Guys emergency question please help can't feel my penis

Symptoms Sexual
#74

So a little update
I stopped taking Cialis completely as I felt it wasn’t doing anything good
Penis is still dead
No feeling
Rubbery texture
The worst feeling is how it retracts when I am working out. I look at it and it’s barely an inch.
It’s like the blood supply is completely cut off.
I can get hard but it’s like it takes a lot of effort
In the morning I wake up and I feel it retracting inside me
Worst feeling ever
Saw another urologist. Said only thing to do is wait.

I didn’t mention the whole series of event after finasteride but I am putting it together now. I did 3 weeks topical like I said i stopped in February. I got pseudogyno. I am putting way more fat around my chest. I work out daily ( Bodybuilding) for over a decade and I can tell changes to my body. Over quarantine I had weights at home and worked out daily. I still put on 10 pounds of fat while maintaining usual calories. I am doing cardio twice daily and I look at my stomach and it looks like it belongs to a fat guy. It’s crazy. I am restricting calories but fat just won’t come off.

Anyway that doesn’t bother me as much as the penis situation. I just want it back to normal. The joy of being a man is having a functional penis.

#75

Does anyone know why is the penis turtling so much? That’s what bothers me the most. If I am working out doing squats or whatever I get this uncomfortable feeling. I look down and my penis is full retracted head deep inside the skin. The head is still visible buts like being swallowed. Same if I am sitting or bending over. Today I saw another urologist who acted like he doesn’t understand how this is an issue. Said he never heard of anyone complaining of finasteride. Said penis looks perfectly normal and maybe I just didn’t notice it before.

There is no way this is in my head. My penis shrinks to nothing and my skin is like hanging on it.

#76

What you are describing sounds like Hard Flaccid - look it up. It is a form of pelvic floor dysfunction - which is a common issue for people with PSSD, PFS, PAS. I have written before that some have good success with pelvic floor therapy - hopefully this points you in the right direction. And Urologists are beyond useless when it comes to pelvic floor issues - which is hard to believe I know but they dont get any training on it.

#77

I will also mention that many pelvic floor physical therapists ALSO dont know much about hard flaccid - I have been to 2 PTs that had no idea it was a pelvic floor thing - its crazy! They are just used to seeing women not men. You could go get evaluated and see if your pelvic floor is tight- probably a good place to start.

#78

I don’t get it man. That pelvic thing is too complicated for me I doubt I will find anyone in my city.

Why would the blood flow to my penis be all gone. It’s literally a micropenis in flaccid mode. Only extremely obese people will have that according to the urologist I saw.

#79

Update on my penis and situation in general:

Recap: Took topical fin for a bit over 2 weeks. I was also supplementing with saw palmetto and reishi mushroom and reservrtrol. Got gyno symptoms and auto-immune skin issue on scrotum. Stopped and they faded slowly libido was fine in fact maybe at a high (I always had very high libido) but…

Crash May 26, 2020: Penis retracting in flaccid. Shrinkage of penis.

current situation: uNFORTUNETALY zero improvement in penis. I tried HCG and cialis did not help. I have no feeling in the gland and lost an inch of erect size. Turtling happens ALL DAY long as my penis does not hang anymore like it used. I feel very unfonfortable even walking Please help. I still have the pseudo gyno breasts look enlarged
Other stuff is fat gain, constipation also snoring. I am sick of waiting for a solution.

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#80

I have no idea where our issues stem from.

I recently had total loss of penis sensitivity after using Cialis daily for a month or two.

If it was only Ed we could get an implant. But without feeling, it’s not enough (for me at least).

Did you ever get a nerve test done or something similar at your urologist? Or what did he say about the total loss of feeling?

#81

urologists throw me out of their office they laugh at me they think I have gone crazy and refuse any further testing. They say maybe I am cold

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#82

guys unfortunetaly I will be starting to do more serious self-experimentation

wish me luck but I cannot wait more years. i will let you know how it goes

2 Likes
#83

That sounds like a bad doctor.

It’s generally better to walk in the office and not mention fin though. Just tell them you can’t feel your penis and let them do the investigation. If you start talking about fin the moment you walk in, they might get defensive sadly.

If you chose this road, at least be methodical. Try to find / make theories you find plausible and test them out. Be very careful, it’s easy to make things worse.

Also it might be worth donating a few bucks into the new research the mods presented the other day (if you have a few bucks to spare). Who knows, maybe they’ll find the underlying issue.

#84

I dont kno …I just finished reading the neew stuff
3000 genes affected!!!
Man how exactly are they going to solve this
it is like playing wack a mole I am not holding hope at all
are we really expecting them to create a pill to fix this? No man it wont happen as most everything relating to steroids and androgen receptors was invented last century.
meaning if there was to be a cure it is already there. I just dont see this research yielding anything man i just dont see it. WHy dont they recruit 100 volunteers from here to go and try different therapies right now I would pay good money we could sign forms saying we take all risks I am sure many would sign up and pay. But you asking me to pay for some scientist working on a very mechanistic abstract level that will yield zero new treatments in the next decade. They already have enough information start TREATMENT now. Besides most scientist including doctors, urologists and endcronologist have very very little knowledge of anabolic steroids. A random youtuber like derek knows more than most of them so do most bodybuilders and thats sad.

Let me tell you man I see guys in the gym all on juice…they buy steroids from random online lab and they inject it yet they are 1000% healthier than I am they look vibrant and functional I am sure their D function semi normally compared to us. ANd I took a pill from a doctor that is FDA approved I dont know man i am past the point of no return.I look at the next guy on roids, massive confident meanwhile me who worked out natural my whole life never drink never smoke weed yet I am castrated with half a dik and a DAD BOD with man boobs yet i workout 2 hours daily with good diet. Even if they drop dead at 50 thats a good tradeoff in my books in my current situation

You want to affect gene expression then anabolic steroids will do. and I m not gonna do no standard trt i was reading a lot…i iwll go proper cycle. wish me luck bro.

#85

3000 genes might sound a lot, but it could be far less that initially was affected and then other genes had to change to try to compensate. That’s why they did the study, to track it all the way to the top and see if the AR could be the culprit.

They did neither discuss, or release all the gene data so I don’t actually know how likely the AR theory is. Maybe @axolotl could chip in (assuming he’s seen all the data).

I don’t know about creating a pill, but some kind of therapy might be avaliable at least. Research into AR and androgens are still going strong, because it’s relevant to prostate cancer. Maybe we’ll be able to use their data to our benefit.

Without having an idea, or lead about the underlying cause this would probably be unethical. Even if you sign stuff, I think the researcher or doctors could get punishment for it.

I don’t agree they have enough information, but I do agree that most doctors have way to little knowledge when it comes to hormones and how they affect each other and different receptors. While Derek knows more, he’s still believes using fin is a good idea (and his knowledge about PFS isn’t that accurate).

I understand your frustration and I really hope it’ll work out for you. I’m not saying you shouldn’t do it. Just have a theory about what you want to accomplish and an idea how to get there. Best of luck and keep us updated!

#86

This is true. You can’t waive gross negligence nor enter into a contract involving an illegal act. The researcher would still incur civil liability and risk losing his/her license.

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#87

Whatever it is it really doesn’t matter the real cause we just need to find treatments right now. I would argue that even the current research althou great to have wasnt the priority. Mechanistic studies VERY RARELY give tangent answers or products. LOOK at MERK, you think they really understood all the causes of hair loss? No they found an article about BOYS BORN WITHOUT DICK BUT HAD HAIR and they thought great idea lets replicate that condition to cure hair loss. Most discoveries are like that accidental or just throwing darts to see what hits in case of big pharma they have billions to play with for their R&D. We can keep researching for centuries until you start treatments you wont find out anything thats real science that’s how things were discovered.

ETHIC question: at the very least do it with animals like rats give them PFS and see if you can reverse it. But if there is a will there is a way. I AM SURE there is a lawyer who can make this happen. Maybe host it in a country like Serbia or Hungary or africa I dont know. Gross negligence is what happened when we took FIN. The researcher wont be giving u rat poison they will give potential viable treatment and monitor that option need to be explored how else is science going to advance. We can dig for the next century but the end result is the same: nothing matters until you start expirementing. How does big pharma trial their drugs then? Man call the organisation can call up a lawyer and ask. Do a poll here on how many would be willing to participate shiit even if i wasnt part of it I would give money just to see the results. I dont care about mechanism at this point i want treatment.

and my point about derek isnt to say he is perfect but he and many like him kno more about anabolics that all of the scientist working on pfs i am sure on that. the problem is there could be some great steroid that will help but they have no idea about those. We need a steroid expert if anything as cure most likely to come from there nd am not talking trt or pct meds. Best urologist only knows cialis its sad man. Don’t tell me prostate cancer research is going to save us man that’s like insane fantasy I am going to be 80 years old when the day comes when scientist take data about AR from prostate research and extrapolate it to pfs and for what ? to find a hidden cause? this is sci-fi

sorry for the rant man but i really believe my proposal is the only real ethical thing to do. People are suicidal you d rather they kill themselvs than have n ‘unethical’ trial to heal

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#88

sry i write frm phone its vry broken sorry for errors my keypad is horrible

#89

I think mabe you guys in some places in europe have very limited access to steroids it seems.
Here in north america it is like one click away and everyone is on them thats why i am more open to them

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#90

Hey men, let’s not praise derrek knowledge. I am stupid idiot listen to him and take ru + minox + topical dut. He act like the worst case of sides are reversable with some progesterone lol. Fuck him for pushing this products and getting kickbacks from anagebic, chemyo etc. Leo too. This guy’s are dangerous and don’t talk about negatives side of their drug. And if they do they bring up a mild negative example without knowing the real negative experience of people. I would love to see derrek try treat a real pfs case and see he’s getting nowhere. Because penile tissue is changed to elastic and fibrosis…

I agree we need real experiment. This my hope is Peg1 /2 Injects in penis. Some patent trials show growth of penis which must involve new cells and new tissue. If we can grow new tissue in our penis maybe we can restore some function. They should try with rats to Inject their pfs penis with compounds rk see if they can reverse the damage

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#92

Update guys:

What an absolute battle its been. I GAINED FREAKIN 40 POUNDS during covid along with man boobs. And I know its mostly from the finasteride maybe not directly but by taking away my desire to live

I battled and managed to LOSE the weight!! strict diet, gym and daily cardio. I am still nowhere what I was before but sht its better. I fixed my constipation with mangensium fiber and just better food choices it took a while but I can say it is better. My moon well I just adapted now.

My penis is STILL the same. Shrunken retracting in flaccid. Functional for boner or sex but like not like before obviously. Oh and got huge varicocele on left ball. I only tried HCG by the way and many many supplements. Tried proviron for few weeks but nothing only hair loss so I stopped (I am not bald). Other than that no other hormones. I do have dht gel but havent tried it, waiting hoping for father time to do some work.

Anyways guys fk. 3 weeks of topical fin jesus I been paying for close to 3 years now

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#93

I am almost 2.5 years in and numbness is also my main issue.

I fucking hate this so much…

Is there ANYONE who recovered erections 100%? please respond

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#94

I haven’t (yet) but people have recovered from all kinds of fin symptoms including ED.