANGE.

That said, that reading was at 12.30pm. So not sure how reliable it is.

Just to say that 6.5mg ED of aromasin isnt exactly a “tiny dosage”. That would be 6.5mg E3D. Remember exemestane is quite potent (but being a suicidal inhibitor of aromatase, can take longer to reach maximum effect than anastrozole).
But whatever works for you… Although, you should lower the dose if you notice “dry”, creaking joints, and lowered libido, signs of excessively lowered levels of E2. I think it could be better to adjust anti-estrogens based on symptoms rather than on labs.
Oh, and I definitely think you should join the “Kos brotherhood” ASAP
Remember that the “band aids” might help with the symptoms, but during this time the underlying condition (if you indeed have chronic prostatitis) only worsens, and it will be more and more difficult to cure it.