I have come to believe our issue is Interstitial Cystitis

General Discussion
#1

I’ve been in this boat since last year.

We all have yellowish sperm, and we all have frequent urination and possible prostate problems. When we do urine testing, the test always comes back negative. Instead of looking at prostatitis (which may be a secondary effect), I think our main issue is IC (known as Interstitial Cystitis). This is also known as Bladder Infection. Most men are not believed to have this because urologists always point to prostatitis, but I think IC (+Prostatitis) is what we have. Us messing with the prostate via Finasteride has made some irregular changes or inflammation of our prostate, and made us retain some urine after peeing by constricting the urethra, which led to accumulation of harmful bacteria E.Coli in our bladder.

This is why when we use antibiotics to make the infection go away, our urethra gets cleaned out but always come back after we stop using antibiotics. That’s because the bacteria from bladder comes back to urethra after we stop antibiotics. And that’s why we also have symptoms of frequent urination, difficulty urinating, etc.

Our bladder is infected from all this. This will give us symptoms that very much resemble prostatitis (can’t eat spicy food, smoke, alcohol, caffiene). Also, try to get a culture of your sperm / prostate fluid done. Urologist should do this instead of pee analysis, but they don’t do them these days for god knows what reason.

I’m going to have to get another cystopscy but we’ll see what urologist says. If it is IC, then we need to take Elmiron and finish it off with a long period of antibiotics. I’ll keep you guys updated.

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#2

Google says IC can’t be cured so even if you’re right there’s still not much to be done.

Also antibiotics can be really dangerous and can cause irreversible damage. No thanks.

#3

My doctor said IC can be cured. I think what google means is that there’s no straight-forward instant treatment, like a certain drug.

A lot of people say IC is problematic because it can be chronic, but I believe there is a cure for it, it’s just very persistent but you need to take the right drug (Elmiron + antibiotics), and clean out your diet, and give your body time to heal itself.

#4

Well regardless, antibiotics are too risky, especially around the urinary area. You could end completely impotent. Possibly even worse off than using finasteride.

If there’s another treatment option I’d be all for looking into it.

#5

you wouldn’t be directly shooting antibiotics there, you would be just taking oral antibiotics…

#6

It doesn’t matter which way you take them, they’re dangerous. It’s your body but Google says antibiotics don’t help with IC at all anyways cause it’s not an infection problem.

#7

I don’t have yellowish sperm or frequent urination, and being a forum member for over 2 years (and a lurker before that) I don’t agree that they are very common symptoms either. None of my symptoms or those of most other members are like IC, I know because my mother had IC (she got cured after many years and heavy antibiotics treatment). When I see posts from people who’d used fina for less than a week claim PFS, I either think that it’s a mental case or problems unrelated to finasteride. Maybe you should ponder that.

#8

Nobody asked for your opinion on how you can or can’t get PFS.

#9

Nobody asked your opinion about what I can or can’t state either. Nobody knows for a fact if it’s possible to get PFS from 1 pill, there is no scientific research on it. I don’t either, I just believe that it is very unlikely, based on my knowledge and experience with PFS. I think that people who believe they have PFS (everyone, not just 1 pill users) should first eliminate other possibilities before reaching a definitive conclusion, for their own good, since PFS has a wide variety of symptoms that can easily be mistaken for other conditions.

#10

Yeah well I was healthy before fin and after taking it I suddenly experience problems that so many other people who’ve taken the drug experience and I’m supposed to think it’s not related?

You’re being a moron, but whatever.

#11

I’m skeptical about what I hear on the internet, it is very probable that this kind of condition attracts people with mental problems. And I don’t claim to know whether if someone has PFS or not, that is impossible, all I say is that one should exhaust other possibilities first (and maybe in your case you already have).

#12

I believe lbv- there are more guys outside having issues by just one pill. It is crazy that guys taking one pill have the same symptoms as those having taken it for years. Don’t forget: the dht level is decreased within hours, the modulation (upregulation) of the AR is happening fast as well.
That’s why it is said that some sides get better after several weeks cause the system and the AR adapt to the new levels of dht. Best

#13

Anyone that says things like this is a tool.

#14

Said the 14 years old. There are hair loss forums full of people who say that PFS is a myth, maybe you should believe them too then, and keep using fin. w/e, I’d rather not waste my time arguing with a juvenile.

#15

Content depends on the source, not the medium, credible people can post reliable information on the internet. lol you keep making yourself look bad if you think a 14 year old is posting on this forum - do you realize how unlikely that is? I’m in my twenties, but I guess you took something you read on the internet at face value, so maybe you’re not that skeptical. You’re just stupid.

Also

You’re openly insulting parku and I with your opinion calling us crazy and completely dismissing our fin related side effects. But of course you don’t realize you’re being insulting because, again, you’re stupid. God damn, the fact I have to explain basic communication skills to a grown man is ridiculous.

#16

Parku : it has been documented that it’s pudendal nerve neuropathy that cause all these sideeffects. Myself also have been diagnosed with this and is trying stem cells this year

#17

I had stem cell treatment last year, both intravenously and injected into the cavernous tissue of the penis. It made no difference in my condition. I hope it works for you.

#18

There is a new kind of stemcells called Rheo that have around 90% successrate for pudendal neuropathy. Only one doctor in the world offer this, it’s Dr. Barry Jarnagin in the US. Can I ask if you had the stemcells for pain or ED? what kind of stemcells was it and where did you had it done?

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#19

I had it for all PFS symptoms (pain, ed, etc). They were placental stem cells from a donor. It was done at Liv hospital in Istanbul ( livhospital.com/ ). I had it injected inside the penis the first time, when that didn’t work, I had another done intravenously, which didn’t do anything either. Please let us know if it works for you.

#20

So do you really think it is “just” about pudendal nerve neuropathy? I read in the studies that not all pfs sufferer have pudendal issues. Please, could you tell me where you have read this? Thx a lot for your answer.