Tigershull - could this be sebhoerric dermatitis? I had this a few years back on my face, with a large patch developing on my left cheek, and also my eyebrows/lids. I believe that it can manifest itself where you have described. My G.P. didn’t know what it was and ended up referring me to a dermatologist who diagnosed it. She prescribed me protopic ointment (I believe that this is the brand name) which cleared it up, although it is prone to recurring and doesn’t really go away properly, or so I was told. Although it may all be coincidence, I’ve seen sebhoerric dermatitis mentioned on this site a few times so it could be another manifestation of what propecia can do and how it fucks things up. Anyway, I’d have it looked at as if it is sebhoerric dermatitis then hopefully it should be relatively easy to clear up.
Hi Scotman
Good to hear from you.
Thanks for your insight but I suffered with this back in 2010 when I took proprcis the first time, so there is no coincidence this second time, propecia is definitely the cause, last time it cleared up eventually after about 18 months post drug. The only positive I can take from been on the drug before and the second time is that I now know what I can whole heartedly be 100% certain about what the drug does to me.
Thank you again
17/08/13
Had the worst nights sleep ever!!!
Could this be linked to me starting my Clomid treatment or just coincidental?
The strangest thing of all is that I don’t even feel remotely tired after having about 1 hour sleep!
The more I look at my hands, the more I’m convinced my fingers (bones) have shrunk since I took fin in 2010. I’m almost certain of it, could be the onset of osteoporosis?
Even the ligaments in my hand, veins and pulses are completely visible.
Last night and a few nights previous I have suffered with really bad night sweats. Woke up dripping in sweat, apart from my head and face, rest of body was saturated including my legs, what could this be?
My sleep has been bad for many months now and I find it hard to get into a deep sleep.
I am often about to go into a deep sleep but my body jerks and wakes me up again.
Is testosterone related?
This happened to any of you guys please?
18/08/13
Down again today and yesterday.
I definitely feel worse on an evening and my penis looks worse on an evening too, without a doubt.
Must be due to lowered levels of ALL hormones.
I also feel worse when I get a tightening, pulsating sensation down both side of the bridge of my nose.
My current medications which I wish I wasn’t taking…
- Remeron (Mirtazapine) 15mg daily at 10pm (treat my depression)
- Zopiclone 7.5mg when needed which is most days (treat my insomnia)
- Clomid 50mg every other day (treat my low testosterone)
Think if you shook me I would rattle and to think I wouldn’t even take a headache tablet before propecia!!!
I met with the head doctor in charge of my mental health whilst in hospital still today.
He told me he wanted to increase my Remeron from
15mg to 30mg.
I tried to explain PFS to him, producing several factual evidence based printouts and he dismissed them all and simply responded with…
" You Are Suffering With Classic Symptoms Of Depression."
I asked him how depression shrunk your penis and made my testosterone low, low enough to be labelled with hypogonadism for which I am taking Clomid for. He doubted my shrinkage and stated low T could still be from depression and refused to listen and told me that I was believing everything I read on the Internet that I suffered from.
I’m an intelligent guy and certainly not somebody who fabricates symptoms.
Fact is, I’m still in the mental home with no desire to want to leave either. I’ve lost feeling for everything in life now, some days I don’t even have the ability to feel suicidal if anybody can remotely relate to that as fucked up as that sounds???
I’m literally lazing through life as a pointless being, whilst been told to trust in those that look after me in hospital.
Tigershull - the problem with these guys (doctors et al) are that they view things thorough their own prejudices and specialities e.g. a psychiatrist will see things purely in psychiatric terms and as you are presenting with depressive symptoms they will believe that these are a manifestation of depression alone, despite evidence to the contrary. It’s sad, but their experiences make them more close minded, rather than less, as they will have had experiences of those who are delusional and will therefore dismiss anything that might not fit snugly into one of their boxes, which is a real bloody shame, and unfortunately has the consequence of making you feel worse as you are not being genuinely listened to. If only they would stop and consider that this might actually be a possibility. This guy will be being paid a hell of a lot of money too. I think that all doctors must also loath the internet and the enfranchisement that that brings, as they are no longer the sole gatekeepers of medical knowledge. Stay strong.
Hang in there brother. Run the following protocol:
- Pregnenolone 50mg daily
- Progesterone Cream 5mg daily (Do not use any more!)
- Vitamin D 5000iu daily
- Calcium 1000mg daily
- Magnesium 500mg daily
- Zinc 50mg daily
- Boron 6mg daily
i’ve been on this since June and i’m almost %100 recovered on all symptoms except testicular size which means nothing in the scope of things.
go to www.biovea.com.au to purchase all products. Next time you get a blood test get the following tested in addition to LH, FSH, Total T, Free T, E2, DHT, SHBG:
-Pregnenolone, Progesterone, DHEA-S, Complete Lipid Profile (particularly total cholesterol), vitamin D. If your DHEA comes in at the lower end of the range could supplement with 25mg ED as well.
Guidelines for recovery:
- Get your anxiety / depression under control as you don’t want to burn out your adrenals, need to get your cortisol under control. This is easier said than done but it can be accomplished. Read the Power of Now by Eckhart Tolle and try to stay present. Don’t ruminate on shit.
- Give it time and don’t throw in the towel. You may initially feel worse but all that shit will subside coming into your 3rd month or so. Just ride the roller-coaster out and simplify your life for the next 6 months.
- Eat high cholesterol foods (i.e Eggs, Bacon etc…) and even supplement with Fish Oil etc… I’ve just started supplementing with CoQ10 and 1000mg Omega3 Fish Oil in addition to the protocol listed above. It really does help, need to pump your cholesterol up to get hormone production kicking off and cascading down the chain to the primal sex steroids.
- Drink plenty of water and try to down as much veggies and meat as you can. Stay away from Caffeine, Ciggarettes, Alcohol, Weed anything that’s gonna negatively affect your adrenals.
Beekay
Thanks for your replies guys
Beekay, please don’t take any offence but I’m reluctant to take or start any new cocktail or protocol regimes besides the ones I’m already taking and I know your trying to help, so thank you but for now I shall just stick to what I’m doing which is…
- Remeron 30mg daily (depression/thoughts of suicide)
- Zopiclone 7.5mg daily (Sleep)
- Clomid 50mg every other day
- Run 4 miles daily in three separate intervals.
- Drink nothing but water
So far I’m seeing zero improvement for the past 6 weeks in the mental home, except the suicidal thoughts slowly seem to be getting less frequent?
I still persist will full blown PFS
Impotent, but get occasional nocturnal erections
Incontinent
Total loss of libido
Total loss of love and affection towards people (emotional bluntness) including my children
Diagnosed with hypogonadism and now having to take medication to rectify this problem of Low Testosterone
Muscle spasms throughout my whole body
Occasional heart palpitations
Severely dry skin on hands and face
Growing of small skin nodules on hands
Insomnia
Penile shrinkage and enlargement of vein on right side of penis
Complete numbness of penis and scrotum
Penile skin tissue changes throughout the day which includes reddening of the meatus area on tip of penis, tends to be worse late evening each day
Suicidal ideation (daily)
Memory loss (short term memory loss)
Aches in bones and joints
Loss of interest in hobbies
Loss of natural ability for taste and thirst
Loss of desire to consume any alcohol
Weight loss/muscle loss
Gained fat around chest and lower stomach
Gynecomastia
Cognitive impairment
Anxiety and panic attacks
Slowed growth of all body hairs
Life is still desperate!!!
I am now 4 months off the poison
Today I feel like a fucking alien, nothing feels real anymore.
It’s like I’m living in an outer body experience 95% of the time, don’t feel human at all.
I’m such a fucking wimp, if only I had the strength to kill myself.
Every day is pain and misery, it’s like ground hog day or like I’m living a constant nightmare with no end in sight. Nobody has the answers or solution. I worry about my future and this in turn makes me worse. I cannot relate to the outside world and only feel safe inside this mental home. I guess I’m just like a ticking time bomb. I’m sick of all the talk and I need to start ‘doing’ something. I really really wish this fucking propecia had fucking killed me. The life I live I did not ever feel was even remotely possible. How does a drug FDA safe, fuck me up so badly and continue to do so every day. I can still feel its presence in my body, with every fucking muscle twitch I get whenever I lay or sit still.
The pain of knowing its still destroying my body is too much to take. If I went just one single day with a slight improvement I would feel there was hope of faith but these two words no longer exist to me.
I read new members accounts on signing up to this site on how they have been fucked over too, it’s almost like there are daily victims to this pill,
Please for fuck sakes, will somebody get this evil filth removed from sale and creation. It’s all taking too long, what’s happening with the US and Canadian law suits?
More pressure is needed but it just doesn’t happen. I wish I’d taken Vioxx and died from a heart attack more instantly than living with the prospect of this hell hole for the remainder of my days.
If anybody reading my posts thinks I’m exaggerating my ills, I would welcome you to contact me by any means.
I was like a lot of outsiders looking in, reading Horror stories about the 2-3% of men that suffered side effects and thinking… Ha ha, well that won’t be me, I’m strong, super fit etc and just how those words and thoughts have returned to haunt me like my soul shall haunt me after the sin of my death.
So if you think I’m full of bull shit or think that other members are too, or your of the opinion like I was of… Well it won’t happen to me… THINK AGAIN
I would strongly urge any guest of this forum or other member to contact me by email, PM or phone, if you are even remotely still considering the option if taking propecia, please don’t.
This forum and its members are real!!!
I always use to think people were hypochondriacs on this and other hair loss forums or felt that my body was invincible, how wrong could I be!!!
This is not just a pill like I thought, that would simply regrow me some hair, it interferes with your brain chemistry, hormonal male up and kills your insides. And I will say again for all to see… Propecia 1mg a day for 4 months, shrunk my penis by 2 inches and made me unable to ever achieve a normal erection. Those of you who doubt me, more fool you!
Take heed!!!
thetigershull- remember what I told you, this first year is gonna be a waste. You wont see much if any improvement, so chalk it up already and try to ease your mind. The entire first year you will question if anything is improved. Into the second year I look back and I am much better in several areas. Now I unmistakably know there is improvement that has happened. I have sexual thoughts 90% of the time, I now watch porn with enjoyment vesus 6-8 months ago when it was just to test out how I was feeling and zero pleasure, and zero pleasure from orgasm. I am sweating more this year, I am not so intolerant to cold weather this year, my face that had severe dry skin and red last year is getting less and less red each cycle. So my basic point, is that this year is gonna be terrible so keep this frame of reference and realize that.
I’ll apologise in advance but I’ve gone almost 5 days now without passing a stool so I’m not sure if this is fin related or something else.
My diet mainly consists if salads, fresh vegetables and I only drink water?
Well I’m out the mental home. Feeling slightly better.
I’m ready to fight to get better and to do all I can to make up for lost time with my kids.
I also vouch to do all I can to get Propecia taken off the market with quite a few things up my sleeve.
Watch this space !!! 
Please work with me guys.
Having a bad day today.
Feel like nothing is real anymore. Feel numb from head to toe.
Seems there is no letting up.
Dont know what to do anymore.
hey tiger all right?
I want to wish you much strength and also good improvement. may I ask why you take clomid even though you have such problems with negative thoughts? please give a chance tamoxifen if that is possible: medknowledge.de/abstract/med … fen-da.htm
It also activates areas in the brain larger than clomid.
strictly to an estrogen blocker, increased testo level bringing an increased estrogenic, absolute poison for you. 0.25 arimidex e3 or e4, increase if you’re still anxious and tearful, down metering if the joints ache.
it will take some time, but you’ll benefit from a low estrogen level
(not too low).
Please think about testo replacement for at least about 8 or better 12 weeks after, if it strikes at you, is the risk, compared with the won quality of life , not in any relationship.
what about proviron? androgenic gels?
and make things easier, try not to think too much , i can feel your a sensitve person. try to make yor self a little hardy. you can do it.
I wish you much luck, I know you’ll make it
Night Night…
God Bless… Propecia Killed Me… propeciasideeffects.co.uk
My family have tried, my bother, Dave, I love you Bro… Stay as you are. Work and money will come your way. I’ll see to that and when something goes your way, know, I’ve said so and look up and see me in the sky.
Dad, you, could not have done more for me, but there is only so much self healing you can do from Propecia on your own.
People kept saying… give it time.
I’ve been waiting 6 months now.
God blesss all.
Towards then end, Hayley and Eve were superb, as was STEVE LYNN, top bloke ever that guy.
Remmie too was more than helpful and offered me my two beautiful boys when ever I asked.
I love you… DAVE, DAD, ASHTON, JAYDEN, EDEN, REMMIE, DANIELLE
Paul
Stay positive, Paul. Keep on fighting through this. Your “good” days will increase over time. Don’t make any rash decisions when you’re feeling your worst.
Paul, phone someone. Friend, family, crisis line, hospital. They can help.