LazarusRy's PFS journey

Makes you wonder what future historians will think of our plights. There will be no forgetting about us because the internet creates a permanent record. Maybe it will be taught about in schools in the distant future.

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Dear Lazarus,

My heart bleeds when I read this. You’ve been there for me, and everyone else here, to the best of your ability. Even in spite of your own immeasurable suffering, you endured for us. I’d hate to ask you to endure a bit longer, because I understand. Sometimes the suffering is too much.

But with the new research coming up, raised awareness and new medical revolutions like CRISPR that are basically around the corner, there’s a tiny silver lining around that gigantic supercell that completely pours over your and our lives at this moment.

Even though I don’t know you, you are one of the strongest human beings I have encountered. I hope, sincerely, that you can experience some relief in the short term as to improve your outlook.

I will light a candle for you.

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@LazarusRy
Your strength in the face of what’s happening to you, is beyond admirable.

I can only pray that, like the Lazarus in the Bible, a miracle is in your near future. Stay strong as long as you can, Jim

Edit to add: This forum needs a “sad face emoji” beside the heart. God knows it would get plenty of use!

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Yeah something to connote empathy. At least it’s a heart and not a thumbs up.

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@LazarusRy I just want to echo the others’ statements and say that you’ve been one of the most positive members of the community despite your tremendous suffering. You’re one of the bravest people I’ve ever seen and are the true embodiment of a hero. I totally understand how you feel right now but I do believe there could be hope for us as @Crembo pointed out.

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I want to add to what others have said here @LazarusRy. We haven’t spoken but I have read a lot of the forum and you are always such a supportive, kind voice to others despite the hell which you endure so courageously each day.

I really do believe there is hope for us in the not too distant future. As you wrote recently elsewhere on the forum:

I send you strength to try and carry on and keep you in my thoughts. As @Toughluck24 says, you’re a true hero.

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Dear Ryan,

after your dramatic post two days ago, I think we are all concerned about your current condition.

Hope you feel a little bit better with your actual problems and you have arranged support and the things done that have to be done.

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5:47 PM here Middle European Time. You have been seen 46 min ago. So everything is going on. Still on board today.

That’s fine!

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Thanks for thinking of me and checking @Exsexgod

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GP was talking about admitting me to hospital this morning then when I spoke to him later he decided that more enemas were appropriate and
told me to go to A and E over the weekend if things haven’t improved. It looks like colonic irrigation on Monday is my best bet. The Gastro referral came back stating SIBO seems to be the flavour of the day and said it was very unlikely to have it despite having every symptom ffs.

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My Doctors answer to PFS, he’s on the ball and very open minded

DJs6s6YUEAAJeOO

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It’s not talked about a lot but PFS can be fatal without suicide, my testosterone level got super low out of the blue 15 years after taking propecia. Low T levels increase your chance of heart attack by 20 times the average person

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I have no doubt there will have been deaths outside of suicide a guys spouse reported a near fatal heart attack on here 2 years ago. I had testicular cancer because of fin in 2006 without vigilance and treatment it would have spread.

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@LazarusRy
Yes I have instructed my wife to leave a message when I’m gone. I expect a heart attack will be my end. Jim

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I used to be active on a video game forum back in 2013; so bizarre it feels looking back reading my old posts there. I used to wonder about those who became inactive there. Today, I now wonder much more about the inactive members here. The atmosphere is different; different beyond culture shock. I doubt you inactive brothers (sisters too) will see this, but realize myself and others think of you. Dear active members, remember this when becoming inactive, we will be thinking of you.

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Well the therapist was shocked that I’ve been left like this. The procedure was pretty bad considering how much waste has accumulated. Since the clear out I noticed my hands have become extremely dry and tooth pain has kicked off. No positives to report as yet apart from the knowledge that I no longer have that level of toxicity sitting nside me. I’ll report any further changes as and when.

It’s now two days since the procedure The crippling bone pain has receded to a manageable degree. I’m able to walk I’ve got slightly more function in my elbows and my hands don’t feel as boney. My mood has improved slightly and my eyes are wet I even had a twitch downstairs. This tells me that the blocked colon/ disfunctional intestine is causing widespead inflammation (bone, muscle pain are common in IBD). I intend to have another in a few weeks and will push my doc for an appointment with a gastro specialist.
I’d recommend this procedure to the sufferers who are in a similar position. @hippydoof @Headpressure, when all seems lost!!! The gut is key to alot of our problems and healing it is key.

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Does your gut feel any different…less bloated or anything? I ate a ton and shit almost not at all during my first month of PFS but never felt bloated like normal constipation. Wondered where all that food was going.

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I’m so happy to hear this worked for you laz and helped to some degree! Any improvement is a gift. I am going to have this done the gut is a huge role in how we feel and it triggers our entire way of being. Dr’s even refer to it as our second brain.

Please keep us up dated with the treatments. Praying this stays positive for you bro

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Thanks for the suggestion:) Great news that it’s giving you some relief!! Definitely a big connection, whenever I eat like crap my intense debilitating head pressure gets worse.

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I just had the first relief on my head pressure and tinnitus. 4khz tinnitus sound cancels out tinnitus in my head. And sleeping with a delta wave playing lead to reduced head pressure today.