Hi, I’m woman with PSSD. Did you have anhedonia, no emotions, fatigue, genital anesthesia too? Could you tell what did you do to recover?
yes to all. I was even suicidal and suffered severe anxiety. I was at usual worst place with PFS.
I’d say i recovered anhedonia fully , fatigue somewhat and genital numbness to a good degree. But none are completely like pre-PFS of course
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Hey, I had terribly low T levels after crash (below 7 nmol / l)
I managed to naturally raise T levels ,though its still in lower range (currently fluctuates between 13-16 nmol / l)
Bro, you said some times you are almost recovered. Congrats!!! But you never did a post explaining how? Was it out of nowhere?
Hey man, read my story, you’ll find everything i’ve done and tried there
Hey, I know you took Tribulus like me and had bad experience.
Did you ever get your cholesterol or TSH tested post Tribulus?
I attended my doctor today and he told me before last summer my thyroid was perfect as was my cholesterol and my triglycerides
Since Tribulus my TSH has gone from 2 to 4.6
My cholesterol has gone from 2 to 4.2
My triglycerides from 1 to 2.9
Nine months out and just two Tribulus has wreaked havoc on me
There should be a HUGE WARNING sign on this forum to stay away from Tribulus
in fact it’s very hard (if not impossible) to track your moves. I really cant understand people that recover to a great degree and do not make a post about it.
Lazarus,
how many times have you been on monoclonal antibodies like adalimumab, infliximab or similars?
Did they always provided you strong benefits?
Are you currently on them?
SInce 2000 for rheumatoid up until a few years ago
Symptoms did not seem as bad hard to tell as I was on and off fin throughout as never knew of pfs.
I’ve been very bad these last few years, progressively worse. Things started deteriorating rapidly jn 2015 ish when I stopped fin, then minox.
The speed has picked up with each passing year. I’ve restarted tocilizumab these past few weeks to see of it will bring down inflammation which has basically stopped me from being able to function in Al.ost every way. I had a major crash In March from sun tan lotion.
hello how are you doing on tocilizumab?
have you tried like siltuximab, tocilizumab and anakinra?
Hi sorry just noticed this…
Toc has brought the CRP down but hasnt helped much with wider pain etc. It’s taken the edge of at best. I have inflammation in many places.
I was also on rituximab and it helped but it lost its effectiveness. I retried it to with no effect.
Anakinra is probably the most exciting but criteria is strict. The RA professor avoids me like the plague but I’ll float it regardless. This drug could treat almost every symptom. It’s expensive and requires a daily injection
Hope you’re doing OK
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Do you think BC 007 could dampen the abnormal immune response some of us have to stimulants?
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Which pfs aymtpms got better?
Antibiotic tnf are autoimmune though right?
Correct yes.
Absolutely! I have created a new topic about BC007. It wonders me why it’s so quiet about this on the forum. On LC, CFS/ME and PSSD forums there is much more awareness about BC007.
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I took immune boosters such as goldenseal before my saw palm affliction and it would get rid of the infections without side effects. When I tried to take goldenseal after my saw palm affliction, it made all my saw palm symptoms much worse. Clue?
On the other hand, immune suppressors such as periwinkle, an anti-inflammatory and DNMT blocker used to make cancer drugs, would give me significant relief of my saw palm symptoms. Clue?
I had the same results with various other immune boosters and other immune suppressors. These clues point in only 1 logical direction, at least in my case.
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It is difficult seeing these rolling debates over years. “Is it autoimmune, is it this, is it that?”
If the effort put into these debates equalled the effort to donate …
We would be out of this situation by now.
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doesnt seems like you know how scientifical method works (and also add a Pharma barrier onto that)
Did you ever try Anakinra