Noone said it is bacteria that cause pfs. With low body temp you get a lot of other symptoms including unhealthy bacteria.
You should understand that this is a forum where we exchange ideas and we ate trying to understand what the hell is going on.
If you have the answers and you know what pfs is please share it with us.
I remember you strongly supporting a theory about progesterone receptor. Do you still believe that?
too fucking bad if you think i am being a “drama queen”. i have made it very clear that i am not upset that people like JN/ Chi share their versions of “success” stories. i am unhappy that they feel the need to mock the foundation whenever the opportunity presents itself. that should be very clear to anyone who does not have a reading comprehension problem.
if you do not see this as being a bad thing then you are a complete fool.
i get it. you feel bad because research is a slow process and the foundation does not update us all the time. well boo fucking hoo. use your brains and accept the current situation.
people who come here and claim “recovery” and then make sure to mock the foundation in the process are a bad thing, a total distraction, and do more harm to the community than good. then, people like you who just brush it off like it is no big deal only make things much worse. i guess you truly have no idea how many vulnerable and desperate people are on this forum.
it is sickening when people who have done absolutely nothing for this community sit behind a computer screen and publicly mock the foundation and those who try to stand up for it.
this has to be one of the most ill advised patient groups ever, and that aspect of our problem seems to never get any better despite the great progress that has been made thanks in very large part to the PFS foundation. sadly, it just seems like it will never change. their will always be fools lurking in the shadows.
again, you guys talk all day long about parasites etc. if you want to, i do not care, but those who mock the foundation publicly or those who refuse to stand up for it when it is being mocked are people i am forced to consider my enemies and a threat to my ever getting the scientific answers and treatment/ cure that we all want/ need.
hopefully this will be a bit more clear to you. i am fucking sick of it.
Can we ban JN from the forum, Mew? Seriously. He comes on and post so he can “bump” up the popularity of his bullshit posts. Sorry, but he shouldn’t be allowed to post anymore.
He is just trolling us at this point.
(1) I don’t think a single person is “mocking” the foundation. Just because someone does not think that the foundation will find a cure, does not mean that they are mocking it. Its a simple opinion. Are people not allowed to post here because they have an opinion that does not fit yours?
(2) You must not understand MY position on the foundation either (it seems JNs is similar). I love the fact that the foundation exists. In fact, I have donated more money to it than I care to admit. Whether you believe that or not, doesnt change that fact. Do I personally think that they will find a cure (at least in the next decade)? No, I dont. I would LOVE for them to. But just because I dont believe so, it does not mean that I am mocking them, working against them, or misguiding others.
(3) Look at your own situation before lecturing others. You are coming into JNs personal thread that is specifically set up so he can track what he is personally doing and how he is personally feeling (including his own opinions). Not a single person is forcing you to read his thoughts or comment on them. That 15 minutes you spent huffing and puffing and typing out your emotions…that 15 minutes could have been spent working, making real money that you could have donated to the foundation.
I guess it is really just pointless. What I am saying obviously is not understood and certainly not accepted. You are free to your opinions, all of you, but I urge you to really think things through before you speak or act, and understand the desperation of the people reading. There is no need for these people claiming recovery to be saying what they are about the foundation, and you know it. They are baseless claims and they serve no purpose, and they have been made many times by the same people. It serves no purpose and for all of us is only a negative thing.
I just honestly do not relate to this board other than the information aspect and would probably just do better by not posting here anymore, and obviously not in these JN/Chi etc. recovery threads, but I sincerely hope they will think through every aspect as to the power of their words when they say the certain things that they do. Again, I am sooooo happy that they feel good again and I mean that and they have given many interesting nutritional/ health opinions.
Anyways, I am done here, and I truly hope people will just think a little more before they say the things that they do. Good luck and feel better.
Exactly. And what was the point of JN’s post the other day? To update us? No…he just wants to get more eyes on his crazy theories.
This debate and negativity has gone on long enough. For people interested to read JN’s various theories, feel free to read the thread, but everything that needs to be said here has been done so ad nauseum.
However, ongoing in-fighting amongst members and slandering of a non-profit foundation setup to help investigate root causes of the condition will not be tolerated. The Foundation’s goal is to try and uncover the reasons for persistent Finasteride side effects from a scientific POV. To slander a foundation whose sole goal is to try and help PFS victims is simply disgustingly shameful behaviour, and unnaceptable.
The bottom line is any members on this forum claiming to have “the cure” or know exact reasons for the cause of Finasteride side effects (aside from those which have already been scientifically documented in various published studies) is simply conjecture.
As much as everyone is grasping for answers, we need to give the scientific process and researchers time to hopefully uncover answers, which will hopefully lead to pathways towards effective treatments. If people instead choose to theorize about toxins, parasites, cand1da and other pseudo-science as root causes, that’s your perogative… but leave the Foundation out of it, and consider posting on a different website altogether. We have increasing media, medical and legal attention on the PFS problem, these types of posts do nothing to help our cause other than give disbelievers and opponents ammunition against what we are trying to prove.
This thread is locked but will remain here in the Theories section for future reference, for time being. I hate having to step in on these things but enough is enough.
There was barely any spontaneous recovery for me by my own body alone. (That said, there was a slight improvement when I did weights for 3 months in a row), but it stopped when I stopped doing weights and went back to normal.