La mia storia dopo oltre 22 anni di fina e anti dht

Member Stories
#1

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)? Italia

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) attraverso un forum italiano ho scoperto questo forum

What is your current age, height, weight? 46, 170 cm, 63 kg.

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? Finasteride + saw palmetto

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 1mg. + 320 mg. Saw palmetto

What condition was being treated with the drug?debolezza e tristezza

For how long did you take the drug (weeks/months/years)? 22 anni

Date when you started the drug?2002

Date when you quit the drug? 10/07/2024

Age when you quit?46

How did you quit (cold turkey or taper off)? Cold turkey

How long into your usage did you notice the onset of side effects? Calo libido ed erezioni spontanee

What side effects did you experience that have yet to resolve since discontinuation?tutti

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[x ] Loss of Libido / Sex Drive
[ x] Erectile Dysfunction
[ ] Complete Impotence
[ x] Loss of Morning Erections
[ x] Loss of Spontaneous Erections
X[ ] Loss of Nocturnal Erections
[ x] Watery Ejaculate
[ x] Reduced Ejaculate
[x ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ x] Extreme Anxiety / Panic Attacks
[ x] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[ x] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[x ] Weight Gain
[ ] Gynecomastia (male breasts)
[x ] Muscle Wastage
[x ] Muscle Weakness
[ ] Joint Pain
[x ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ x] Persistent Fatigue / Exhaustion
[ x] Stomach Pains / Digestion Problems
[x ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[x ] Frequent urination
[x ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?integratori di vitamine carnitina, arginina, vitamina D

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)? Testosterone libero a 291 dopo la sospensione

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

Self-reporting template - ONLY USE FOR FUTURE POSTS TO REPORT ANY TRIALS OF TREATMENTS, NOT YOUR INITIAL MEMBER STORY

  1. Name of the therapy/substance: finasteride + Saw palmetto
    • Dosage: 1mg. Finasteride - 320 mg. Saw palmetto
    • How often you took it:finasteride tutti i giorni per 22 anni, saw palmetto tutti i gironi per gli ultimi 4 anni insieme a finasteride
  2. Status
    • Still using [ ]
    • Stopped with no lasting change to initial symptoms [ ]
    • Stopped with persistent change to symptoms [ x]
  3. Duration of use: Days [ ] Months [ ] Years [22 ]
  4. Response when you started:
    • Greatly improved [ ]
    • Slightly improved [x ]
    • Stayed the same [ ]
    • Slightly worsened [ ]
    • Greatly worsened [ ]
  5. Current response (if you’re still using the therapy/substance) OR Response in the time before you stopped the treatment
    • Greatly improved [ ]
    • Slightly improved [x ]
    • Stayed the same [ ]
    • Slightly worsened [ ]
    • Greatly worsened [ ]
  6. Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
    • Greatly improved [ ]
    • Slightly improved [x ]
    • Stayed the same [ ]
    • Slightly worsened [ ]
    • Greatly worsened [ ]
#2

I was just reading your post on the other thread about your symptoms. Your case is the most similar to mine that I’ve come across. When I joined here I thought there’d be more like this…decades of usage followed by a full body-wasting crash. It’s a patient profile that seems to be overlooked and underreported.

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#3

Già ma comincio a pensare che oggi per chi sta nelle mie condizioni non si tratti di gestire il post finasteride sotto forma di depressione o calo della libido oggi il mio problema è di essere un invalido malato di qualcosa molto simile alla SLA. Infondo il pene è un muscolo e se si atrofizza possono essere nello stesso stato anche altri muscoli come le braccia, le gambe, l’esofago ……

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#4

We might have a translation barrier but I agree these symptoms are not addressed by efforts to manage depression or libido.

#5

Come ti senti adesso? Cosa stai facendo per la tua salute? Quali sono i tuoi problemi principali?

#6

My main problems are basically everything you listed plus a few others. I don’t do anything for my health, my body doesn’t seem to know what health is anymore. I still mountain bike, ski, and run at reduced capacity to pass time and keep a routine but since PFS they no longer seem to contribute to my health.

#7

Stai benissimo! Io non riesco quasi più a camminare ho gli arti inferiori atrofizzati un dramma incredibile

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#8

I was exactly the same. Now much better but still with a lot of issues. My experience was a total nightmare a terror film. Have faith on a very slow recovery.

#9

Grazie

#10

I was the same and keep some of these problems but now much better. If I don’t make exercise as walking the next day my muscles are so weak… it is a daily battle against the drug. But it has improved quite much

#11

Ma se si tratta di’ infiammazioni autoimmuni integrare vitamina D può’ peggiorare la situazione? Io sono solo alla nona settimana quindi il mio percorso è ancora molto lungo e devo avere pazienza nel recupero. Ho paura di assumere integratori ulteriori alla vitamina B. Anche se mi hanno diagnosticato artrosi tramite EMG che va a infiammare tramite anche e ginocchia i muscoli delle gambe limitando certi movimenti ed indebolendo i muscoli. Che mi suggerisci? Grazie

#12

PFS can create autoinmmunity. Check Coimbra Protocol in internet and you will see many answers. You can ask me more. Buona giornata

#13

Almost all autoinmunes diseases can be recovered with high doses of vitamin d. Check protocolo Coimbra

#14

tu hai seguito il protocollo Coimbra?? io ho paura di assumere così alte dosi di vitamina d3 penso anche che alla sospensione il mio corpo dovrebbe nuovamente adattarsi e potrebbe avere un nuovo calo dovuto alla fine dell’assunzione massiccia di questa vitamina. sono soltanto alla nona settimana ed ho dolori meno intensi e brucianti rispetto alle primissime settimane ma comunque permane una debolezza di base ed un dolore di fondo che rende difficile tutto

#15

Io lo o fatto. Not everybody needs so high dosis. It depends of your illness. And in theory you need to keep there forever.

PFS created me ulcerative colitis. Bastards!! So I don’t have many options. They control your blood every 3 months.

On the other hand I recommend you to throw to the garbage the arginina. You feel much better with it but it creates a reactivation of herpes virus as HHV6, Epstein Barr or zoster that go directly to your brain and create inflammation.

This is something that you can check in bibliography but I tried my self testing to recover from PFS I had clear reactivación of virus because the arginina

#16

anche io ho problemi al colon da quando ho PFS ed ho notato peggioramenti quando ho preso flaconi di arginina identica sensazione. infatti ho buttato Arginina. invece sotto l’aspetto della circolazione del sangue noto che le gambe sono meno vascolarizzate in generale tu hai notato la stessa cosa?? cosa hai fatto se hai avuto questo problema?

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#17

Lo steso. Exactly the same. . Weak muscles and circulation problems. I have now varicose veins that I had never before. I am using cilantro and mariendistel in order to try to clean my body. And NAC and ALA for the brain, but with those you need to be careful and know how to use them.

Most doctors don’t have a clue and if there is anyone able to do something for you is quite expensive (it is like a Messy of the medicine) maybe you could try with someone of the medicine integral

You can also ask me, I can share my experience

#18

After almost 2 years I am felling some important improvements. Mostly the last month’s. Also as you can rear with others after improvements there are crashes and you come back behind.

Finasteride has also created me RLS and a general inflammatory condition with low serum iron.

#19

identiche sensazioni un giorno sembra che ti molli poi il giorno dopo invece sei di nuovo nel baratro. infiammazione generale anche io nessuno ci capisce nulla. gambe senza riposo anche io. a cosa attribuisci i miglioramenti dell’ultimo mese?? pensi che il tempo da solo faccia qualcosa??

#20

mi farebbe piacere se condividi la tua esperienza. grazie