joetz,
I am curious to know if you are still around these days. I have had PFS for ten years. I recently looked into neurotransmitters in July of 2020. I did not go to a doctor. Instead I purchased my own urine neurotransmitter test through ZRT lab. The results showed among other things that I was low in urine serotonin. I took the precursors L-Tryptophan and 5-HTP along with cofactor B6 for 64 days. It completely cured my constipation. I retested in December of 2020 and the results showed that I increased my natural serotonin production to the optimal range. Most serotonin is made in the gut where it stimulates gut motility.
For the 64 days I was also taking several other precursors and co factors to adjust several other neurotransmitters and I fell back into severe PFS like insomnia. So like you I have experienced how adjusting natural neurotransmitter production has the ability to substantially impact PFS symptoms for the better and worse. I am taking this theory a step further. I think that certain neurotransmitters react to certain receptors in the brain in a very similar and sometimes exact same way that certain neurosteriods impacted by taking 5AR inhibitors do.
Of course after experiencing this I want to explore this path further like you previously did. However I don’t want to pay a doctor thousands of dollars to continue experimenting down this path. I think this has potential and is clearly under explored but anyone else can make the same mistake you did by paying a doctor thousands of dollars and be forced to give up because you could no longer afford to keep paying for the follow up tests and supplements. And lets be honest any doctor that takes thousands of dollars from people in our position for experimental things like this is a dirt bag. We don’t want to let them take advantage of us.
I am trying to figure out a way to replicate the protocol that that you paid the doctor to do for you. I noticed how you said that you never asked for the test results and the doctor never offered them. Well of course the doctor never offered to give you the paperwork because if you had all your labs you would be able to learn and replicate the protocol without his help. We can buy ZRT labs urine neurotransmitter test for cheeper if we don’t go through a doctor. We can then buy the supplements on our own from bulk supplements for cheep. In other words others can experiment with what you did for much cheeper.
If you could go back to the doctor milking your for all that money and get your medical records and post all those urine neurotransmitter test results here as well as the updated supplement adjustment recommendations that go along with each test I think we could learn the protocol and we could replicate it on our own.
what was the doctors name?
what lab did he send your urine samples to for neurotransmitter testing?
what is your status now?
if you are not recovered why did you not stay on the neurotransmiter path. Based on this thread it sounded like it was the answer for you. It may have just been the matter of continuing to adjust the supplements. Also do you know how this doctor came up with the exact protocol that you described at the beginning of this thread with “the four different types of neurotransmitters”? I ask because maybe the better way to go is to stick with adjusting certain neurotransmitters with certain supplements for a longer period of time. Constantly changing them may be better for the doctor selling you the supplements but may not be the best way to allow for the best chance to see how you respond to each adjustment. It seemed like you were changing supplements every week. That really does not make sense if you think about it. And it’s not like urine neurotransmitter levels are telling you the exact levels in the CNS at that time. So with this being said what was the logic behind changing supplements so frequently?
