You sound just like me my friend, it does get worse but you’ll hang in there. I believe in you.
I would recommend making sure you get a lot of sleep. And make sure you exercise regularly. Have you tried a fast yet?
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Thanks. I do intermittent fasting, occasionally, but I haven’t committed to a water fast yet. Have you?
I have, it helped early on. It really jacks up your growth hormone which can help. I’m currently trying soyflour and seeing how that works. The idea here is that it can downward express the AR receptor which has been proven in men with PFS to be very over-expressed. Hopefully it will downward express to the point that my DHT starts working as it should again.
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Wow, I can relate to so much of your member story its scary. The way you vividly describe it too brings back such clear memories of when I started this bullshit. Thanks for sharing, I’m right there with you and have also found that treating with aminos and protein is the most effective way thus far.
Hey @trav,
This is a true tragedy. I don’t even know how to tell you how sorry I am. People who don’t have PFS won’t ever understand the true magnitude of the catastrophe this condition causes in a man’s life.
A very similar thing happened to me as well. I got PFS after re-starting Propecia after being off of it for months. I was losing hair very fast and I thought I should get back on finasteride so I can taper it more slowly. Even though I had read PropeciaHelp, I thought I was invincible and PFS could never happen to me, and yes - I also didn’t quite believe what I was reading.
Thank you for writing your story! It is definitely going to help many people who are wondering whether to start Propecia and I am sure it will end up saving lives.
I sincerely hope you continue to improve. Your symptoms don’t sound as bad as they can be.
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Reading these stories makes me so angry that such a bizzare, fucked up disease even exists.
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@trav Did you go back to the Harvard-educated dermatologist to tell him what he had done to you?
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I am angry not at the disease, I am angry at the people who created it and continue to spread it every day, knowingly destroying and killing thousands of innocent men. I am also angry at the people who deny and try to silence the truth - at Wikipedia, at hair loss forums, in the medical community.
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Well obviously I can’t blame anyone cause I got this disease from natural OTC supplements (soy, licorice, milk thistle). So I’m even more angry cause I didnt even took a drug, yet still have to deal with this bullshit.
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Hi Trav
Thankyou for taking the time to write your story I too can relate to so many parts of it it’s unreal
I’ve been on this road for a long time i think things were a little more confusing for me to start with as i was using finasteride anabolics and high doses of ibuprofen at the time so i wasn’t sure if it was partly the steroids or the combination of all three the whole experience started just like yours and continues to this present day.
It’s all a roller coaster from hell it starts from the top when you realize something is going wrong and swiftly spirals out of control dragging you down into hell where it stops to leave you in that shocked state of confusion and despair feeling half the man you once were.
I cant understand how a drug can take away so much from guys creating a catalogue of sexual issues and mental issues that the medical profession can’t help with.
It’s all beyond belief.
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Same to me. It proves that it is more likely to develop PFS when you play with dosis or take- then stop then take again…than just taking finas during a long period of time. That is, i think, because the body cannot manage such an hormone imbalances.
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This.
Your story shows that although we are getting the word out and people are coming to the site prior to taking finasteride, as long as it is still readily available and the labelling remains inadequate, there will always be more men falling victim to this drug. I pray for a time that this is taken off the shelves or at the very least black boxed.
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I crashed on ketokonzale/saw palmetto shampoo alone. I feel you man, I’m 23 and my life is very dark right now. I have very similar sides to yours and many others on the forum. I hope to god there’s a breakthrough with this PFS and all of us can go back to normal or be treated. I’m on TRT almost been 4 months with really no improvement. I’m not worse but I’m not better which is crazy my body is androgen resistant at this point. These 5AR inhibitors are truly something else, I can’t believe it doesn’t effect 100% of men who take them after knowing what it’s done to all of us! Hang in man I have good hopes something will come along eventually. I believe all 5AR inibitors should be taken off the market for hairloss I hate seeing so many guys falling victim to this…
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Respect for posting your story here, I can relate and your story sounds similar to mine. I hope you can find a way out!
The thing pisses me off the internet is full of the horror stories that we have been through most of them are more or less a carbon copy of each other the same symptoms the same issues the same cause yet we are all more or less ignored by the drug manufactures and medical world it just doesnt make any sense…
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This is why it’s important that we assemble here, that as many people as possible sign up, take part in the 23&Me project and take our survey when we publish. Every registered user will receive an invitation to the latter. There’s a thread about the former here:
If we have a large enough group that we can point to we will be able to be taken much more seriously.
These are the first steps to our liberation but everyone needs to do their part on the way.
Anyone reading this who hasn’t registered here, I urge you to do so. It’s free! It takes 30 seconds.
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I think where we are now is different to a few years ago. If you consider the rxisk.org site or even the greater awareness of post selective serotonin re-uptake inhibitor sexual dysfunction, not forgetting what has and is being achieved both with the foundation and here. Sadly there are myriad victims of numerous pharmaceuticals that in isolation go under the radar with their own personal despairing experience. The system is definitely failing patients and horribly skewed towards the monetary gain of big business, but the fact that connections between certain patient groups are being made and scientists etc. are working towards a common end will hopefully make all the people who have been affected by endocrine inhibitors be heard.
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invictus can you explain how you got pfs from milk thistle ? i thought pfs occurs because of reduction of a hormone that comes back quickly after quitting. my problems started after quitting.i thought there must be a upregulation of the androgenreceptor to get this rebound effect. sometimes i think this problem is so rare that i have something else. i get fucked up because of the german hair loss forum that recommended to cycle propecia. otherwise i would have never get it. sry invictus for my previous post. i believe you …
Thank you guys for the replies. It means a lot. I’ve read hundreds of stories on here but, the nature of this illness is obviously super personal and hard to discuss. Particularly when you are still going through it.
I didn’t waste my time. Most dermatologist prescribe this stuff off without any sort of consideration. He should be fired due to malpractice and I am going to make sure I log everything I can. I’m sure if i went back to him he’d feed me some bullshit about how he’s been on it and he’s fine (despite him sounding like a fucking robot and completely devoid of any joy) whether he recognizes it or not.