DYSPHAGIA I feel like I am going to die as well and a warning about NAD+ supplements

To put it very simple:
Sirtuins (humans have 7 of them) are the body’s protector down to a cellular level.

But if you take the time:

How do you feel today?

2 Likes

Bad enough for my parents to beg me to screen for lung cancer.

It feels like complete misery, utter torture, but I stay fighting.

2 Likes

Hello Mecked, shit your parents in trouble with your state of health. I don’t know how old are you and where you are from. And how you get this shit. I’m very interested to get more details about you and your situation. It’s a funny thing but as closer we all to another as better our feeling, because all of us have lost connections, fiancee and friends some everything outside.

2 Likes

i think i had some dysphagia symptoms when i developed panic disorder over a year ago.

although not nearly as severe as yours, no where close. i was able to manage my panic disorder symptoms with keto diet

but take that with a grain of salt

feel better soon

1 Like

My larynx goes weak. As side sleeper I have nights problem with hanging through larynx, breath and salvia. Do you have this problem? Because of your muscle loss in your neck muscles.

1 Like

Sorry, I haven’t responded in days. I am so sorry to hear what you are going through. I don’t have much energy to reply plus I am still struggling with my dysphagia coughing like a dying man everyday.

I am a side sleeper too. At night I feel tightness in my throat muscles like they aren’t contracting or relaxing properly, but I don’t feel like they are collapsing. I don’t know if there is any muscle loss. My problem at night is trying to clear out my trachea of all the debris and saliva so that means coughing violently for an hour or so before I can get any sleep.

Thanks, lakehouse. I don’t get panic attacks and not a lot of anxiety but I wonder if you ever got a problem with excessive saliva. I don’t know why that goes hand in hand with my dysphagia.

Glad that ordeal is over for you now.

1 Like

I only had excessive saliva when my panic attacks would get triggered. It would happen right before i would dive into a full blown 3 hour panic episode, almost like a warning

1 Like

I am such an idiot. Anyone know how to clear out peanut butter from your trachea?

1 Like

no clue , good news is you wont get hiccups now :stuck_out_tongue:

I bet eventually someone will develop chronic hiccups from PFS from all the experimentation with all the new supplements coming out every week. I wouldn’t want to be that person.

1 Like

Oh god, I’m gonna, I’m gonna cooooooof

1 Like

I am not getting better. With every swallow I drown on my own saliva. Every day I am keeled over coughing so hard I am close to passing out. Just pure agony, unthinkable horror.

2 Likes

I’m afraid getting no breath, through my weak larynx. It just functions.
For you the maximum horror is true.
It’s so unbelievable. Where you have to go through.
So what’s your actual state. Do you stay at home. Can you go to work. Are you able to eat?

1 Like

You have trouble breathing during the day? Could you describe it more?

Yeah, I am home-bound. I’ve been disabled and unable to work for a few years now, even before PFS struck. It started with sleep apnea which developed into severe insomnia and severe fatigue, then I took finasteride and that was it. This is all on top of a severe learning disability, too.

I was supposed to get jaw surgery for the sleep apnea, it was my way out of disability. It was where all my hope lied. I spent thousands of dollars to be on braces for years to prepare for this surgery. But with these new PFS developments and the question of how I respond to certain antibiotics, that road is now closed for me forever, I think. Not sure how I am supposed to survive on my own eventually.

I can still eat on a limited diet. Anything that crumbles or is fibrous would make me gag immediately. I blend all my fruits and vegetables. It helps a lot to have a good blender, but no matter what I swallow, be it food, water, or saliva, some of it will inevitably collect inside my trachea.

1 Like

5 month update:

I am almost on a purely liquid diet. My voice is completely different and hoarse like a chainsmoker. I have trouble swallowing most things without some of it entering my airway. It hasn’t gotten better, I am not coughing any less frequently or intensely.

I am still keeled over everyday, spending hours trying to purge my windpipe. It feels like I might suffer a hemorrhage if I continue to cough so brutally everyday as I am getting pains in my head in areas that I’ve never had before.

Still waiting on my videofluoroscopy after 5 months. Canadian healthcare is a joke.

4 Likes

So sorry man I hope you get some restbite. :pray:

2 Likes

So sorry to read this, did u find how does this NAD+ work? Never heard of this supplement being used here. Why did it effect ur food and wind pipe in particular?

1 Like

It’s like a longevity fad supplement right now that’s available in big chain stores like Walmart. Nicotinamide adenosine dinucleotide is like a basic compound that enzymes need to do their job and declines naturally with age. It is what fuels mitochondria. It activates SIRT1 which supposedly mimics the effects of calorie restriction and exercise among a host of potentially regenerative properties or some shit.

I am just a combination of pure stupidity and being unlucky. Some people here are actually benefitting from taking these supplements.

It’s funny that it messed with my throat. PFS after all recapitulates the symptomatology of Spinal Bulbar Muscular Atrophy. The NAD+ somehow maybe lead to further overexpression of the androgen receptors of my bulbar/swallowing muscles. Finasteride initially already fucked with my sleep breathing. Made my sleep apnea a lot more severe while weakening the upper esophageal sphincter at night so that air escapes into my stomach from my CPAP machine/ventilator for sleep apnea.

3 Likes