I didn’t waste my time. Most dermatologist prescribe this stuff off without any sort of consideration. He should be fired due to malpractice and I am going to make sure I log everything I can. I’m sure if i went back to him he’d feed me some bullshit about how he’s been on it and he’s fine (despite him sounding like a fucking robot and completely devoid of any joy) whether he recognizes it or not.
Sorry to hear that. It’s very difficult but we’ll prevail. Also I agree about getting it off the market but companies like Him’s are going to open up a whole new demographic with their aggressive marketing campaigns. As sad as it is, having more people take it might be a good thing. The larger the sample size, the larger the people with permanent adverse affects who condemn this poison and ultimately more pressure to find a cure.
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It is beyond belief. One of the things I think PFS sufferers can all agree on is that not only is this an absolute nightmare, there is very little tangible evidence of it’s existence (though that is changing with studies.) Imagine having any kind of life-changing illness before its discovery, you would feel like a nutcase l and nobody would have a way to dispute that.
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It’s been awhile since I’ve updated my member story. I have a few people wanting to know about my progress so I thought this would be a good place to do it publicly.
As I gain tenure with this condition, I’m starting to see more patterns and am more readily able to characterize it. One of the only consistent things I’ve come to notice the way this affects my body is sleep. I would be curious to know if anyone else deals with this.
When I wake up after sleeping, but before I fully wake up(the kind of half asleep half awake phase) I can usually gain and keep a pretty hard erection for a very long time. Once I get out of bed and or mentally become alert, I feel like the oil has been left out of the tank. My dick shrivels up, my skin starts to feel dry, my joints and bones become weak and brittle, and my mental state goes from feeling young and virile to old and tired. This has been happening for well over a year now.
Morning erections of some sort are pretty common, but day time elections just do not happen unless there is sexual stimuli. As someone pointed out, nocturnal erections are a result of testosterone; and day time erections a result of dopamine. Not sure what can be done in my case. Ironically, the morning time, the only time of day my dick gets naturally hard, is when my orgasm Anhedonia is by far the worst. I wake up to have sex with my girlfriend first thing and there is nearly no feeling still, and if I manage to orgasm there is typically very little sensation.
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Have you tried Ritalin or anything else for dopamine if you think it could dopamine related?
Have you stopped Minox? I had similar symptoms for 3-4 months especially the shriveled dead numb penis and everything resolved 3 weeks after stopping Minox.
It’s interesting you find that you get erections in the ‘half-sleep / half-awake’ state. I get that too, it’s a very distinct pattern. Erections seem to occur if I haven’t had enough sleep, then drift into the state in the late afternoon. It isn’t accompanied by any libido or desire. It’s a very mechanical feeling. I zone out into half-sleep, the blood drains out of my head and into my genitals.
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@pete , I was the same in my 20’s. If I laid in bed in “twilight,” in the morning I could have a long-lasting morning wood, but as soon as I stood up or woke up completely, it would fade away fast. I would have a slight libido accompany it sometimes though, but sensitivity in the mornings was always lower, even pre-PAS.
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omg i took milk thistle and the same thing ahppened to me. HOW DO I GO BACK TO NORMAL I FEEL TERIRBLE.