When reading the article, I saw the same supplements being used for methylation treatment that many of us have seen some limited short term success with. These include b12, folate, cysteine, taurine, DHA, zinc, magnesium, etc.
I assume if we take a measured combination of them, as they may prescribe, and we frequently take all of the right tests to measure methylation, gut bacteria composition, hormone tests, and whatever else they look at, we may be able to keep them in balance, or at least identify what’s changing and put us on a path forward.
In all the months of reading about truvada/Prep, I haven’t seen a lab result that measures a positive hormone result, or anything else other than reported “improvements” and definitely not one that shows anything about methylation. I’d hope we can capture what specifically changes.
I think if methylation is a major contributing factor to our condition, we should be able to see/feel improvements when we reduce it either overall, or specifically to the “offending” gene, and to clinically identify that reduction.
In other comments, several others mentioned they felt better when taking antibiotics. If they had a full series of blood/urine/saliva/gut flora/semen, and even brain scan tests each day they were on antibiotics, do we think we’d see any changes from baseline? I would really hope we did, just like I do with this
I have my path going forward, and it’s to:
-take a series of (expensive) tests from this company to identify any possible known DNA virus, among other things:
-Get DNA tested specifically for Methylation (expensive)
-Take another 23&me test (last one was also post pfs, several years ago) just for another baseline
-Get a full array of labs, bloodwork, saliva, cortisol, adrenal, hormone tests, etc…
-Get treatment/diet/supplements from a Doctor like the one listed in the article, who I’ve already reached out to (https://www.drkarafitzgerald.com/) or an equivalent doctor with a more science based approach
-Very regularly (daily/weekly) take the labs mentioned above to see what the effect of the treatments are
Two months of this could cost upwards of 15k, due to overpriced labs and doctors not accepting insurance, but after more than a decade coping with pfs, I’m running out of options.
If anyone has suggestions to include, or knows of less costly DNA labs, or other doctors in the NYC area, I’m all ears. If you think I’ll be wasting my money, I’d like to hear why too.
Thank you in advanced, comrades.