I might have kidney disease

[Lostinaustin]

Do y’all have foamy, bubbly urine?

[AaronF]

Yup and dark no matter how much water I drink

[LazarusRy]

Yes to both cold limbs, ridged nails you name it all of our symptoms drop into kidney disease. Unfortunately I think the only treatment we could tolerate without kickback would be dialysis. Think my kidney function is getting to that point convincing the hospital is another matter

[orthogs]

@LazarusRy

Think my kidney function is getting to that point convincing the hospital is another matter

Have you had a recent blood test with ACR and GFR ratios? I would advise avoiding jumping to conclusions about kidney health based on things such as cold limbs and ridged nails which may have other causes.

[LazarusRy]

I’ve got severe pains in my kidneys and a lot more related to kidney disease

[holyhead]

My Strange PFS symptoms also all symptoms of Kidney Disease

I have just been reading due to the massive swelling and fluid rention I have and also found that in addition to that, almost all other symptoms of pfs also relate to improper kidney function…Metallic taste in mouth which I listed here earlier, chronic fatigue, fluid gain, frequnet urination, poor brain memory function etc…I was surprised by a lot of these as it hit my symptoms right on the head…Even the breathing problems and tiring easily from the kidneys is said to be from build up of toxins …

I posted about this years back now Melcangi latest paper references kidney damage from finasteride…

[Mark2012]

Is there anything we can do to fix Kidney disease ?

[holyhead]

Baking soda helped me more than anything…But you know that some people it doesn’t help at all…I would be willing to try anything at this point including dyalysis I wished we could talk to Melcangi or someone about this.

[LazarusRy]

Baking soda blew me apart! Like everything else!

[Akiyah]

Even pre PFS I had kidney/urinary tract issues. I add a ounce or 2 sugar free cranberry juice cocktail to my water 3-4 times a day. Zero issues now. Try it. Works for lots of folks.

[LazarusRy]

Cranberry effects me too. I’ve developed an intolerance to almost everything unfortunately. Thanks anyway mate

[Crossroads]

Best to get blood tests like CBC and Comprehensive Metabolic Panel, which should include kidney function tests and liver function tests

[LazarusRy]

Cheers will ask going to A and E this afternoon

[holyhead]

How does Melcangi know this?? What to test for? Does the mods here and at the foundation have no contact or exchange of information with him??

[Dubya_B]

@orthogs

Have you had a recent blood test with ACR and GFR ratios?

@LazarusRy, Kidney function can easily be tested. The above are routine and inexpensive tests. There should be no reason for a doctor to fob you off about something so serious.

[pete]

If the doc is blocking you, get tests done privately. Find out the answer. Avoid jeopardising your health even more.

[Mark2012]

I’ve had loads of tests done on my kidneys but they found no evidence of kidney disease even though I suffer from frequent urination since coming down with PFS.

[AaronF]

Did you get an MRI as well?

[Mark2012]

Yes but they didn’t find anything.

[Mark2012]

If I do have kidney disease it mustn’t be detectable by standard tests.