JN's story -- former 2001 Yahoo Group Member

General Discussion
#901

Ok, no worries, but that’s disrespectful.
I certainly don’t want the foundation to fail; why would I? Believe me, I’ve suffered horrendously for many years, and any discovery that could lead to a cure would be welcome for every man suffering at the hands of finasteride. I wouldn’t wish a moment of the suffering I have endured on my worst enemy.

My opinion, however, is that there is no miracle cure.

My opinion is that the problem should be solved as I have solved mine, as I have delineated above.

It appears that many users of the forum will come onto this thread and mock me. I’m fine with that. I’m not here to convince anyone, and won’t waste energy or time doing so.

It is also a shame that Mew has moved this thread to ‘theories’. My opinion is that whilst he has done a fantastic job at directing many men’s recovery (and probably deserves an an award), he won’t entertain a broader approach to the general problem. His reputation is at stake too.

Anyway, good luck, take care

JN

#902

Excellent. Finatruth, let me give you an early christmas present.
Clearly finasteride pills don’t contain parasites, so don’t be ridiculous.
As I have stated before, finasteride deprives the body of its most potent androgen (DHT) which is a biological disaster to the body, akin to say, a drought or famine. Consequently, the human body will hibernate and lower metabolic rate to ensure survival, probably though the formation of reverse t3 (the physiological inactive version of t3). Have you checked your reverse t3 levels? Have you checked your body temperature?
Reverse t3 is made in stressful periods when cortisol production is high. As cortisol is a stimulant, it will eventually burn out your adrenal glands and hence DHEA production (adrenal fatigue). Have you checked your saliva DHEA and cortisol levels?
DHEA, cortisol, t3 (active), zinc and copper are critical in maintaining body temperature.
There is plenty of evidence to suggest that, at a lower body temperature, parasites thrive in the human body, and consequently the rot sets in, and one is kept in a permanent state of illness.
I bet you my bottom dollar that if you did a stool DNA parasitology test and live blood analysis, you will find you have GI parasites or systemic yeast infection, which need eradication before modifying zinc, copper, DHEA, cortisol and thyroid levels.
You can either sit behind your computer screen and log onto this tedious website or actually start getting yourself better. Your choice.

Good luck.

JN

#903

Do the parasites make it to the brain as well? Is that why the Italian study showed men with PFS also had lowered neurosteroids? Why do most men have a rebound when they stop taking the poison? Do the parasites die?
As I said before…

lol

#904

Jorbie, I think JN has been very respectful and concise in his posts.

There’s no need to snicker at his posts. As he said:

#905

JN- I actually am improving…thanks to time. My point is that my low point was my crash and it’s been a slow, sometimes not straight, improvement over time. So when did the parasites affect me? Was it the acute stage (crash) or after that and that’s why people only get better slowly. Sorry… What am I doing, this is silly. Sorry to interupt your thread.

#906

Ok, no worries. I’m just going to replace ‘lol’ with a question mark.
In response to that, I’d say there is no surprise in this at all. As this is a systemic illness, there are going to be significant changes to the brain neurosteroid profile, therefore problems with mood, concentration and memory. There is plenty of evidence that the main parameters in question; zinc, copper, DHEA, cortisol, thyroid affect brain neurosteroid levels and optimisation of these parameters will improve neurosteroid profile.

One has to think holistically in our case. There will be no one single piece of scientific literature or laboratory experiment which will highlight the multisystemic effects of PFS (actually probably more appropriately named- chronic fatigue syndrome).

In response to Finatruth, I can’t say why you were suddenly affected after 9 years. Certainly I’ve related the ‘excessive horniness’ prior to the crash as probably markedly elevated cortisol- and DHEA levels- (stress response), followed by a subsequent ‘crash’ of cortisol levels- and DHEA levels- and shift to production of rt3 instead of t3 (thus lowering body temperature, and THEN parasites/yeasts kicking in). I could be wrong with this particular theory, but I remain passionate about what perpetuates the illness, and I’ve highlighted my thoughts earlier, and the means by which to investigate and treat.

Anyway, I’m not going to log in for a few more months. I can sense more vultures circling, ready to mock and tease!..

Take care

JN

#907

JN- yes cortisol, DHEA, thyroid, neurosteroids, etc are all involved in this…parasites are not my friend, and are not the cause of perpetuating this illness. In any event, good luck to you…glad you are feeling better.

#908

I know in my case my DHEA shot through the roof and my thyroid was pumping out RT3.

#909

The symptoms of Chronic Fatigue Syndrome are likely caused by Human Herpevirus 6 in patients with compromised immune systems. sciencedaily.com/releases/20 … 092427.htm

#910

Hello.

I’m just returning to my thread to bump it back into some sort of popularity, This is because I can’t see it rot away in the ‘theories’ section, when I’ve made such an excellent recovery.

Out of the many thousands of troubled men who have visited this website, I’d say I’ve probably made a more complete recovery than all of them. No, I’m trying to be a grandiose, self centred fool, but I’m probably being fair and honest.

It’s just a shame that the whole emphasis of this website is on finding a single cure, which will never happen. Unfortunately, the PFS Foundation, whilst necessary and well intentioned, will find nothing of any use.

I urge everyone to take their body temperature. A simple thing to do which will take less than a minute. You will find it is low. You need to raise your body temperature to make a recovery. I have outlined to exhaustion how to treat one’s low body temperature. And obliteration of systemic pathogens (yeasts and parasites) is central to clearing the path to a recovery.

Then, sort out zinc:ratio, and treat adrenal fatigue, which everyone will have.

May I humbly say that my body is fighting fit. My sexual function is excellent, morning and nocturnal erections, spontaneous erections, full ejaculate, high libido. Excellent energy levels and mood. No anxiety. Good nail quality, more body hair than ever.

This isn’t a difficult thing to solve if you address the above. You can do it. But you can’t do it if this website is guiding people down the wrong path.

Take care

JN

#911

JN,

just know that when you say the things you do about the PFS foundation like the above: “they will never find anything of use”, it will in fact make certain people lose all respect for you because clearly you lack logic.

you have done a million different things and have not a fucking clue as to why you are better, and many things that you have tried are just plain dangerous

i think people like you are a distraction, and that you will hurt more than you will help

anyone who clings to posts like yours and will actually shit talk the PFS foundation is a fool, plain and simple

i am glad you feel better, but i am personally sick of the things that people like you say.

no matter what you say, or any of your oh so desperate supporters will end up saying in your defense, you are NOT helping anyone when you start shit talking the foundation, and it just shows that you lack logic and critical thinking

#912

Len, well said. Perhaps the foundation should invest every single penny in studies of gut flora/bacteria, and the effect of pathogens. Yes our low body temperature has something to do with this as does the adrenals, but to carry on about bullshit pathogens is ludicrous, and at the expense of the foundation which is investigating PFS is even more moronic. You can thank the 10 years you have had Pfs for why you feel better.

#913

JN I beg to differ with you a bit there. Low body temprature is just a symptom not the cause. raising it with the help of thyroid meds may bring some relief but no cure. I personally know four hypothyroid persons and one hypogonadal person (due to pituitary tumor and very very high prolactin). these people with thyroid meds were not like us , and taking meds did not bring dramatic difference in their health. The fifth guy is on meds to control his prolactin and also uses Androgel. He has constantly low body temperature. He told me his symptoms suddenly started after a head injury. So do you think if he can raise his body temperature he would be fine? I don’t think so.

#914

The only area i agree with JN is that with normal temperature the body is able to fight against bacteria and other internal implications. It also means that the thyroid is functioning proerly, thus the hormonal pathway is somewhat functional.

#915

It’s not bacteria or pathogens you fucking morons. I’m sorry but someone has to bring sanity to this thread. I think it’s quite clear that despite “normal” thyroid numbers out thyroid is not working right. Cold hands, loss of hair on lower legs, lower arms; loss of hair on outer eye brow ridge etc. this has nothing to do with an invasions bacteria or pathogens you dumb ass people. Mew, any chance we can block these guys? It does absolutely no good to our treatment or scientific advancement i
Of PfS

#916

Let’s consider it this way: if you’ve always been very healthy and were now catching viruses all the time and getting skin infections and cavities every time you go to the dentist when you never had even one before in your life, it wouldn’t come as a big surprise if your defenses had not work properly dealing with gut parasites either. I’m not saying it’s the root cause of PFS, but it might explain why people get stuck in that state. Why discard the possibility that some people here have that problem just because it doesn’t fit into your personal PFS theory? Whatever the theory, it’s an approach of the problem. We should at least test it before we say it’s valueless.

#917

Hi,

That’s ok. I agree with the abusive guy who said that some of the things I’ve done are plain dangerous. You’re right. When I look back, there were several stages over the last 10 years where I could’ve died from the dangerous measures I took to get myself better. I fully concur that over the years I was desperate to get myself better and felt there was nothing I wouldn’t do to repair myself.

Spstriken; you make some interesting points. With respect to ‘body temperature’; I believe it is probably the gold standard marker in PFS but that a recovery of body temperature DOES NOT equal a full recovery. And yes, I agree with you that thyroid replacement which elevates the body temperature doesn’t result in a complete cure. I have been down that road myself; I managed to lift my body temperature somewhat but then T3 caused adrenal suppression (my cortisol was blasted downwards). I agree that correction of thyroid alone does NOT give full symptom relief as one is only papering over the cracks. One needs to TREAT THE CAUSE of the low body temperature and evidence suggests that pathogens need to be obliterated first.
Spstriken; This brings me onto your next point about how your friend’s symptoms started after a head injury. Yes, I believe this is understandable. A head injury constitutes a significant stressor (environmental disaster) on the body and this will stress the adrenals, possibly causing adrenal fatigue and/or shifting of T3 to rT3, lowering body temperature. In the case of your friend, androgel and dopamine antagonists (prolactin reducers) certainly will not adequately treat his symptoms unless his adrenal fatigue is treated and yes, he will have systemic pathogens due to his low body temperature.

I believe the administration of a potent drug such as finasteride constituted a similar environmental disaster for all men here, all of us having a degree of adrenal fatigue and all of us having low body temperatures and all of us having systemic pathogens.

I’m not coming back here for my reputation sake. Genuinely, I’m returning here to help.

Of course, whether pathogens are involved or not is currently a matter of opinion. My opinion is pretty clear. I come onto this website very rarely, and represent little of the opinion here. I’m in the minority.

However, if I may back myself up; I’m a medical doctor with over 10 years of clinical experience, have suffered horrendously from the effects of PFS and I have thoroughly corrected myself. To be direct, and to the best of my knowledge, my progress and cure has far superseded those of Mew, Awor and other moderators on this forum. I’m not ‘showing off’, but am probably being factual.

I’m not asking anyone to believe me, but please for your own sakes, when the PFS Foundation find nothing, do the following three things:

  1. spend 30 seconds taking your body temperature. You’ll find it is low.
  2. get a stool DNA parasitology test and a blood electron microscopy test to look for systemic infections, which all men here will have. Pathogens grow at a low body temperature. They need to be obliterated.
  3. treat adrenal fatigue and zinc:copper ratio

I’m leaving for another 6 months or so.
Take care

JN

#918

hi JN, it is the “abusive guy” here.

plain and simple, the thing that pisses me off is when you and others essentially mock the work the foundation has done. it is classless and foolish.

i am sure there are many people here who would be happy to listen to you and Chi talk all day long about all the healthy things you guys ate and supplemented on your road to “recovery”, or whatever it is. they will do that because like me, they are desperate for a resolution this.

but, for the last time, when you or others mock the work being done by the foundation (actual science), you are being a total and complete prick. this is a fact. nothing anyone can say would change my opinion. they have done more for our community than you or any other “recovered” person have ever or will ever do. this too is a fact.

again, i am so happy for you and Chi that you feel “recovered” and i hope it lasts a lifetime, and i mean it, but i am bloody fucking sick of the smart ass remarks about the foundation.

any person with the capability of using simple common sense is able to brush your comments aside, but there are many desperate people here who would do just about anything to recover.

shit talking about the foundation only sets us back, this is a fact. anyone who does this only slows us down, and i want you to know that anyone who does that is someone i consider a personal enemy, and someone who is a threat to myself and others ever getting the answers and treatment/ cure which we deserve.

hopefully this is all very clear and there is nothing else i need to say to describe my personal feelings about the things you and others say regarding the foundation.

enjoy your life.

#919

Hi Len,

I hear what you say, and I’m sorry I’ve upset you.

I’m not ‘shit talking’ about the foundation, but merely giving a personal opinion that the foundation will find nothing. I’m sorry that you find my opinion threatening. Surely there is nothing wrong with a balanced, realistic opinion?

May I remind you that this is my thread and you’re essentially commenting on my page. You’re welcome to comment, of course, but you must realise that on my thread, I will express my feelings about the recovery process.

The spirit of this website is that we’re in this together, and I care very much about your progress, your feelings and your future.

Good luck

JN

#920

Congrats again JN. Thanks for taking the time to actually come back and update up semi-regularly, despite the abuse you take from people who, ironically, still feel like shit and are…to put it simply… just being drama queens.

After you brought up the RT3 issue in this thread, I went out and got a RT3. My results came back high, just like you. I started the T3 cycle and although I made some mistakes (high thyroid vs low cortisol have similar symptoms), it helped. I plan on running it again after summer, as I know my RT3 is back up slightly due to not 100% completing the previous cycle correctly. Did you have to do multiple cycles or was one enough when done correctly? You mention you have similar cortisol issues doing it…