I am not sure if there is a place for me, I just relate to you all so much but my cause is unconfirmed BPA poisoning

I was in the same boat when this first began and had about zero mental and physical willpower to make it through a day of work. This improved massively in the first 6 months post-crash for me.

Have they recalled the model of retainer you were using that disintegrated? I can’t imagine this not being a huge public health hazard. Unless you were drinking white vinegar, it’s hard to imagine you were drinking anything more acidic than orange juice and sodas, the same as anyone else in the general population.

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I was in the same boat when this first began and had about zero mental and physical willpower to make it through a day of work. This improved massively in the first 6 months post-crash for me.

My problem is that I can’t stand being around normal people because I just can’t relate to them anymore I am currently an impotent man, the people in my surrounds are happy and optimistic, sometimes they are down a bit too but their issues are transient, they know it so they keep pushing like “it will get better soon so lets enjoy this” however my issue maybe not transient at all. That’s the reason I start to feel really really bad when I am around people and that has never happend to me before. Therefore I need to stop for at least 1 year to see how my body manages this either by a temporal leave or just by quitting.

Have they recalled the model of retainer you were using that disintegrated?

It was Invisalign, the material is supposedly FDA approved and BPA free but there are studies showing it is made by layers, first one is a protective one, it shields the user from the other layers, it lasts approximately 16 days before it is worn enough for the other layers to show up. Those next layer can leak in fact BPA. Suppossedly the user is informed to use the each set of retainers between 10 and 14 days avoiding therefore any kind of leakage. I confirmed this by doing an endrocine disruptor urine test that showed the current one is safe.
I missused the damned set for about 30 something days.
The only things I drank more acidic than my saliva were orange juice and sodas.

Doctors just don’t agree with each other:

  • GP: “Long covid fucked up your microcirculation, we need to wait and if you feel anything more come and maybe we will check you again” (I for one love and hate my GP she was really empathic towards me at first but now I feel she’s doubting me and maybe will join Psycho 1 into “all in my head” theory)
  • Endo 1: “Axis is good, testicles bad, don’t know why, maybe I will check you more to investigate on this”
  • Endo 2: “BPA might have fucked you, you need to test the used retainers for BPA leakage before we can proceed”
  • Psycho: It’s all in your head

I need to check the used retainers to confirm or discard the BPA theory

Sorry just to understand, it’s confirmed that BPA leakage from the erosion of your retainers caused this condition? If so, that really lends weight to the notion of ‘post endocrine disruption syndrome’

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If seems very likely. I’ve seen a few cases on this forum of people getting “PFS” from substances that are not finasteride. Finasteride is just the most likely and most common substance to cause the syndrome because of just how potent it is as an antiandrogen.

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Sorry just to understand, it’s confirmed that BPA leakage from the erosion of your retainers caused this condition?

It’s one of the endo’s suposition, It is still not confirmed but once I check for the leakage in my old retainers then at least there will be some light into this darkness.
Still my gp blames it all to long covid. Just for the sake of having a nice timeline, I got mild covid in Jan22 but in Feb22 and March22 I was absolutely fine, nice erections, nice libido etc
It is in April22-May22 that everything spiraled down that’s why both endos discard anything about covid

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If seems very likely. I’ve seen a few cases on this forum of people getting “PFS” from substances that are not finasteride.

That’s what scared me the most, just for the sake of having a remote idea what was/is happening to my body and why everyone I tell call it’s all in my head when I have clear signs in my body that something messed it up big time.

As long as I have the willpower to do it I am planning to make an update diary the likes of @SS1 did I think it is important to keep track of things.

I’ll be updating anything in this post:

30 Jan23
.
Summary:
Today was in general pretty bad day, I am definetly going through a crash, my anxiety is really high I woke up after 5h of sleep feelling already anxious, it was bad time but I dream about kissing a dream gf in her lips innocently still felt nothing when I woke up and anxiety sure did not help, used to wake up aroused af before, I miss that. I had these dreams really frequeny pre pfs but now dream gf only visits me once a month. Soon I will go see my GP and report all the battery of current issues in hopes she withdraws me for work, at least for a month until further evolution. I will also share with her all my thoughs and worries about bpa and pfs, I wonder if she will just straight laught at me or consider it seriously. It’s not that I am claiming pfs from taking fin dut or the likes, I am claimming it from supposed toxic exposure to BPA which I have yet to confirm.
.

Current issues:

  • Prostate fells pretty tight it was not like that in December something definetly happend down there
  • Minnor discomfot Left testicle pain: comes and goes
  • Left Testicle numbness: comes and goes
  • Testicles have shrinked even more they are maye 2/3 of what I had in December which was already small
  • Cold hands and feets: is constant even If I use gloves they are still cold so I directly use hot water to heat them.
  • Shivers: are frequent now and I hate them
  • Body hair in arms and non existant (at least pect hair and legs hair is still there holding strong)
  • Muscle tiredness (this one is unreal just holding in the metro for a bit gets muscles in pain, this has definetly worsen): I fear if when I resume gym if this will worsen or improve… I fear it a lot.
  • Mild although noticeable numbness in the plant of my left feet: It has return and now is constant still mild
  • Low sweat: since beginning of crash
  • Morning woods: 0
  • Night woods: 0
  • Spontaneous woods: 0
  • Orgasm: 3/10
  • Libido: below 0
  • Right hand Finger skin is extreme paperish also Right hand is extremely cold, there’s definetly issues with blood there.
  • Sleep time: pretty bad like 5h it used to be 7h before Jan23
  • Anxiety it’s constant, its like its a sign my body is going through a crash I had not a single bit of anxiety when I was a lot of better in August-September
  • Mental focus is hard with this kind of anxiety**
  • My face oil is low

.

What I wish resolves before March23

  • Sleep to return to at least 7h
  • the skin of my right hand fingers to become less papery
  • my hands and feet to get less cold
  • the shivers to lower a lot maybe 1 per week
  • muscle tone improves and supports me in following gym sessions
  • Anxiety lowers and allow me to keep me distracted with yt hobbies or whatever

.

What I am grateful for

  • I can still enjoy music sometimes
  • I can still feel orgasm even if its a shit compared with before
  • Mentally I can still focus sometimes
  • I have still yet to try a lot of things to try recover so I can’t say it will be impossible I am filling my arsenal and soon will launch a battery of tests I can wait to see their effect
  • Family although they don’t share my pfs state and carry it all on psychologic issue they still try to up my mood
  • Although my hair oil is lower it is still decent I would say.
  • Due to my face’s oil being lower my black pores are being cleaned
  • Hair-loss freeze (this scares me a lot I would prefer to go bald in enchage to my pfs, seems like bpa could be like fin/dut, I wonder if chinese workers in plastic industries have heads full of hair, it would be interesting if I could check that)

.

Plan

  • Research a bit of AR upregulators to see if there’s any supplement that would add to my stack and if it has sides
  • Research common pattern in help recoveries
  • Sleep early to restore cyrcadyam rithm
  • enjoy a bit of yt
  • try to stay calm
  • don’t fear the mornings just wake up and go

1 Feb23
.
Summary:
Morning: bad lots of anxiety as I was discovering more and more effects of BPA and its similarity to fin/dut overall.
Rest of the day: Tried to stay calm it was a bit better, I was toying with the idea that I’ll be permanently like that and if that’s the case doing whatever the fuck I wanted would be best case to cope, no point into participating in society, no point on women, no point on havings kids, I will just buy a nice house ina woods and enjoy the simplest of life, fill my head with books, fishing, astronomy also keeping and eye and maybe trying to solve what everyday is more confirmed as our problem and even prior to doing that I would just buy a shitton of drugs and hire a high end escort to approximate the feeling of sex although it has been taken away from me, an 50% approximation would be enough, yeah, I would take that.

I would also have to find a crazy enough women to agree to get artificial inseminated by the remaining healthy sperm I have, my genes are not something to be wasted I had an incredible life up until, good at science, tall, light hair, big d (in shambles now), incredible good at math and science in general, good creativity and incredibly emotional feelings (all gone now), so yeah I feel like somebody else might have a really good time on those, passing my genes is a must.

The problem with all of this is that I would need an amount of money which would allow me to retire while living frugali until I die + covering expenses for supp or technical devices I need so I may have to endure 2-3 years in hell just gathering as much money as I can. Maybe 300k will do, dunno I have yet to make some calculations onto this. The alternative is doing the same + having a menial manual job which I won’t have to think and move like a robot basically, since my high end paying job is 100% mental I just can’t handle 8h of 100% mental work when I know my body is broken and probably irreparable. Maybe in the next life God has the gf whom I always dream about already prepared for when I leave that’s the core idea that is now feeding my soul and probably will prevent me from suicide.

Current issues:

  • Prostate fells pretty tight: same
  • Minnor discomfot Left testicle pain: same
  • Left Testicle numbness: same
  • Testicles have shrinked: same
  • Cold hands and feets: same
  • Shivers: same
  • Body hair in arms and non existant: same
  • Mild although noticeable numbness in the plant of my left feet: same
  • Low sweat: same
  • Morning woods: 0
  • Night woods: 0
  • Spontaneous woods: 0
  • Orgasm: 3/10
  • Libido: below 0
  • Right hand Finger skin is extreme paperish: same
  • Sleep time: same
  • Anxiety: same
  • Mental focus: same
  • My face oil is low: same

What I am grateful for:

  • same

Since this feels like it will not improve at least in the coming months / years unless a miracle happends I will stop updating current issues / grateful for section per se and only post of improvements relative to this state if any.

Science gathered today:

Mean expression of ESR2 and ESRRA increased by 65% and 38%, respectively, in the highest versus lowest BPA exposure tertile.

Estrogen receptor beta (ERβ) also known as NR3A2 (nuclear receptor subfamily 3, group A, member 2) is one of two main types of estrogen receptor—a nuclear receptor which is activated by the sex hormone estrogen.[5] In humans ERβ is encoded by the ESR2 gene.[6]

Estrogen insensitivity syndrome (EIS), or estrogen resistance, is a form of congenital estrogen deficiency or hypoestrogenism[2] which is caused by a defective estrogen receptor (ER) – specifically, the estrogen receptor alpha (ERα)

ERα is coded by ESR1 while ERβ is coded by ESR2, what I am missing is why they don’t include ERβ in EIS, or maybe the study finding the ERβ change of BPA missed to find also changes in ERα

Anyways is fucked up to the core, the only thing I could do to solve this is having a machine that changes me at genetic level and fix it or go full natural and pray for a miracle of gene switching, since I don’t know if that is even possible

Open questions

  • How much BPA were my old melted retainers leaking? Do study
  • Could cells with bad genes die? maybe stem cell teraphy after 3 week waterfast to starve bad cells?
  • Is there any substance that switch the genes back in the position?
  • Are gene switch different from mutations? maybe gene switching is reversable but mutations are not that’s why some people seem to have permanent PFS while others recover with time, afraid my case is the former…

6 feb

I may be worsening by the day.

  • Muscle twitches increased although they only appear in my lower body
  • Joints are cracking a lot but no pain for the moment
  • Limbs are freezing cold, I am using gloves inside my house and a large coat
  • Not a single hair of my head has fallen since I had the crash when taking the high dose of BPA
  • arms hair are all blonde now and there’s been some heavy sheeding
  • Face skin and hair are at least a bit oily, those glands maybe are able to process DHT but Face skin has lot a shitton of collagen and I’ve aged like 10 years in 6 months.
  • Body skin is severely dry and absolutely pale
  • Hands veins became thinner
  • I’ve lost the ability to maintin an erection, I can recall weeks before that an electric numbness on my things and groin area when releasing pee and then weeks later dick is bend to the right and dead. I think these are the pudenals that died due to not able to process DHT so myelin was unable to keep repairing.
  • Cognitively I have still few bright moments
  • Sleep is a bit worse, I average 5h per night despite having a strict 22-7 bed schedule, when I get a lot of accumulated fatigue I sleep 7h but that does not seems sustainable. I’m pending to get a sleep tracker device so that I can give my GP sleep data which I believe is absolutely messed up.

At this point

  • I’ve already contacted several labs in hopes someone allows me to buy them a study on my melted retainers to check for the amount of BPA
  • I’ve asked my urologist and appointment to check for the dead penis, if he does not cooperates then I will go see a neurophisiologist and ask him to straight check my pudenal nerver through the same test Aquaris did.

I fear this shit is absolutely progressive, I fear how will be my state in say 2024 or 2025.
I don’t care anymore about sexual function
I don’t care anymore about being skin and bones
I don’t care anymore about my face degrading and looking like and old man in my 30-40’s
I don’t care anymore about not being able to have kids or have gf or build a family
To hell with all of that
I only, ONLY ask to be able to care for myself, even If I must endure a 70’s old lifestyle till I die I don’t want to feel pain, If unbearable pain for unbearable time is on my road I fear I won’t be able to go through it and I might take my life.

So I only ask god for two things, please allow me to keep my mind and my 70 yo body.

19 Feb23
Through the wild sea of a full 2nd crash

  • I’ve lost a ton of weight, 28 lbs since my first crash, It’s ok that I eat quite less due to low apetite due to not doing any physical activity other than walk, plus doing intermitent fasting but still how the fuck could I’ve lost 28 lbs in 8 months…
  • Sleep has gotten worse, I average 4h per night and then I fall asleep for 30 minutes a couple of times, in the very very few good nights God’s willing I am able to fall asleep again for 1h30min averaging 6h of sleep not sure about the quantity of deep sleep but afraid is very low. Any time I fall asleep I dream like crazy, I remember every single dream, on the first 4h I dream 2 times, signaling the ending of the sleep cycles which are 1h30m on average and after I wake up I remember perfectly those 2 dreams, this has never in my entire life happend. Then on those 30 min sleep periods I dream again and wake up without any kind of deep sleep. On the 1h30m sleep period I dream again and I wake up without suicide thoughs thanking God for allowing me to average 6h.
  • Twitchs and fragility overall increased, I did a 10km walk and next day left quad hurts it maybe damaged… I’ve also ran some dumbells on my biceps for 2x3x10 to see how they respond, they are sore as shit, we will see how my body handles that little exercise during next week and reasses to train again on weekends, during the week 5km walk is a need to keep blood flowing and God’s willing I will be able to do some calisthenics on weekends and recover by next week.
  • Prostate wise, someshit definetly happened down there that it was not in my first crash, I have pee urgencies that don’t belong with the quantity and strength of pee. Sometimes I just can’t pee for 6h and then do a middle to small pee. That’s not normal at all. I’ve even reduced night water intake to a single glass after dinner. By 9 pm no liquids enter my body. By 22 I try to pee although I don’t have the urgency. This allows me to not break my poor as shit current sleep state of 4h. I know that at 4h I will wake up and pee and there’s nothing I can do to avoid that, If I was able to fall asleep again for 4h I would be happy with that but that’s not the case. Not much I can do prostate wise. I drink all my water during the day and try to get cristal clear pee. At night it get’s really yellowish.
  • At the start of the crash masturbation-orgasm were at 2/10 intesity like in my first crash and triggered brain frog episodes that lasted 1 to 2 days. This does not happend anymore although intensity wise are the same.
  • Overall brain fog has been very very slowly getting better, I recall being able to have clarity periods that allow me to write, read and form complex thoughs although I need to really force myself to do that. Outside of those periods, complex thoughs just don’t happend and I am in a dumb state, I can’t even look at people in the face and have very difficult time following conversations. I pray this heals overtime.
  • Anhedonia wise it’s been madness. 0 everything at the start of the crash, now I recall being able to laugh and get emotional at a video or someshit but like a user said the emotions happend very very fast and then vanish. I still react to music althogh to a minor degree. Of course this can only happend in my clarity periods. On brain frog periods it’s just not possible, not even music does anything.
  • Tinnitus wise those come and go but are 1% of my daytime so although they scare me I thank and pray God to protect me from these.

So… well… This second crash I’ve mainly gotten worse on the neurological problems. That’s a fact.
Now I will list the difference from my first and second crash

Difference from 1st - 2nd Crashes

  • Duration: 1 Month of crash + 4 Months recovery vs ???
  • Sleep: 7-8h uninterrupted refreshing vs 4h-6h interrupted suicidal sleep (I pray to not get into the 2-3h hole some are)
  • Anhedonia: 5/10 vs 2/10
  • Masturbation orgasm: 5/10 vs 2/10
  • Dick strength: 90% vs 70%
  • Genital numbess: 0% vs I had some periods of numbness but they go away
  • Twiches: 2/10 vs 5/10
  • Appetite: 7/10 vs 3/10
  • Brain clarity: 6/10 vs 2/10
  • Libido: 3/10 vs 0/10
  • Cold Limbs: No vs Yes, hands and feet
  • Collagen lost: can’t recall vs Yes a shitton (will upload pics soon)
  • Swollen eyes: No vs Yes and they get worse by the day due to shit sleep
  • Suicidal thoughs: Only the first 3 weeks vs Constants (2 weeks into the 2nd crash)
  • Nails recovered: Yes vs No, getting more ridged (will upload pics soon)

Now I will list what the fuck I innocently did to induce this 2nd Crash (to my defense, I never new anything about PFS in the first place so maybe this 2nd Crash was written to happend)

May22 - Dec22

  • Diet was clean but contained dark chocolate, tofu one day per week and plenty of other bad AR things but I never noticed I was getting worse In fact on the contrary I felt I was recovering really nice during those 8 months, exercise wise everyday 5-10 km walk, well handled by the body.

Dec22

  • Average sleep 8h
  • No pee problem
  • Same diet although removed dark chocolate and took some supplements
  • Vit E
  • Vit D3
  • Vit K2
  • Vit A
  • Zinc+Copper
  • L-Arginine
  • High potency Ginko
  • Folate (yes… it was the methyl from…)

Jan22

  • Prostate pain
  • Pee problems
  • Average sleep 6h
  • Same diet plus suppl
  • Vit E
  • Vit D3
  • Vit K2
  • Magnesium
  • EAA
  • Marine Collagen supplement

Feb22 HELL BREAKS LOSE

  • Prostate discomfort
  • Pee problems increased
  • Average sleep 4h + Dream like crazy
  • Anhedonia in full
  • Brain fog
  • Lost ability to socialise
  • Muscle twitches increased
  • Lost of collagen increased
  • etc etc

So I think any experienced ones will rapidly notice what I did wrong.
I am really like really scared to have messed up my very few working Brain AR receptors but it’s fucking madness this could even happend from very few supplements even knowing I was recovering so well from my first crash…

I don’t have any plan other than remove all the supplements and stay on the same diet I did May22-Dic22 without the dark chocolate and tofu, I think I need to be very cautios with AR foods from now on.
I pray to God than I am able to return to my 1st Crash state doing the same I did in my 1st Crash. I know this could take time, I’m only at my 3 week mark post crash but hell… my 3rd week mark post 1st Crash was HEAVEN compared to this.

I have already a really clean sleep schedule plus the liquid intake is optimized, Is there here anyone who can give me an advice on sleep? Will it get better overtime? Maybe microdosing sleep pills is a good idea?

I now I wrote on some users stories like Damon, hopefull post, but hell I now that I am going to a higher degree of suffering from PFS I am able to understand better very severe ones like Damon, axo or Lazarus and I now have changed opinion and think it is reasonable for one to put and end to the suffering when it gets to the point of less than 3h sleep per night.

If I was able to wish for a thing, please God please, fix my sleep, let me sleep 6-7h again please please only that. I don’t mind the brain frog, I don’t mind the anhedonia I don’t mind the dick my skin my bones my muscles… to hell with all of those but please my sleep, allow me to have restfull sleeps again.

From here

  • Appoint the BPA analisis (I am already in contact with labs it’s 150€ per test so all that’s left is to appoint the day)
  • Appoint urologist and do a prostate check
  • Psychologist appointed on the 24 Feb
  • Specialist appointed on the 1 of March
  • Neurologist appointed on the 23d of March
  • Appoint my GP to update timeline
  • Remove Tofu + no chocolate
  • Remove all kind of supplements (fuck em at least for an entire Month to see how I evolve)
  • Add Foam rolling to help blood flow recovery on limbs after walks
  • Add streching sessions (don’t be agressive)
  • Add Kefir to improve gut
  • Add Kombucha to improve gut
  • Increase Vitamin C intake doing Orange Juice x2 times a day
  • Increase my current Weight through increasing food intake and start to do calisthenics on the weekends, lower walks from 10km to 5km
  • When I am stable add Whey protein shake to see if I can at least tolerate that

Considering removing intermitent fasting

On a side note when I was recovering through my first crash twice a week I would have cheat days where I ate dark chocolate, potato chips and soda along with meals. I even took some walnuts.

All those things specially dark chocolate are supposed to fuck with PFS, specially severe PFS but they never did a thing on my recovery state, things just kept going nice and smoothly.

It is really madness for me to believe how a couple of vits + ginko + some collagen broke hell loose on a whole new scale.

I am avoiding all supplements from now on until very hopefully my body figures out how to return to my 1st post crash state, however there’s an exception to this, If I am not able to sleep smooth for 5-6h before end of month I may give up and ask GP to give me sleeping pills. I just can’t go through the entire of March with this horrible sleep pattern, with the crazy dreams, the panic attacks and the suicidal feelings when waking up.

Just checked which ginko I took

High potency one, equivalent to 200mg of the active ingredient for 3 days then stopped cold turkey
Interesting thing is that while muscle wastage, collagen loss increased from that very week Insomnia and the other neurological problems came by in small steps like I was sleeping 7-8h on the Dec weeks I took the ginko and then 6-7h on Jan and started to feel anxious, could not focus etc, and then 5-6 at the start of February (this is where the dreaming pattern changed in full) and then to 4h average today.

Ginko is a potent AR downregulation… I’ve fucked up big time… My body was in a bearable state of living, I could sleep 8-9h no problem I was somewhat motivated and hopefull although a bit scared due to the muscle collagen sexual disfunction problems so that’s why I bought ginko prior of knowing about PFS and the rest is history.

The only good thing I could find is that while they found Ginko potently downregulates AR density, it does not mess with 5a reductase nor DHT, at least that’s what they said.
My neurological sympthons which have worsened in full too say the opposite but it could be due to another GABAminergic path I am not aware off.

I pray God whatever is downregulated has not been epigentically hipermethilated allowing my body to achieve post PFS baseline through homeostasis, that would be heaven on earth even with all the wastage, collagen loss limp dick

@axolotl You may find this data useful

My crash (2nd) is going worse and I hope to find a baseline soon:

Things that came in paralel, all of them started slow and then increased in severity on par. I’ve never experienced any of them before (not in my entire life nor my first crash):

Insomnia: Inhability for my mind to stay asleep, dreaming like crazy, went from 7-8h to 5-6h to 4-5h to 3-4h to 2-3h. After the block of sleep I am often unable to go back to sleep again and If I go sleep again it is only for periods of 30 to 1h, dreaming everything. I must have almost no deep sleep. I have yet to measure properly this data with a device I am expecting to get from 6-10 march. When I was in the 2-3h range I was completey suicidal afraid if I were there more than 1 week I would’ve terminated myself.
I’m currently at 3-4h and if lucky I get a +2h block and then a couple of 30m block. I have yet to measure this precisely however. To manage this I try to stay device free by 22h and then just try to write things on a notebook but just whatever I like to write, no goal nor daily activity related. I just do poetry for instance or just draw like I was 5yo. I do this to minize stress before sleep.

Memory problems: Short, Med, Long term memory are affected, specially Short term. I am currently forcing myself to do exercises of watching YT videos of 30mish of many kind of ancient Spanish works and then I write on a paper details like the name of the town, the name of the officer the name of the tools and how they were used, the hours of procedures etc. I fail and fail and fail and currently there seems to be no improvement in here.

Focus: is lost like I have a severe attention deficit. Unhability to follow simple conversations or do simple tasks like checking-answering email, or performing a goal focused task.

Strange “pressure/hollow felling” at the back on my head: that renders me basically unable to perform minimal cognitive process. Thinking, remebering anything, talking with people, even my own internal monolgue is severely affected. During these periods I am unable to handle any kind of stress even If I am just sitting alone dinning something I find delicios and watching tv or yt whatever I am doing when these attacks come ANYTHING makes me uncomfortable, like I am unable to keep exististing and on track with reality. I FUCKING HATE THESE. They come and go but leave me exhausted. I have yet to find a pattern but they definelty appear to be highly probable during/after eating. Today I was attack free until at 16h during the digestion of lunch and then from 16h to 20h I had them come and go. At 20h I had one during dinning and at 21h I had a pretty big long lasting one just before writting all of this.

Extreme constipation: 8-9 days without bowel movements, bloating of digestive aparatus, I am currently using glicerine suppositories and on an herbal laxative called “Laxsen” containing mostly Senna (this is what makes you shit) or something like that (30%) it works and I am able to evacuate within 6-12h. However Laxsen also contains another herb that is an 5ar inhibitor so I would proceed with caution. First thing in the morning I take a cup of hot water with Laxen and then introduce the suppository and refrain from any shitting sensation until the glicerin disolves. By the 2nd hour I shit the volume of a fist and then by the 10h o shit the volume of two fists. My stools are green but sometimes appear yellowish also the smell is definetly different althouth it still smells like shit. If I go all natural I get bloated at day 7 and at day 8 start to feel like rocks under my ass like @Dknighten describred sometimes, specially when I stay sit so to relief from the rocks sensation I mostly stand up during the day and only sit to eat and after dinner. With the rocks feeling inside of my anus I also feel a pulsation. This only happends when my digestive system goes extremely bloated at day 7-8 without bowel movements.
Currently I had natural bowel movements at day 7 without the use of laxative but they were extremely weak and it took me a handful of them to make me shit naturally. However despite being bloated I found extremely difficult to shit and the stool came out very thin. The volume was of a fist so that was not terrible at least but yeah, something is going on with my rectum like it was tight. Anyhow the shit was really smooth so my diet is at least allowing me to not throw rock-like stool.

Anhedonia: I had previously this one in my first crash but now It was increased in severity and peaks durring hollow head attacks. At least I am able to still feel music (at say 10%) but only when I am attack free for a long period of time and somewhat rested. Any other basic emotion asidde from sadness and laugh (they feel however extremely extremely low) is still missing.


It is the first time experiencing this. They started since beggining of Feb and increased in severity. I am unable to comprehend how the collagen peptides, vitamins, aminoacids could have created these issues out of thin air. Maybe my old baseline was damaged via estrogen path due to the high potency ginko I took in december and this was foretold to happend anytime.

I know collagen peptides (offnote* could all my new issues be GABA related???) are terrible for PFS and some users suicided after taking them I fear for my shitty state to be permament and I pray for my body to recover even if it is 1%/year, whatever kind of recovery I will gladly take it. I just don’t want to be permamently like this where I can only function for a handfull hours a day and the rest is just zombie surviving.

Currently I honestly just want out. I pray to find a baseline and that with diet and avoiding triggers little by little I am able to sleep again decently then there maybe an opportunity for my constipation to relief a bit and for the neurological problems to relief too.

I pray God.

Hi, sudosudo, im also from Spain my brother! :).

I also have short memory problems. Cant see TV or read books. Are you under benzos or other drugs that involve GABA receptors? In my case i know 100% sure that my problems with memory are related to benzos withdrawal.

For the constipation i recommend you low fodmap diet. Eat a lot of Fiber (low fodmap), drink a lot of water and try to move. You Will improve your stools if you drink kéfir and yougurt without lactosa. I had the same issues and my stools Went from yellowish to Brown (and with normal odor). I would avoid using to mucho laxatives.

Stay strong my friend!

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Oh my god this night was the absolute worst.
I did the same as everyother day, the dinner was not anything meaninfull either and I was relaxed and calm however, I just could not even fall asleep. I just can’t comprehend, I was fully wired from 23 to 3am , then I felt asleep and woke up at 4:30 am after racing dreams, then I felt again asleep at 4:50 and woke up at 7:10, and then I felt asleep for 1h more.

The day before I had a night were I felt asleep rapidly as always, then got a block of 4h of sleep then I did two blocks of 2h and 1:30h of sleep. It was more than nice considering the severity of insomnia.

I just can’t comprehend how there is this kind of difference between two consecutive nights maintaining everything almost the same. Is it the diet? should I aim to replicate the “better” nights diet? I recall that 1h before sleep I just had a massive hollow head attack and I was left in a shitty state albeit being calm. Maybe the hollow heads attack precede a zombie night. I did not have these on the day before night.

I must find a pattern to achieve the 4h sleep block nights or I will be put on meds or suicide. @axolotl have you found any kind of patterns for “better” nights?

Also as of today I am now 27 days into moderate to severe insomnia and my automatic breathing is lost. I am struggling now to manually keep my breating.

@Dknighten did you recall messed up breating from your 1st crash? or since insomnia started by any chance? I am trying to find a pattern and find hope in the possibility of breathing and other neurological issues fixing if I manage to ease my insomnia. Thank you brother.

Thank you friend, I am not taking any meds at the moment, I know what they can do to someone and specially for PFS patients they often are disastrous.
Yeah I fully believe neurological problems involve GABA receptors, the problem is that after taking the aminoacids and collagen peptides my body was disbalanced in a way that due to PFS reasons it can’t return to homeostasis or at least is taking long (I pray to be the last case)

I am currently on a “dieta blanda” and is working a little at this moment I shitted two times without the use of laxatives, my idea is to remove them and to be able to eat plenty foods like before my 2nd crash.
Best of luck to you

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Do not use laxatives or enemas. They are not safe with PFS. It can further throw your gut out of wack. Use Psyllium Husk (metamucil) and drink 80+ ounces of water a day. It will help your constipation.

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thank you
Currently I am stuck in permanent hardcore insomnia averaging 1-2h per night, after 2 weeks of this there seems nothing I could do, my body just does not heals itself. I am no longer afraid of death and wish to die.

Did insomnia get better overtime? The sole though of hearing people made permament worsening with collagen just makes me want to end it because all the data I have points to that. I took collagen and aminos at the start of feb along with magnesium a couple of vits (no B’s) and whatsoever, I just can’t comprehend how my brain lost the ability to stay asleep is pure madness.
I must have destroyed my GABAnergic system and due to PFS my body just wont return to homeostasis. I am utterly fucked.

I just don’t want to take the benzos / sleep pills but being so much time without any kind of deep sleep is taking a toll and the cons are of continue no sleeping are higher than those of the pills.

If I just manage to push the key to sleep at least 4h I would call it a day and live like this…

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How are you doing?

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