Never tried it and rheum proff not up for giving it a go. I think Anakinra has legs is it suppresses Interlukin 1 which I expect is an issue in pfs
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Hi @andras33,
Does muscle pain means atrophy and what can be done to get recovery from it, at one place you had mentioned āuniversal muscle wastage - havent been to gym since last october, so cant comment if i can regain my muscles lost since the crash, but I return to gym soon and Iāll be able to reportā Any guidance as of now I am facing tremendous pain and weakness
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anche io sto sperimentando dolore e riduzione della massa muscolare sono fortissimi ho smesso due mesi fa lāassunzione di fina. avete pensato ad assumere AGLIO contro infiammazione diffusa nel corpo?? come vanno i tuoi sintomi rispetto a 6 mesi fa?? stai meglio?
If even the biological drugs have cured it means that the inflammation will never go away as well as the loss of muscle mass and weakness. Suppressing the immune system therefore does not solve this means that there is a permanent damage at the epigenetic level that shows itself as an autoimmune disease with which it shares symptoms such as inflammation, pain and weakness. The body discards androgens at sustained rate through the liver each of us has more or less sustained speeds depending on the degree of severity of the mutation. When androgens rise, there is inflammation and increasing pain, depletion is triggered as a defense of the body. However, the inflammation remains constant and of more or less high degree. If you had had an autoimmune disease any autoimmune disease with the biological drugs you did you would have solved those drugs reset the immune system even in cancer so in my opinion the autoimmune reaction is only a manifestation of a gene mutation that unfortunately is not corrected by the suppression of the immune system. What do you think??
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that many of us develop autoimmune problems, that is already certain. You should know that most people who use immunosuppressants do not improve their symptoms, it is not a path; used -> improved. It is not always like that, unfortunately, because if it were not for us to just use immunosuppressants and we would be fine
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Reducing inflammation is definitely part of the problem the other part is reactivating what has turned off I agree that immunosuppression alone does not solve it. But at this point what to do? My body is completely devoid of muscles I look like a 12-year-old child I donāt have the strength to do anything and Iām practically a zombie I get to doubt that itās finasteride I did a myriad of checks but nothing Iām getting weaker and devoid of muscles you canāt find a cause and thereās nothing that makes me feel good it seems that I donāt metabolize anything ā¦
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Well see there was a point at my lowest when I crashed where I was not even able to get my body to respond much ti immune stimulation at all by any means good or bad. Normally my body was hyper reactive to environmental factors but in my PFS/PSSD like presenting condition I crashed with I would at the time go to work even in the cleaning chemical aisle and get almost nothing. My body just wasnāt responding to anything period. I even lost my POIS I had before that which has returned when I recovered. The ironic thing is that many things people use to control that will also crash a lot of us, me included. With my body itās almost like a see saw of dysfunction. Iām on one end or another, each has different ways to safely control it without falling into the other extreme. A lot of my issues with this sphere of problems in general began at puberty.