finatruth we cant forget the fact that you actually used progesterone…and progesterone is known for neurological benefits properties, tiger I really wish I could help you, it sounds like you re in the very low end of the pfs syndrom, that I personally have been also for at least the first 3 to 4 months afer my crash…and I just could not bare with life anymore, thats when I realized I would try anything on this earth to get better, PLEASE try to get a hold to cerebrolysin , I promise you it will make you feel better ,you will need time because it takes at least 3 weeks after the first injection for the medication to start working but its worth it I promise. God what an awful situation…im still not over it, no not yet. I really wish I could just beat the fuck out of the people who knew about the side effects and decided to ignore them and put fin out in the market.
That sums it up for me.
When i first took finasteride i was aware that “a very tiny %” of men were impotent long-term, it scared me but i judged the risk to be small enough to be insignificant.
What I wasnt aware was it would potentially completely obliterate my personality, masculinity, and cognitive abilities. I’d readily accept life-time impotence if I got those back now.
I’m a shell of the person I once was. There’s no impulse, no emotional attachment, no humour, no thought process. Just a numb blankness with a vague comprehension of what the appropriate response should be. A fake smile or forced laughter that convinces no-one but is enough to be left alone. Feels like fucking dementia or blunted autism, a complete inability to relate to normal stimuli.
Don’t even feel anger. Just apathy. I will lose my job in the next 1 or 2 months, of that I’m certain. Beyond that I’ll have savings to cover probably 3-4 months of rent. After that, who knows. No one will be accountable, no one will be held responsible, just another unfortunate victim.
Danny
This is what really fucks me off big time, your last sentence!!!
Why the fuck are Merck not held accountable and why the fuck is the pill still on the market???
How many more victims lay in wait???
For me, nothing is happening quickly enough.
Look at the US and Canadian lawsuits… Stood still. For how much longer???
Danny, have you contacted RussellWorth solicitors to file your claim?
I’d love to get a class action lawsuit going in here in the Uk but we need Uk members to call this number…
01752 334105
This is absolutely nail-on-the-head. My entire life now feels like an act where I am getting by using memories to model what I would have done previously in certain situations. I try to act appropriately in response to things but it is difficult because I have no fucking idea what I should be doing, it has been so long since I had any flavour of reality. I find it difficult to make decisions about basic things because I have no real feeling either way about anything. Sometimes people ask me if something is wrong, they can just tell that I am not really there. I try to “laugh” it off but secretly I know that my act is failing.
As LEN and Robbo have stated. You should be over the moon with the progress you have made. We are all different and I’m not so optimistic about my future. I reckon I’ll be like Robbo, stuck in this fucked up sexual state for the rest of my life.
My body has changed far too much to correct its self with Good sleep or diets.
My whole penis and balls are completely numb and I get no erections at all!!!
I hope I do improve but I only have 5% belief of any hope.
I’ve also got that whole tree thing going on.
A naked woman does fuck all for me. Might as well be a car or tree!!!
My manager the other week bluntly stated I’m a different person to the one he interviewed. I was offered the job in January and started it 6 months later. Got PFS in between. They wanted me when I was a enthusiastic graduate. Not now, not an old decrepit man in a young body. No drive, no motivation. Confused by interactions and slow to react.
I got through the last few months on a day-to-day basis. Functioning purely on autopilot, not considering the future, but I just can’t be fucked anymore.
I’ve tried getting professional help - but apparently having close to zero free testosterone is perfectly healthy for a 22 yr old. I’ve tried self-help. Spent hundreds, probably into thousands now. Endless supplements, drugs, diets, exercises, research.
Never accepted the reality of our situation, as that alone is enough to drive anyone insane. But it’s hit me hard today and I can’t move on.
Danny
I’ve sent you a PM
I am sorry about my the tone of my post before. I was speaking out of frustration and hurt.
If anyone on this forum is feeling better in any way, believe me , I am very happy for them. I was just trying to say that is not a universal thing.
Danny, and everyone, hang tough. I torture myself over this everyday, or it tortures me, or whatever it is, but I remain optimistic that the foundation is on the right track and they can potentially put us light years ahead of where we are now, in a lot of different ways.
Do not give up. We are much stronger if we pull together.
I am sorry for sounding so macabre in that last post, that was just selfish of me. I am sorry guys.
Update 18.12.13
My penis continues to THIN, it’s lost all feeling as has my testicles.
How the fuck does this drug continue to wreck my body long after I took the fucking pills???
I just don’t fucking get it!!!
I can squeeze or nip my penis and feel nothing!!!
100% fucking numb.
I cannot even tell you the last time I had a twinge or erection daytime or nocturnal.
Mentally I’m doing far better but my sexual sides are setting me back mentally.
Will this penis thinning ever fucking stop?
Will I ever have feeling or an erection again?
It will be 1 year off propecia in 3 months and I’m still getting worse.
Update…
Positives
- Sleep is better but still don’t dream and rarely have any R.E.M
- Less suicidal
Negatives
- Still impotent as I approach my 1 year anniversary off Propecia
- No erections of any kind, no nocturnal, spontaneous or morning wood
- Thinned penis with penis pains still from time to time (shooting pains in shaft)
- Totally numb penis and balls
- Still taking anti depressant (remeron)
- Zero libido
Still given myself 3 years this august if I get that far, if I manage to get to august 2017 and I’m still like this then I will kill myself.
If my sexual state and penis size and shape improved then I would see reason to live
TIGER! Hang on man. I’ve been through the same as you describe, and I agree it’s like hell.
Let me put out a word of hope…
I’m almost at year 4 of being off Propecia. I see you are at 1 year.
I hope you have some trust in what I say because I took Propecia daily for 7 years, completely oblivious to what was causing my health issues until 9 years after I started.
I am finally back to normal sensations and without the sharp pains in the nads. Erections are almost the same size as before. Cognitive abilities are improving considerably. Depression and Suicidal thoughts have abated.
Yes, I’ve tried a LOT of what has been mentioned on this board, especially CDNuts postings of recovery. I’ve also tried TRT but it managed to finish off my marriage due to irritability and anger increases from having too much T.
Here’s what worked for me so far… (I would say my recovery is at about 70%, but seriously improving lately)
-
Diet is very important (Reference CDnuts posts)
-
Exercise is critical for depression, cognition and hormone production. I work out at the gym at least 5 days a week with weights and cardio.
-
EmpowerPlus by TrueHope. This is a combination of 36 vitamins/minerals, many of which are individually mentioned within research on this forum. This product has been a God Send for me personally. I no longer take ANYTHING prescribed by a Doctor. All natural now that Western medicine has proven to be a failure.
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Omega 3 fish oils. Quality and EPA/DHA balance is far more important than price.
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Andractim. This is a topical DHT cream which will not affect T or Estrogen levels. This product has done more for my libido and confidence than anything else. Recommended by my Doctor.
What I have learned is that recovery will take time regardless, and actually DOING what others have recommended on this forum, as well as having faith that God can heal anyone is the path to success.
I’ve lost my job, career, marriage of 22 years, seeing both my kids, my house, everything I own, and even my most comfortable bed as a result of Propecia. There’s no amount of money that can replace or repair any of this. However, I’m on the mend and nearly 3/4’s of the way there. So hang tight, keep the faith and DO something to get you there.
All the best…
Guys
I’ve returned to work for 1 week now, suppose to be there again in 6 hours from now but i find myself slipping down the slope again. Guys, its been nearly 1 year off fin now for me but my impotence goes on, my dick is seriously getting thinner and smaller by the day.
This post can be my audit, along with my podcast.
Its now up to the rest of you to get this drug off the market, and if my kids should ever read this, they need to know that NO DRUG IS SAFE, ILLEGAL OR LEGAL, PLEASE DONT TAKE ANY MEDICATION UNLESS YOUR LIFE DEPENDS ON IT !!!
Merck have no morals, they dont give a shit !!!
Even if this happened to 1 man, thats 1 too many.
I cannot even begin to tell you how this drug changed me in physical appearance, mental, sexual with a numb penis and testicles, both which have shrunk and shrivelled up.
THETIGERSHULL dont do anything drastic.
I believe in time we will be able to beat PFS.
Tiger, have you tried alfuzosin/uroxatral? It’s an alpha blocker. It might help with penis shrinkage.
Mark,
I’m giving it some serious thought again.
NO WAY IN THIS WORLD CAN ANYTHING REGROWN MY SHRIVELLED PENIS OR RAISE MY LIBIDO, IT WOULD ALL BE NON NATURAL
No, but I thought alpha blockers were forbidden for PFS sufferers and could make us worse?
sorry, private message …
i used prazosin. minipress … but very,very cycled … it helped a little bit … why forbidden?
We need to stay strong merck would like nothing better than for us all to disappear.
We can beat PFS dont give up.
I think flomax is one to stay away from. Alfuzosin/Uroxatral I think is fairly safe and worth a try certainly if your shrinkage is really bad. There might have been a concern alphablockers can shrink the prostate, if I remember right, but, I don’t think there is proof alfuzosin/uroxatral does this.
The only sides I might have had with are a sore throat and a little more of a delay to orgasm. I recently went back on alfuzosin… I take 1 every two or three days… Helps with lowering testicles and my penis looks quite normal soft.
I am taking a 500mg of arginine at bedtime. Think the combo is working good for my penis, both hard and soft.